why isn't lyme/ borrelia more known, supported by now?

To have this disease in late stage

years later, still not a lot of support

why is lyme seen as not real


what kind of world are we living in?

I don't even know, how many people in us have the disease


why isn't there more change, support

support for cancer and other diseases there

why not this one?

I believe that it's the political controversy as well, generated and continued by the IDSA and their cohort, the CDC. If they were to go back on it now, there would be a whole lot of people (like me) that would want to file for Disability if they were truthful about what this actually does to a person. I was infected for 40 years before finding a diagnosis and treatment that actually worked for me.

Initially, I thought it was worse in Canada - the lack of acceptance, etc.

But, I am finding that I am not being questioned so much....at least here in my area of BC. My GP accepted the Igenex positive..and is supporting me with monthly liver and kidney function tests...did not even suggest I stop treatment when my liver enzymes were raised.
Recently I had an eye exam, and the Optometrist wrote on my chart that I had lyme disease and told me that she will test me for a baseline now and also wants me to have another test to look closer at the optic nerves and make sure there isn't inflammation from the lyme disease.

Even the Neurosurgeon I saw a couple months ago when I told him I had LD,...he did not dismiss it. He agreed my body had something inflammatory going on. (He didn't say I had lyme disease...but certainly didn't do the 'eye roll', or state that it didn't exist here.)

Most of my friends/family members have accepted it...don't question it...

There is even a LLND half hour away from my home now - ILADS trained.

I don't know - maybe I have just been lucky in who I have had contact with in the medical community since my diagnosis??

Another part of it is grant funding, insurance companies, and pharmaceutical companies.

Research grants are funded by Big Pharma.

If it were considered "real" and it was determined that more than one cycle of doxycycline was needed, insurance companies would be required to pay for treatment. Right know they write up bulletins for each ailment. Aetna's policy bulletin for Lyme states, that you must have a positive ELISA and a positive Western Blot. Then they will pay for one course of antibiotics. Every other treatment is considered "experimental" and the list went on for two pages. They don't pay for experimental treatments. If they paid for treatment, then they would lose money. Your premiums even over your life time don't cover your treatment costs.

Big Pharma makes money off of all of us. In my case, I take pain meds, an anti seizure med (for sleep), a muscle relaxant, a med for dry mouth, an anti-malarial, a cholesterol med, a thyroid med and a sleep med. That doesn't count the over the counter things I purchase. Fibromyalgia, MS, ALS, CFS, and other others are a cash cow.

If researcher say chronic or late stage lyme exists, then Big Pharma cuts off their grants.

If doctors treat patients with non-standard treatment they get brought before the state medical board, usually by the insurance companies. It only takes on e doctor to set an example.