HealingWell
Search Close Search
☰

Not sure I can do this anymore

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/31/2016 9:23 PM (GMT 0)
further to my last post, Im not clear if you are taking antidepressants AND 5HTP supplements at the same time? If so, this is potentially VERY dangerous. See info below from Univ of Maryland Medical Center:


"If you are currently being treated with any of the following medications, you should not use 5-HTP without first talking to your healthcare provider.

Antidepressants -- People who are taking antidepressant medications should not take 5-HTP. These medications could combine with 5-HTP to cause serotonin syndrome, a dangerous condition characterized by mental changes, hot flashes, rapidly fluctuating blood pressure and heart rate, and possibly coma. Antidepressant medications that can interact with 5-HTP include:

SSRIs: Citalopram (Celexa), escitalopram (Lexapro), fluvoxamine (Luvox), paroxetine (Paxil), fluoxetine (Prozac), sertraline (Zoloft)
Tricyclics: Amitriptyline (Elavil), nortryptyline (Pamelor), imipramine (Tofranil)
Monoamine oxidase inhibitors (MAOIs): Phenelzine, (Nardil), tranylcypromine (Parnate)
Nefazodone (Serzone)


http://umm.edu/health/medical/altmed/supplement-interaction/possible-interactions-with-5hydroxytryptophan-5htp
Posted 1/31/2016 9:49 PM (GMT 0)
Elena-

I am not currently on any ssri's. And my dr knows about everything I am taking. These feelings were there before taking Xanax but have become more severe since starting treatment and that is why I ended up taking the Xanax.. It's the only thing I have to take the edge off and help me through the really hard times.. I am sure that the Xanax is not causing these issues for me. Thank you for your concern.
Posted 2/1/2016 12:02 AM (GMT 0)
This way out isnt defined. ..everyone here shows that we are still human...ghost ,the wut ,tillyb,trav ,sheep you all are amazing...i dont know how you all do it ...i idealize the end of this pain. When the park ranger said it turns your body into a torture chamber he wasnt kidding ...it would be ok if it were just physical but the brain being the link to the soul is broken . And i dont know if mine will heal...my heart is defunct but that is another matter...the smiles of my loved ones is what keeps me going ...a friend with lyme who has run her course on abx her liver is not good says she only looks one day at a time..whith no hope that tomarrow will be better how dernit how...i had goals and dreams and love...now i just want to not be dizzy the ringing to stop and to have my muscles back....some goals huh...treat now treat hard dont let yourself get this bad
Posted 2/1/2016 12:21 AM (GMT 0)
Sandra-

Another thing I was thinking was have you had your ADH hormone checked? I was drinking so much water and was still dehydrated. It's a simple blood test. My LLMD said that it could definitely contribute to the panic attacks. If it's low---which a lot of people with Lyme have...it can cause your body to flush water and not retain any. And our bodies are already fragile right now. Just a thought.

Leah

Post Edited (Leah2013) : 1/31/2016 5:26:20 PM (GMT-7)

Posted 2/1/2016 2:59 PM (GMT 0)
bluelyme, I have to keep telling myself that I will NOT be beaten by a bacteria. Period. I don't care how smart and evolved it is, I am smart (ish) and evolved (well, mostly) and I will win this game of chess it insists I play.

Your link to your soul isn't broken forever, it has just got tangled up while you are fighting the Lyme. Never stop hoping that tomorrow will be better. One day you will be well, you will be chasing your dreams, you will be reaching your goals, you may not know when that day is, but ever day that passes you are one day closer to it. Your future health, your future happiness - that is your goal, that is your dream, for now, and it is as worth chasing as any other.
Posted 2/1/2016 3:44 PM (GMT 0)
Sandra, i'll try and make this short. You said it's hard to hold onto the positive things. I would say you only need two positive things to hold onto, your boys. You have already said that you think of them when you are down. That's what's important. They are the reason that you need to keep going. At this age, they are too young to understand what you are going through. Mine were 2 and 9 when I was at my lowest and they were my touchstone. Now they are 23 and 16 and they're still my touchstone.

There was discussion about SSRIs. You need to be aware that antidepressants aren't the only thing that effect how much serotonin our body produces. I would check into everything you are on and make sure you are not taking too many things that contribute to serotonin.

