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Hiccups from Lyme

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Posted 12/10/2015 11:43 PM (GMT 0)
Just wondering if anyone has had the hiccups while treating Lyme? If so any tips on how to get rid of them? They are really impacting his recovery as he is not able to eat or drink since the hiccups cause so much pain.
My son is treating for 6 months now and is on Byron White A-Bart and Bactrim. He was misdiagnosed and treated for Crohns for 5 years which is making this a very difficult journey for him. If anyone has any advice we would greatly appreciate it.

Dana
Posted 12/11/2015 12:54 AM (GMT 0)
Hi Dana!-

Welcome to our community! So sorry to hear about your son's symptoms. I hope you stay around and ask any questions you might have. There are a lot of friendly and knowledgeable people on this forum.

Might I suggest you take a look at the "New to Lyme?....start here!" thread. This is found at the top of the forum. It has a lot of great information. I know that you mentioned he is already being treated for Lyme, which is wonderful!

What is he doing for detox? There are a lot of helpful ways to detox in the thread that I mentioned above. When the bacteria die off, they release toxins into or body. This can overwhelm our bodies which is known as a "Herx" reaction. Start off slowly with the detox. If done too much or too fast, it can lead to a herx, as the body is trying to rid too many toxins at once.

For the hiccups. Maybe try some home remedies. Try lemon, honey, and water. Have him try to hold his breath. These have helped me in the past.

Hopefully someone more ideas about getting rid of the hiccups.

Best Wishes!
Posted 12/11/2015 1:33 AM (GMT 0)
Thank you for your advise! He is just taking what I had mentioned in my post, not necessarily detoxing. Is that something he should be doing along with the A-Bart and antibiotic? Do you have Lyme also? We are new to all of this and are finding it to be a nightmare! He has gotten so much worse since we started. Our Dr. says he will get worse before he gets better but I really wonder if he will ever feel better. Everyday seems to bad right now. Just wondering how long it takes to see any positive results.
Posted 12/11/2015 2:20 AM (GMT 0)
Hi Dana!-

Yes, I also have Lyme disease. I also went many years of various symptoms until I got diagnosed. There are a lot of people here that can relate to this.

The detoxing is very important part of helping our bodies heal.
Please look at the post at the top of this forum titled "New to Lyme?...start here!" This thread is full of helpful tip. Some examples are: Detoxing, Probiotics, Symptoms, and so much more information. There is a lot to read about. Since he is on Antibiotics, he should also be taking a Probiotic. My probiotic is 50 Billion live cultures per capsule. It needs to stay refrigerated.

In the "New to Lyme?...start here!", you will find more information on Probiotics.

Is your son seeing a Lyme Literate Medical Doctor (LLMD)?

Feel free to keep asking questions. This is a lot to learn!
Posted 12/11/2015 2:39 AM (GMT 0)
Yes he is seeing a LLMD. Our biggest issue is that he was treated with immunosuppressant drugs for almost 5 years. That allowed there Lyme to really run crazy through his GI system. We knew he got bit by the tick that tested positive for Lyme right before all his symptoms started. None of his Dr.s would even test him for Lyme at the time. They said that his crohns symptoms could not be related to the tick bite. Over the course of the 5 years on every Crohns drug out there he never saw any relief. When his gastro dr. said this past March there was nothing more he could do but remove his colon we decided to start researching whether or not the tick bite could have played a role in his symptoms. To our surprise there was plenty of information out there about Lyme mimicking crowns. Thats when we found a LLMD, He performed the Western Blot from Ignex but it came back indeterminate with significant bands showing weak positive results. Recently he was tested for Bartonella and it came back positive. We now know what we are dealing with but he has grown tired of eat this not that. Take this it will work and it never did. We are seeing some changes in his bowel movements are their frequency something we never saw when he was treating for Crohns. But the Herxing and pure exhaustion is taking it's toll on him. To top it off the hiccups are extremely painful and prevent him from eating. At 100lbs he cannot afford not to eat. I will look at the "New to Lyme" and hopefully learn somethings that will help him. How long did you treat for before you started to feel better?
Posted 12/11/2015 3:18 AM (GMT 0)
Hi Dana!

How terrible what your son has all been through! Before my diagnosis of Lyme, my GI doctor said that I had I.B.S. and that I should find out how to deal with it. I was also told that my symptoms couldn't be from Lyme.

Lyme disease and co-infections can really affect a persons digestive tract. This is why it is good to have him also take a probiotic.

Is your son only on one antibiotic? Some of us that take antibiotics, end up taking at least two different types at the same time. Maybe it is too early yet to add another antibiotic.

I know it must be hard to be young, and have to stick with a "diet". But he should try to make an effort; because sugar, gluten,and dairy can be hard on our digestive tract.

I really think you should try to detox. Just remember, not to do too much! For example if he does an Epsom salt bath, maybe soak for 10 to 15 minutes and see how it goes. If he starts to feel worse,then maybe try 5 minutes the next time. This is kind of a guessing game in the beginning. Sometimes you have to slowly add new things in. Also make sure that the water isn't too hot. This can cause a herx.

Once again, I am so sorry to hear what your son has all been through.

Best Wishes!
Posted 12/11/2015 4:42 AM (GMT 0)
Dana-

Feel free to ask more questions, if you have any. If you have a new question, might I suggest you post it in the "Post New Topic ". This way more people will look at it and be able to help you.

Keep posting! :)
Posted 12/11/2015 4:34 PM (GMT 0)
Dana,

I used to get the hiccups after eating quite often. Lyme effects so many body functions including how the muscles move food down your throat. I had to take a drink of water after every bite or food would get stuck and I would end up with the hiccups while running for a drink of water.

