Hello everyone,
You might remember me from previous posts. I was diagnosed with Lyme disease about
a year ago by an LLND, and have since also seen an LLMD.
I have gotten worse over this past year, however. I am totally confused about
how to proceed. My LLMD and LLND have recommended different supplements/herbal remedies/etc., and I have tried most of them, but most of them make me feel worse. Some of the supplements cause a herx, and some cause a "detox" reaction, which is when you feel worse as a result of detoxing, because your body is not able to detox properly. (I have MTHFR and other genetic mutations.)
When something makes me feel worse, I go back to my LLMD and LLND and tell them this, to which they respond, "Stop taking it" or "Reduce the dose so that it doesn't make you feel worse".
The problem is, I am hardly able to take any of the treatments because most of them make me feel worse, even in tiny doses! My LLMD and LLND have suggested that I focus on detox and killing candida right now, and focus on killing Lyme later on, once my body is less clogged with toxins. But when I try to detoxify, my detox reactions are nasty, too. My ND is being rather unclear about
how I should proceed. On the one hand, she says that "It's the people who push their way through herxes/detox reactions who are the ones who get better", but at the same time, she has instructed me to take such tiny doses of things (in order to avoid a herx or detox reaction) that it isn't even enough to actually help heal my body. And some of the treatments that I have been recommended I haven't been able to try for other reasons.
I am so confused. Some people are telling me that I just need to force myself to take the detox treatments that make me feel worse, while others are being more vague. It seems like everyone is criticizing me for not being "motivated" enough to handle treatment, but in reality, I'm just not sure what I should be doing, which is why I'm not doing much detox or Lyme-killing. (I mean, I AM taking a lot of supplements, following a special diet, and working at killing my candida, but I'm avoiding the detox supplements, mostly.)
Another problem is that when I take a remedy that makes me feel worse, there's no guarantee that it will help me in the end, anyway. I don't want to become sicker for nothing.
I am going to see a specialist in nutrigenomics soon, to help address the detox issues, but I haven't a clue if I am going to be able to tolerate the supplements he recommends, either.
I am just getting worse, and I am so confused. What should I do? I just want to get well!
(I hope that all made sense.)