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Worst headaches and pressure/pain in evening time

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Posted 1/4/2016 1:16 PM (GMT 0)
Anyone else get the horrible head pressure I asked about a few days ago in the evening time and then it gets progressively worse until you can finally fall asleep? I go see my doc in two days but am wondering if anyone else gets this in the evening. Usually around 430 or 630 it gets pretty bad and then by 11pm it's awful. I am used to alot of pain but these hurt so bad. I have bee getting them now for 11 nights in a row. I have been taking azithromyicn and malarone at 1/4 dose and still getting them. I seem to remember before I knew had lyme last April I had this for about a month. Had an MRI and went to neurologist and she just tried to tell me it's not lyme and I have migraines.

Leah
Posted 1/4/2016 1:39 PM (GMT 0)
It sounds like you are herxing - sorry.

It's clear you are treating Babesia and head pressure is a hallmark symptom of it.

Please consider increasing your detoxing - maybe you can find a few things to add here:

www.tiredoflyme.com/detox-methods.html

Buhner recommends 1/4 - 1/2 tsp Kudzu tincture 3x daily to help with this symptom. Herbs can be safely taken alongside abx.

Hope you feel better soon!
Posted 1/4/2016 1:42 PM (GMT 0)
Thank you I will ask my llmd about it on Wednesday. Ugh this is awful haha....I literally just sit in the steaming shower and breathe to try to help it go away. Im thankful if it's a herx though :) maybe will come out of it a little better off :)

Does anyone take Thorne Mediclear SgS?
Posted 1/4/2016 5:40 PM (GMT 0)
I had horrible head pain and could not sleep when I was first diagnosed and before treatment.

What helped me was Benadryl. I used the children's liquid and I would only take the amount for an 11 year old child. This helped me sleep and because the dose was so low I did not wake up groggy.

Ask you doctor if this is a good idea for you.

Hope this is helpful. It is one of the detox methods.
Posted 1/4/2016 6:10 PM (GMT 0)
Awesome...I will definitely ask :) thank you :)
Posted 1/4/2016 6:33 PM (GMT 0)
Hi Leah 2013!-

I also deal with pressure in my head. I have it every day, all day long. It feels like my brain is swollen and pressing on my skull. I also have daily headache and stiff neck, and too many more daily symptoms to list. :)

When you mentioned that you take a "steaming " shower, how hot is the water? I ask b/c hot water can make you herx. What time do you take your shower?

Personally, when I shower, I can't have the water too hot. I always felt so sick after a shower.

Sorry, but I don't know anything about Thorne Mediclear Sgs?

Hopefully you will get an answer or you could try asking in a new thread?

Best Wishes!
Posted 1/4/2016 7:08 PM (GMT 0)
Little Bear-
Yes that's exactly how it feels like my skull wants to just split open to relieve the pressure from my brain pushing on it! Have you found any relief? I'm sorry you have it! I also get just throbbing from it too and sharp pains near my temples sometimes.

I'm careful not to sit in the hot water....I learned that the hard way with an Epsom salt bath lol. Herxed for days! I just do enough to to let some steam roll up and sit down in there. Then I always rinse with freezing cold.

Thank you for your reply!
Posted 1/4/2016 7:33 PM (GMT 0)
Hi Leah!-

Sorry, but I have no idea how to get rid of the pressure. My LLMD gave me A-Inflam herbal drops to try and calm down the inflammation in my body. The drops are helping a little with my inflammation, but obviously not getting to my brain! :)

I am also taking liposomal glutathione. This is also supposed to help with inflammation and detoxing.

I have also had stabbing pains in my head and behind my eyes. One time the pain was so bad, that I thought I had an aneurism in my brain.

You might want to ask your LLMD about some type of anti-inflammation supplement. Or maybe someone that knows more about herbal treatment will have an answer?

I guess, I never knew how bad My body was inflamed. I am dealing with overgrowth of Candida and Lyme, which both can lead to inflammation.

Best Wishes!
Posted 1/4/2016 7:39 PM (GMT 0)
I take the liposomal glutathione too :) every morning lol! I will ask on Wednesday. If he gives me any good information I will tell you!!! Praying we get some relief :)

Leah
Posted 1/4/2016 7:49 PM (GMT 0)
Thank you Leah!

I hope you get the answers you need! And of course, please share with the rest of us!!!! :)
Posted 1/6/2016 8:40 PM (GMT 0)
Hi Leah!

