Mepron Questions

Hi all,

So I've been on Mepron for about 2 months. When I first started it I did have some noticable herxes but not as much anymore. I feel like it isn't really doing anything. I am taking 1tsp twice a day. (Sometimes even less than that, as for some reason the bottle is supposed to last 3 weeks but it never lasts me that long! I know I shouldn't skimp on doses, but I really do have to to make the bottle last, it's so thick and hard to measure.)

Anyway, I guess I'm wondering what you do when Mepron doesn't work. Is Malarone an alternative? What's the difference between Malarone & Mepron? Or should I skip that and go to herbs?

 

I'm taking it with Biaxin. It's a macrolide as well, I can't tolerate Zith. And yes, I know about the peanut butter.

Yes, I am measuring it out of little medicine measuring cups I bought, filling to the 1tsp mark. I think it's just because measuring with liquid is so imperfect, and a lot of it gets stuck in the bottle. I told my LLMD about not getting the full 3 weeks out of the bottle and she shrugged and said they only make one size of the bottle so she didn't know what she could do. If I was taking double doses, I would be going through it even faster!

I tried artemisin but it made my constant headache worse.

No, I'm not noticing any difference. I mean, I understand it hasn't been very long but it's hard to knowwhether the medicine is working or not when I don't feel any difference, good or bad.

Luckily my insurance has covered the mepron so far, but I guess I'm just wondering if it would be a good idea to switch meds, or maybe I should stick out the mepron for another month or so.

I would have to agree with Girlie here Sarah. Especially with your insurance paying for it, stick it out for a few more months so you at least cover the full life span of a blood cell.

What Babs symptoms are bugging you the most right now?

I concur with Girlie! Sometimes, changes are extremely subtle and it might be working without you realizing it. I wish I could get Mepron so I could try it. From my understanding, Mepron can take a while to work. Babesia treatment is a slow process. Many people treat much longer than 5 months.

I hear you regarding headaches. I have bad headaches, made worse from Babesia treatment. They often come with nausea. I don't know how to get around it. I think many who have Babs suffer from the headaches. Without meaning anything negative to you, it always comforts me when I see others with Babs who have headaches. It makes me feel like I'm on the right track.

I'm sorry you're not sure about whether you're progressing with your treatment. Don't give up on Mepron yet. There are alternatives, Bactrim DS, Coartem, Alinia, Ivermectin, Larium (not sure about all the pros and cons). I tried Bactrim DS. I wish I had not given up on it so fast.

Hang in there Sarah!

Not that I have any experience with Mepron but I do remember some of what I've read during research.

I agree with the others that you need to give it more time. And, I also think you might want to add some herbs.

There are soooo many strains of babesia with new ones discovered every few months. Some strains have already developed resistance to Mepron just as some have with artemisinin.

A multi-faceted attack means a better chance at hitting some of the difficult strains. Buhner's latest babesia protocol includes 5 different herbs....and he mentions choosing different herbs or adding others based upon what the individual thinks might help. He says taking herbs concurrently with abx can help prevent resistance.

I'm not sure if you're following the full Cowden protocol but, Enula and Mora hit babesia. I herxed on them but wasn't on them long enough before I switched protocols. I found it weird that Cowden pulses the co-infection herbs...

Best wishes no matter what you decide and I sure hope you feel better soon!

I pulsed Mepron with art, omnicef, tinda, and mino. I was taking 4 tsp twice daily (MWF) of Mepron! I progressed well under this protocol. Call me weird but I actually like the taste of Mepron.