IV Rocephin

I've been on different oral antibiotics (doxy, amox, biacin) for about a year & IV Rocephhin for right at 5 months now & symptoms seem to be getting worse. Symptoms include:

• severe difficulty with speech / slurring & sometimes not able to get a word out
• muscle twitching & cramps
• muscle stiffness in whole body
• balance issues
• muscle weakness especially in hands & arms

Most of my symptoms are nuerological & am a poster child for ALS which I was originally diagnosed with before testing positive for lyme & mold toxins.  Has anyone had any experience with IV Rocephin?  Everything I read says you should start seeing results by 3 months for sure by 4 months.  I am in month 5 now & seen no results.  My lyme doctor is wanting to pull PIC line, but I'm not sure.  Very confused as what to do....  Nobody seems to have any answers...

Frustrating... I'd eat a piece of dog crap if someone told me it would cure me!!!  Maybe I need to be more patient with meds.

Any input from someone with experience in being treated with Rocephin would be appreciated 

Are you treating co's at same time?

I was on IV Rocephin for 13 months and another 3 months on IV Doxy.

At one point I was taking:

IV Rocephin, and oral Zith/Mepron double dose/Bactrim DS/with Tindamax pulse. I noticed arthritic improvements at 9 months on IV. Neuro issues lingered forever. We thought I had a mepron resistant strain of Babs so went to herbals, then pulled the PICC. Didn't get over the hump till I hit Bart pretty hard with mino/plaq/Rif combo for five months.

Everyone is different... it takes time and you got to change up protocol often to see what works for you.

I am ready to even try MMS.... what's to loose after 5 1/2 years in treatment?

Hi chaos…. CHAOS is RIGHT. This is a crazy disease and treatment is even crazier.

I've been on IV Rocephin since Nov. It's been a tough, tough road.

I've posted about my experiences so I can share w/ you if you like.

Right after I started the Rocephin I had 3-4 wks of insanity. I experienced what I call "neuropsychosis" where I would have a lot of neuro problems combined with non-stop panic, anxiety, paranoia, tearful mourning.and I just ached all over. I felt like my body was in a vice. This all subsided after about a month but the cognitive problems have remained.

But I had a lot of problems with my port for the first 5 months so I had many interruptions with the dosing. It wasn't until 6th or 7th month that I finally was able to dose more than 3 wks at a time, so it's almost like the months before then did nothing. You have to get past that 4th, 5th or 6th week to get through the lyme cycle.

And once I did, I started experiencing flares with bell's palsy, tinnitus cognitive issues, and joint pain that had improved flared again. And each time I increase my dose, something usually flares but it's getting less and less.

But also, I'm not just taking the abx. I'm taking Byron White formulas for Bartonella and Babesia so I agree w/ Traveler's suggestion that you might look for complications of other coinfections but also, I think a hybrid approach of abx + herbs is helpful to get more and varied forms of antibacterials. The Rx and the herbs just work differently and there aren't controversial issues with the amount of herbs MDs can prescribe like there are for Rx...

I had all of your sx. Still have a few. Wobenzyme Plus is good for the muscle aches. I had a lot of help w/ Low Dose Naltrexone for the MS-type sx. But those sx are also common for yeast/fungal issues, which can develop even w/ IV abx. Are you on an anti fungal? Are you taking probiotics and doing well with your diet and gut health?

And detoxing is key—you have to remove what you are killing through detoxing or the treatment won't be effective. I'd add Pinella and Parsley tinctures for the brain detox—huperzine is also good. Sauna is good but you need a multi-pronged approach… a binder is good, alkaseltzer gold, detox soak, have you tried IR sauna?

-p

Oh! Also meant to add that you need something for the other forms of the lyme—the microbe likes to morph from spirochete form to either cyst or biofilm form. GSE is good as a cyst buster and cistus Incanus tea is a good biofilm breaker…

-p