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how do you know which dr, to go to?
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Lyme Disease
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dorifish1
Regular Member
Joined : Mar 2015
Posts : 38
Posted 7/23/2015 1:56 AM (GMT 0)
none of the drs, I went to have helped enough
don't know where to go
disillusioned
drs don't know how to heal this
I have a complex case, immune system probs
etc
jrpsf
Veteran Member
Joined : Aug 2014
Posts : 1762
Posted 7/23/2015 6:32 AM (GMT 0)
dorifish you mentioned in another post the west coast.
I'm in Northern California. Feel free to email me.
I've heard of people who had great success at Envita in Arizona. It was recently mentioned to my mom by a mutual friend. I can text that person and ask if she would contact the family that had two teens that went and are back to being competitive athletes and get pricing info.
sebreg
Veteran Member
Joined : Jun 2015
Posts : 1925
Posted 7/23/2015 1:39 PM (GMT 0)
Have you tried seeing any llmd/llnds? if not, you could post a thread requesting info on llmds in your region/city/area.
Btw, I live Phoenix, and have looked into Envita, plus a couple other centers in town. I was very intrigued, and rather pulled in by the notion of these places and what they promise. But after researching, I've come across some iffy things that raise a few red flags: they are expensive (but that is to be expected with lyme), they have a
cookie cutter one size fits all approach to treatment, and their main treatment course is 8 weeks (which is not enough for most cases in my opinion, at least not for a case like mine!). Plus their after treatment protocol sounds like it leaves quite a bit to be desired.
I'm not saying they don't help people, but after doing some research I realized these treatment centers were probably not my best bet to make the strongest recovery possible. That said I would not discount such centers right off the bat, but just research them and try looking into as many options as possible (other llmd/llnds in your area).
This is a thread of a patient review of Envita, and sure, it's only based on a few patient experiences but worth noting: https://www.healingwell.com/community/default.aspx?f=30&m=2750493
Keep hanging in there!
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 7/23/2015 3:23 PM (GMT 0)
I agree, you have to stick to LLMD's/LLND's - they are the only ones that have any clue as to how to help us heal - and it can be a real challenge for them too.
Most of us have immune system issues - or we wouldn't have chronic Lyme. Building it back up is something LLMD's/LLND's are supposed to help with, as well as balancing out the hormones, treating symptoms so that you can stand to be in your own skin and to help you treat these infections.
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