Symptoms

I know I've posted a similar question before, but any response is appreciated. Just looking for comfort and feedback that I may not be crazy.
I've been sick (off & on) for three years; last year has been the worse. Does it sound like Lyme,?

It all started summer of 2013. Outside gardening when I got really lightheaded, headache and weird hot flashes. When to ER, they said slight dehydration. This happened several more times.

Then month or so later, started having GI symptoms along with the previous symptoms. Then started having night sweats and muscle shaking/tremors.

As time went on, more symptoms came up: cold sweats, sinus issues, ear ringing, vision disturbances, etc

Then in late March of 2015, I had an extremely bad "head cold". about a week after that, I literally woke up with air hunger, numbing in my left pinky, and severe random headaches and chest tightness.

I have since been diagnosed with Asthma, allergies, chronic sinusitis, a reduced heart ejection fraction, lesions in my lungs and Bilateral Carpal Tunnel.

My Western Blot only showed bands IGG 41 and 66 positive. I also had a positive EBV IGG of >5.00. No Dr I have seen believes it's Lyme.

I read that having both bands 41 and 66 could be suggestive of Lyme? Is this true. All other tests have found no other infection(s). I feel scare, alone and lost...

Beeps

Sounds like Lyme and company to me as well. It's much more believable that you have Lyme than all of those medical conditions (I count 6) suddenly hitting you, isn't it?

You need to find a LLMD that is actually trained properly. Remember, not all doctors (including LLMD's!!) are created equal! There are those that are being pushed by colleagues to adhere to IDSA guidelines, those that are being watched closely by the insurance companies or others and have concerns about losing their license, those that are so new that they don't understand enough information, and those that are self proclaimed LLMD's - which doesn't help at all! There are many reasons why your doc may not be giving you good information - that's why we are here, to help you double check it.

Here is the list of ways to find a LLMD that I have:

You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/