I also have this kind of "pain" - I call it weird pressure headache. I also have it 0-24, but sometimes better, sometimes worse. Sorry, I do not have the golden egg too, but for me the infrared sauna helped me to relief the symptoms a bit for a while.
There is one thing however: when I was in my worst, I got regularly vimatin IVs and it helped me to survive and also helped with this miserable headache. I experienced with the content of the IV to figure it out which component helped me, but I was not 100% sure, maybe the whole one. There was one component that was suspicious and when I took it in tablets it also helped. It is ginkgko-biloba. Try it out, maybe it helps!

Do you also hear some cracking noise sometimes from your skull like your brain is swelling and the tissues are cracking? Cause I do sometimes!
Posted 1/6/2016 10:08 PM (GMT 0)
Hornet599- yes I hear the crackling sometimes but at the base of my neck kind of and then up. I actually just went to the LLMD today and he did a Vitamin IV. We had to do it this time without any vitamin b because last time had a really bad skin reaction for 9 days :( but this time knock on wood I didn't get a reaction so praying I can get these weekly. He said the magnesium in them will help too :). I am praying we all find some relief.

Little Bear- I did ask him what would help this feeling of pressure and pain and he said ReMag which is the brand that I can buy of magnesium. He also said cranial sacral therapy. I will let you know if it works! He said he could give me high dose pain killers but they will just get in the way of taking all the other medicine. He also started me on activated charcoal powder at bedtime now....I had the capsules but he wanted me to get the powder and drink it through a straw at bedtime 1/4 tsp and work my way up to 1 tsp. the brand is Bulk Herb Store. Have to space it 90 minutes after my probiotics. Gonna be up all night hahaha! He said that magnesium is the most natural and should provide some relief. He said start slow on the ReMag as it could cause diarrhea. We will see :) I hope this helps others too. :)

Leah
Posted 1/7/2016 12:47 AM (GMT 0)
Hi Leah!-

Thank you so much for posting this information! I wrote down the name (ReMag) and I will look into this further. I will have to see if will be OK to take with all of my Other medications.

Thank You!! :)
Posted 1/7/2016 6:28 AM (GMT 0)
Hey ya'll. I had really good luck with Phosphatidylcholine from my LLMD to get rid of head issues. I am trying to pass along the relief if I can. I have issues with encephalitis from Bart and previous Babs herxs and it seems to be the only thing that works for me. It is difficult to do. Very strong, like EDTA process, but it works extremely well. I am doing a lot better with brain issues. Also it is very important to make sure your spine is in line or else the toxins cannot be removed from your brain from Phosphatidylcholine.
Posted 1/7/2016 8:19 AM (GMT 0)
Leah, yes I hear it at the back of my skull too! I have never talked to a person with this kind of symptom (crackling and head pressure which is my main, and worst symptom), you are the first one :)
Thank you for the hint on magnesium, I will try it out!

Could I ask do you have root canals? I have a very strong suspicion that root canals also play a role (more or less) somehow with these symptoms. If this is a real cause or just aggragated to lyme, or it is just lyme I do not know. All I know is that I found big relief (just temporarily :( ) when my previously existed root canals were re-opened and re-cleaned. It was not a co-incidence, I am sure!
Posted 1/7/2016 8:21 AM (GMT 0)
Maybe it would be good to stay connected. If you'd like to please mail me (my address is public in my profile).
Posted 1/7/2016 4:34 PM (GMT 0)
The children's liquid benadryl also helps if you have food sensitivities. Some folks on another forum (an MCAD forum - mast cell activation disorder site) take it before eating usually when they are away from home, to kind of prevent the reaction from happening. I usually keep a bottle in my pocketbook.

When you guys are talking about the cracking noise, are talking about a popping noise you hear when you stretch your neck out? or a noise actually inside your ears?

For many years, I would be able to "crack" my neck like what happens when you get an adjustment from a Chiropractor. The sound I mean. So I always thought it just my vertebrae going back into alignment. But recently I read on here that it was a symptom for one of the Cos (either Bartonella or Babesia, I think).

The other sound which to me sounds like a cracking happens when I yawn or do something else the "clears" my ears. It's almost like equalizing the pressure in your ears, but now I understand it's releasing pressure build up in my brain.
Posted 1/8/2016 7:06 PM (GMT 0)
gkamom: no this is something different! I hear this cracking independently of moving. Sometimes when a worsening/seizure/herx (or whatever it is) starts I hear some cracking-popping noise from my back of my skull. For me there is a few cracking (lasts for a few seconds) then stops sometimes repeteadly. You can kinda reproduce this sound when you put your finger at the back of your head push your head/hair strongly and start slide your finger slowly. This is almost the same sound what you can hear this way. This neither comes from "outside" nor from bone.
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