Posted 11/26/2015 12:19 PM (GMT 0)
Dear Anettee and cd3754.
Thank you for your answer Thanks Cd i see i thanks for telling me the purpose of sealantro
Annette i understand you dont want to upsert your mum and you put on as front i do this with mine when they visit me once a month. for few hours THis is max im ever out of bed at a time As im in out all day 7 days week. my eyes go cross eyed spaced out zombie head Hubby and my 16 year old just laugh at me As my face looks drunk as a skunk,Its like a mist decending, My speech goes and gets garbled,I say candrew for andrew and callum My son find it funny when i try to talk when this sets in He says what are you saying I try to answer dont no what comes out But im papped off by hubby back to bed. Lie in a half comotozed state in bed shivering and shaking chills runnming up down me.
I like this site as it gives me hope .a lot seem to be improving. Iv been told the reason i am, like this is lymes with me went untreated. The nhs Admit this however wont give me more treatment I only receoved 100mg doxy for 28 days I was retested and western blott borrelia was vstill positve, I was refused more treatment Iv had 4 nhs western blott positves I have ran private coinfection tests and have quite few positves The nhs refuse to treat these. So il be coping all you do on this site. I was stuck in hole getting no treatment Until i found this site Im gratefull As how no it could have saved me from progressing more. As this was path i was on.
I am glad o decided to look for a american site As you are all experts in lymes The uk is new to this fight
I came accross on internet Why lymes wars are coming to britain. It is shocking how
Annette i am glad yo have hubby to help you also. I would more than likely be in a care home at age of 48
As doubt social services would put all i need in the house. I cant use cooker due to severe muscle weakness in arms .I use paper cups as mug of tea is to heavy to lift arms go weak limp numb. Hubbby does all shopping cooking cleaning,I use wheelchair iv lost my mobility.It even got so bad i cant stand on one spot to properly sort myself getting off toilet Occupational therapy is putting s special toilet in Not a bidet its one that washes and dries you..Hubby has to wash my hair and help me to shower. I live in a adapted bungalow with wetfloor room wheelchair adapted with aids.
It all really annoys me as im a stubborn Moo Moo . My parents are still sporty and active nearly 80 my dad Was a mountaineerer He stiill goes long walks up hills. Both cycle also.
It hit home how disabled i am april this year When i moved here Both of them were up a ladder wallpapering.
I Sat in wheelchair below them, I could not even make them a cupa As i can not lift the kettle.
Hubby got a small travel kettle after this.however im not allowed to use it I dont no what im doing Forget im holding it Whewn its boiling and stick it in fridge Or go to another room Hit doorframes in power chair It mises my legs boiling watr hitting footplate. Or i try to sit kettle on teacontainer lid Thinking its the kettle stand. It falls over boiling water hutting my footplate
Hubby says im to much of a hazzard.Forget seconds later what i was doing or saying
Im not full of doom and gloom whatsoever I fight this thing. Iv got my 16 year old son Who is a breath of fresh air and makes me laugh daily He also plays the guitar and sings to me Hubby gets me out of bed Ansd i lie on sofa My son sits on end playing the guitar. I like softer muscic i feel im nodding off. He then hits rock tunes.My focus is on ,my son As im to sick to work And he is doing his Higher until 18 At school.
University after this probably a Llb law degree
The doctor silly sheep whos been so kind to me gave me.This doctor said she could tell im a fighter This will put me in good steed.
We skyped straight way she saw i was geting blinded by light From behind me through the window I did not touch my eyes.Keep forgetting to order those Ot glasses
Hope you dont mind my long Story ?sorry im off on one.
kind wishes
elaine
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