I tried so many weird and wild things to combat hiccups. The one I finally found that worked for me every time was to take a large glass of water and put a single paper towel over the top of the glass. Drink as much water as you can through the paper towel, without using enough force to put a hole in it.

Sounds weird I know, but it works almost every time for me.

Hang in there. Lyme is a marathon not a sprint. I've been treating for about 2.5 years now I think and I am just now starting to see improvements. I also got a lot worse before I got better. It's unfortunately kinda par for the course.

Definitely make sure your utilizing probiotics to help with GI issues. GI trouble was one of my first symptoms. I had enough colonoscopies and endoscopes done that they greeted me by name lol. My LLMD prefers we use the type that require refrigeration. there are several very good threads here on probiotics.If you cant find them searching and want to read them, I'll see if I can find a link for ya.

Hang in there. This disease sucks....
Posted 12/11/2015 7:17 PM (GMT 0)
Welcome to the forum! Magnesium will get rid of mine, but I don't have them constantly. Natural Calm is an easy one to take.
Posted 12/11/2015 8:55 PM (GMT 0)
Thank you, would you mind sharing the dosage you take?
Posted 12/12/2015 7:13 AM (GMT 0)
The product label says to start with 1/2 a teaspoon and gradually increase to to 2 tsp. Then they say for best results, divide the daily dose into 2 or 3 servings. Back off if loose stools occur.

I hope it will be an easy fix like this. If not, keep searching and asking questions.
Posted 12/12/2015 8:55 PM (GMT 0)
Thank you I will have him try it!
Posted 12/13/2015 10:40 PM (GMT 0)
You're welcome! I hope it helps.
Posted 4/27/2017 5:21 PM (GMT 0)
Hi Dana, I have a story similar to your son in that I was diagnosed with Crohn's, then while on Remicaid became increasingly ill with neurological symptoms to the point where I could barely walk a block because of pain and had a headache or migraine almost every day, plus other disabling symptoms. Then 5 years ago I was diagnosed with lyme. Quitting immunosuppressant treatment and then multiple years of antibiotic Lyme treatment, both oral and IV, has shown me some great improvements but also left me with new seemingly permanent neurological symptoms. I was hopeful my Crohn's would go away but so far no luck. Diet is by far the most helpful thing for me to manage my Crohn's. Ketotefin has recently been a huge help to calm my system and help me gain weight. I'm curious how your son is doing now and what has helped or hasn't.
Posted 4/27/2017 5:46 PM (GMT 0)
Welcome to our community, Seawa!

I just wanted to mention that Dana hasn't been back on the forum since 2015.

So you are left with permanent neurological symptoms? How do you know they are permanent (if you're not willing to share - that's fine)


Have you stopped treatment now?

We encourage all new members to read through the thread at the top of the page titled: "New to Lyme?..Start Here!" It's packed full of useful information.

Even though you're not 'new' to lyme - you may find some information in there that you haven't seen before.

I hope you find this to be a knowledgeable and supportive group here...and keep coming back to post...ask questions...etc.
Posted 4/27/2017 6:00 PM (GMT 0)
You may have noticed I wrote "seemingly permanent" because I have tried many many things to make them go away without luck and it's been years. I developed a 24/7 headache while on doxy that I've had for 4 years... I've had neuropathy for 3 years that started on a cocktail of iv and oral antibiotics and antimalarials. After a year and a half more of heavy duty antibiotic/antimalarial treatment my doctor had me stop due to my bad side effects that she sees as abnormal compared to other lyme patients. Now I am treating with ozone IVs and addressing mold exposure but I've tried many things in between.

Interested in chatting with somebody with the Crohn's and immunosuppressant connection although I know she may not see this. Is there a way to message members?
Posted 4/27/2017 6:14 PM (GMT 0)
Yes, members can be messaged via email...but I see that Danaanthony doesn't have hers enabled.

The envelope below the screen name will be blue and yellow colored if it's enabled.
Posted 4/27/2017 8:09 PM (GMT 0)
Welcome Seawa!

We are glad you found us!
Posted 4/27/2017 8:41 PM (GMT 0)
Hi seawa! -

Welcome to our community! I am so sorry to hear about your Crohn's and other health issues.

You could maybe try posting a new thread asking if others here have or are dealing with Crohn's , immunosuppressant, and Lyme.

You might get more responses that way. I hope that you stay around. There are a lot of friendly and knowledgeable people here. We all try our best to help each other when we can.

Best Wishes!
Posted 4/27/2017 9:01 PM (GMT 0)
Seawa, welcome! Keep in mind that most doctors do not talk about de-toxing, but I promise you that it is a necessary component of handling our treatments for Lyme and the co-infections.

They seem to well know what a Jarisch-Herxheimer Reaction is, but not that it's possible to minimize and sometimes even eliminate/prevent it from happening by helping our body rid itself of the toxins accumulating from die off. Our body already deals with ridding itself of the daily toxins we run into. These nasty tick organisms can really pile it on when they die.

Herx symptoms are often amplified symptoms we are already experiencing, such as painful joints, headaches, dizzyness, and a plethora of weird unpleasant sensations.

Plus, the disease tends to pull our body ph into an acidic range, or flood our heads with ammonia.
There are many simple methods of detoxing, such as drinking lemon water, Braggs Apple Cider Vinegar with the 'mother' in it, dry skin brushing, epsom salt baths (even foot baths), using activated charcoal tabs to bind the toxins out.....
And herbs.

www.tiredoflyme.com/detox-methods.html
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