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lyme disease or not?

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Posted 8/28/2015 2:45 AM (GMT 0)
Wondering what your opinion is... lyme disease or not?
Negative result on Lyme blot test but had 2 bands reactive 41 KD IGG Band and 23 KD IGM Band. Lyme disease AB w/REFL done it was negative with a result < or =0.90. So the infectious disease doc says they don’t need to see me cause my test results are negative.



Symptoms:
Very fatigued most days
Headaches daily
Joints hurt
Brain fog-lack of focus and concentration
Muscle aches even if I try to fast walk
Cramps in lower legs and feet
Swelling of lowers legs and feet
Sore throat on and off
Eye sight seems off
Balance is off
Emotional
Irritable very easily
Digestive issues - bloating, nausea, reflux more


So many more, its manageable some days and others I just want to sleep but I make myself get up and go to work every day but it is a battle in my brain every day. So I’m looking for help…I have read the new to lyme disease, I just want to be well again.
Posted 8/28/2015 4:12 AM (GMT 0)
Yes -lyme disease.

Infectious disease Docs deny that people have lyme disease all the time. My advice is see a LLMD - they are specialists in "lyme disease"...

Your symptoms, plus he reactive bands on the Lyme blot test - indicate lyme disease.

I hear ya' - on the wanting to be well again...

Hang in there - keep reading, posting, and ask any questions you have. We'll do our best to answer them.
Posted 8/28/2015 4:31 AM (GMT 0)
I'd definitely go with Lyme being the culprit.

Just saying, I had an infectious disease doctor laugh/scoff, when I told him that I suspected Lyme, so.. yeah. They're a big help.

Just keep trying, man.. or woman (? - lol). Seek treatment, and more testing/the help of an LLMD, when/if possible. But, starting treatment, whatever you can manage, is what's crucial right now. Yeah, sure, it'd be of great assistance, if you were able to see a doctor who's knowledgeable when it comes to this stuff, but, if that's not much of a possibility for the time being, you really can't afford to just sit and try to cope.

I did that for a couple of years. Regret it. Trust me, it's gonna get worse and worse.

I feel the pain though, I do, in so many ways. Actually, gotta get ready to go to work right now. Ha.

Good luck. Stick around the forum - lots of good help here.
Posted 8/28/2015 12:44 PM (GMT 0)
Welcome!

Add in another vote for Lyme - sorry.

I see you're already looking for a LLMD and I wish you the utmost success.

Please read through the "New to Lyme" thread at the top of the forum.

It would be a good idea for you to initiate a detox protocol.

You see, having Lyme means we're dealing with bacteria that live and die in our bodies. Well, when they die, they create endotoxins.

Endotoxins are what drive our symptoms.

www.benbrew.com/lb/lyme5.pdf

Detoxing can help clear the endotoxins and help us feel better There are many detox suggestions in the New to Lyme thread and there's a very comprehensive list here:

www.tiredoflyme.com/detox-methods.html

The sooner you can clear current "debris", the more ready you will be for treatment which will create a LOT.

Best of luck to you moving forward! Please keep us posted.
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