Hi Meishie,
I know just how you feel. I healed from 40 yrs of living with these infections in 2012 and last year (2014) I was reinfected again. I didn't handle it well, to say the least, but I did get back into treatment and I am now healed yet again. But - I learned that I would always be vulnerable to these infections - like a computer is vulnerable to viruses and malware online - so I had to protect myself (just like we protect our computers!).
Have you found any LLMD's or LLND's to treat you? If not start here:
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
location.
You can start a new thread titled something like "Looking for LLMD in the
(insert the nearest larger city & state) area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can also email the Tick-Borne Disease Alliance at[url]
[email protected] for LLMD referrals and you can go to
tbdalliance.org to learn more about
these infections.
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
And ILADS has their own referral system:
ilads.org/ilads_media/physician-referral/ You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
http://www.ilads.org/lyme/treatment-guideline.php