You mentioned the Jerningan's CNS/PNS. It works for some people and not others. I decided to try it with my son. It does work for him. He had rages, insomnia and anxiety. Since we started it there has only been two rages and he is sleeping better. He also said that the anxiety has gone away. If you already have a bottle, start taking it. Start slow (like a third or quarter dose) to see how you react, but if there is no bad reaction work your way up. If you search Buhner's website, there is a question there about the formulation and Jernigan's response. Buhner doesn't recommend it but only because it doesn't work for some people. But you could be one of those people and you definitely could be one of those people.

One final thing, in Buhner's new book under the extended repertory he mentions Taurine under memory/cognitive dysfunctions. He recommends 125mg three times daily. If you go to seeking health.com and search for it there is a link to a video where Dr Ben Lynch talks about why it is important. He is the other doc (besides Amy Yasko) that is an expert about Methylation.

I just looked it up in wikipedia and they mention that it is "protection against glutamate excitotoxicity" which is a real issue. In Ben Lynch's video, I think he mentions that it prevent the body from forming aldehydes from the sugars we take in. Connecting a few things found in my reading - when we took biology and had to dissect a frog it was pickled in formaldehyde so I don't want it (or any of its cousins) in my brain. Taurine crosses the blood brain barrier so it likely soaks up some of the toxins in our brain.

I haven't seen much about it here on the forum, but I honestly haven't had a chance to ask a question about it on here.

So in summary, keep hold of you boys, check for hidden serotonin, try the CNS/PNS and look into taurine. Oh and as everyone has said you might be doing too many things too soon. If you read Buhner's book (or parts because it is heavy on the science) his protocol is mostly immune support and rebuilding of the body. I think there is only one herb that actually kills the spirochetes. I could be wrong since its heavy reading.

Hope you have a better day,
Kim
Posted 2/1/2016 10:22 PM (GMT 0)
Sandra. I'm a little late in posting a response so pls forgive me. I too have been dealing with some low moments. This morning I was feeling down for some time. This is totally not me, I am a calm, positive person. My feeling of being down didn't last the whole day thankfully but when it did happen, I tried my hardest to cope and constantly told myself it's temporary. Just remember, this is not you, it's the bloody illness doing this to you. We are all going through or have gone through ridiculous crap with this illness, we can't let it win. If you want to let it out and don't know where to turn, come here and vent. We awe all here for you.

Just remember one thing: you always get a second chance and that is tomorrow. Today is temporary, it will pass like the day before and the day before that etc. We have to keep going, because when we see that rainbow and those wonderful moments that we longed for when we were sick, we will realize why we tried our darnedest to stay strong and positive. I wish you all the best in your journey towards wellness and my prayers are with you.

Don't give up on prayer, the universe/God/whatever or whoever you believe in, will not let you down and your prayers won't go to waste. Things are happening behind the scenes and you will see the fruits of your prayers before you know it, you just have to keep believing. Hang in there my friend :)
Posted 2/1/2016 10:44 PM (GMT 0)
Sandra! I didn't have time to read all the other posts so sorry if I am repeating anyone, but in my opinion: Stop the methylation immediately. This was me last July. You are too toxic. You can't just ramp up methylation because the Lyme has overwhelmed the system. The die off is making you feel this way. This is a case that more isn't better. Not a lot of do doctors understand methylation and Lyme.

In my case, my doc says my body is fighting it very well, hence all the herxes. So lower doses have made this more manageable to detox. Hang in there. We are pulling for you!!!!
Posted 2/5/2016 6:42 AM (GMT 0)
Thank you silly sheep......keep on keeping on...tomarrow i go get stung by multiple bees on purpose...the endorphins feel like a good trade for histamines...lol....im gunna try st johns again..maybe ldn for the pain?
Posted 2/8/2016 5:54 AM (GMT 0)
Hugs...i feel just like you,i look at my body and face and its not me...i wonder if my tx is aggressive enough.i have to do everything in my power to try to combat this disinigration of myself. I once was a lion . Now i am scard of a little blue pill....do i eat it n suffer or suffer more for not? Either way huh
✚ New Topic ✚ Reply
12