Self-treatment advice sought for UK

Welcome back, balingtwine!

Well - to start a bully eye rash is a symptom of lyme disease.

Yes, your reaction to the amoxicillin is most likely a herxheimer reaction. At first you felt better, but as more bacteria was killed off, the toxin load was too much for your body to keep up with...thus inflammation and herxing. (No, it's not 'old-school' thinking - herxheimer reactions are real)

We do have members from the UK - but I don't remember if they are self-treating...or if they have found a LL Dr. - maybe they had to leave the UK to get one.

You might want to edit the title of your thread - to add in the U.K. maybe change it to read:
Self-treatment advice sought - in the U.K.
Then hopefully, if our UK members are on, they will be drawn to your thread.

Oh - and no one month of amoxy isn't enough time to treat the infection - especially a long-standing one like yours...(sorry)

Thanks Girlie

I am sorry but I have become very sceptical about herbal treatments. My wife is an avid follower of herbal remedies, dietary protocols and alternative healing. I have tried numerous methods and have had no response whatsoever.

When taking antibiotics I feel the effect within 1-2 days. I am also losing my patience. It is a constant battle with the local healthcare providers as there are a large number of people claiming to have Lyme without actually ever having a tick bite.

JUST SOME GENERAL SUGGESTIONS AND A FEW OF MY OPINIONS ON SOME OF WHAT YOU SAID. NO OFFENSE INTENDED. READ, IF YOU WANT. EITHER WAY, BEST WISHES.
----

See a literate physician, if you can. The regular ones are mostly a waste of time. If not, that sucks, but you're not alone there. I am my own doctor, and a very poor one at that. I'm all I got though. Well, I guess I can't forget this forum and my trusty sidekick, Google.

Either way, figure out some sort of protocol, incorporating the importance of not only the eradication of the bugs, but also things like supporting the detox pathways, the gut, the immune system, supporting the body in general (vitamins, minerals, et cetera).

You see, the truth is, for many of us, it is seldom just a case of "I took these one or two things and suddenly life is swell again," especially those who've been infected for a period of years. There a layers to it, layers that grow in thickness, with more and more being added, as the months pass. More than that, there's no just tearing the onion apart, or slicing through to the middle with ease, like you would in real life.

There's a process, there's a system to the system, and, unfortunately, it's often very individual. One size does not fit all.

That said, the reason those things didn't work for you could very well be owed to the fact that YOU, YOUR BODY, for whatever reason, did not perform optimally, not the herbs themselves.

I made the mistake of thinking that as well. "These things don't work. They're a waste of time, they're a waste of money."

It was the same with each new herbal option, I'd end up blaming them, citing their failure, when in reality the failure was my own.

I spent my 2015, jumping from protocol to protocol, wasting away the days, burning through my bank account, only to realize that, again, it's more than just taking one or two products. Life is not ideal, especially not for people like us.

Figure out the process that is required for you, follow it, making edits as needed, or fail. Easier said than done, yes.

Me, I may never figure mine out, I might die this way, or even worse, but I'm trying, and, just like you, whether you wanna believe in their value or not, these herbs, the crap I buy off Amazon or wherever, they're all I got. I'm waiting on the world to give a **** about me too.

Now, this, or any of the other things I've said, is not a shot against you, but I suggest that you make efforts to educate yourself, doctor or not.

Granted, the passing of time and continuation of life will do this for you anyway. You will learn, through trial and error, struggle and failure. I mean, you're 56. You already know that. I'm just saying.

All I mean is that doing a bit of reading, even with as sick as you are and as thick as the information on all of this can be, could help to ease the process. I wish I would have read more, back when my mind functioned a little better. I might not be as deep in this mess.

Anywah, try, try, try, is all you can do. If not, then resign to live sick, or die. Screw that though, right?

Apologies if this post holds nothing positive for you. I did try. Apologies for taking up so much space.

Again, no disrespect. I guess some of the things you said just struck a chord with me. I see my old self in them, and I want to kick the crap out of him. Not that my new self is much better. lol

In addition to the length of time - one month not been enough - the dosage is not high enough.

Amoxycillin should be at 1000 mg 3X daily minimum. And because of it's s short half-life, it should be taken in conjunction with another medication called Probenecid. Probenecid will keep the blood levels of Amoxy higher for a longer time.

But, I think you already realize that you're going to need to do more than what you currently have.

PS should have said I got negative on tbe NHS ELISA, the bulls eye rash is confirmation in itself, I am being treated by this doc regardless of negative test, she diagnoses clinically.

Some docs believe a slower, longer approach is needed. For example low dose doxy for months before adding a secondary biofilm/what-have-u buster. So many here will say that you need to "nuke" the heck out if it, using a cocktail of medicines, while others subscribe to adding very slowing, allowing the immune system to adjust. Each body is different, but knowing that the longer something has been in your body, the longer to treat. So it could take 1-2 years+. With that said, it's a great sign that you did have a positive body response to abx.