I feel worse on my off abx days. what gives??

I'm guessing it's a mix between needing to detox what was killed during the week on abx and the bugs not being kept in check?? I read something that said if you feel worse on your off days you still have a way to go. Is that true??

IHL… don't take this the wrong way, but your body is struggling sooooo hard right now for a bunch of reasons. So you really have to suspend yourself at the 20,000 foot level and take a broad view by taking a good chunk of time to get any perspective of what anything means. A day-to-day view is just too narrow.

Yes, you're killing stuff and dead debris is now hanging out and clogging the pipes, and you're also stirring up trouble with the spirochetes that aren't being killed (not being reached) and they are scurrying to change form… and then there are the impacts of the drugs and I doubt anyone really knows what else is being attacked by the abx.

The IV delivery is strong and comprehensive. You're reaching parts of your body that haven't seen the light of day in a long time. ;)

Hang in there and take one day at a time but don't try to solve the puzzle with only one day's worth of information. Look far ahead—and picture yourself in one month. Give yourself manageable milestones to reach. Try to document how you're doing on a daily basis—for purpose of establishing patterns over periods of time, only. You do an amazing job of posting, which would make this documentation pretty comprehensive so a good thing would be to try to organize your posts.

WIsh I could do more to help! Detox like a madwoman (comprehensively, not all at once, of course!)

-p

That's awesome.

I doubt anyone really knows or understands everything going on in your body today, or yesterday. We're so complicated in a healthy state… when you're sick, that's a whole other world… and then adding treatment on top of it? I think that's a mystery that will never be solved. ;)

Hang in there… you really are doing great. I know you're feeling like you're scraping the barrel—and in many ways, you probably are. You have to be feeling so miserable in so many ways that you can't even describe. But you're doing better than I thought you would be! I was really worried for you starting on the IV with so much else going on.

And… remember that most of what is going on may not be "normal" but is in the realm of "expected". Maybe you can talk w/ your MD about giving it a specific period of time and then maybe target a break from the abx, or a lowered dose, or an increase… establish a plan and some milestones to target—something that you are WORKING TOWARD. That helped me so much with all of my cray back-and-forth stages in tx.

YUCK is right. HW would censor what I really want to say.

-p

I LOVE LOVE LOVE your MD. What a great support and person. You are very lucky, girl. Doesn't make things easy but does make things easier. And you really need a lot of support.

I kinda thought it was the end for me when I started the abx. I still have days where I entertain that. Uncertainty and fear is a really tough part of this treatment. Do whatever you can to see THROUGH IT and toward recovery.

Slow and steady is right…

-p