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lynbrez said...
Traveler, thank you for your time and the information that you gave me. I'm going to go buy the tea and apple cider vinegar and keep drinking lemon water see how that works out for me.

Do you find the tea and vinegar work? I also do oil pulling not sure if it's really effective but it whites my teeth😆

Thanks again!
Lynn

I'm so very, very sorry, Lynn! I got tied up with a phone call, then had to help do some things around the house today. Just love when a water heater goes out!! Ugh! NOT! Tomorrow we replace the heating elements.

And yes, the ACV helps me and the Yogi detox tea - but they are not effects you feel right away. It can take a bit of time (days/weeks) to reduce the level of toxins enough to really feel much difference, but if you continue on faith that it will, it usually does.

I think everyone else answered the other questions, but if I missed something, please ask!!

lynbrez I totally know where you are coming from. I bought a blood pressure cuff machine and then I was afraid it was faulty so I bought a wrist b/p gizmo. I even bought a finger pulse and oxygen meter.

I have a chart that is for months of my b/p, pulse and oxygen. I get in the doctor's office and it is sky high. With my printout they now believe me that it is lyme induced and a lot of white coat syndrome.

If they offer you antidepressants, it is not that bad. I asked if I could have the "take as needed" kind and not the type that you had to take daily no matter what.

I think I took them for a couple of weeks until I finally calmed down. Anxiety is a lyme symptom so don't be alarmed. Now that does not mean be lackadaisical. Still be in charge of your health, just monitor it and you will see a pattern.

There are still times where I have absolutely no stress, I am completely relaxed and all of a sudden my heart rate will be 105 and pounding like it wants to get out of my chest. I'm not as scared as I used to be and it lasts for awhile and goes away. When I would stress about it, it lasted a long time.

I also researched and decided to take some herbs to help my heart. Motherwort for calming and Hawthorn for blood pressure. Don't go and read the bottle and take what they say!! Start with 1 drop and see what happens. Stay with 1 drop for a couple of days. Monitor your heart. Then go to 2 drops a day. Do this with only one herb at a time because you don't want to have to guess which herb is not working.

Just a suggestion.

I never had a palpitation or pain before treatment in November A few days after I started antibiotics I started having chest pressure and a feeling like my heart in beating throughout my body shoulder and arm pain (left side) so of course I thought it was my heart. Ugh hate this!!

Going to talk to my doctor in the morning and will mention the herbs. Thank you

lynbrez said...
So crazy! It makes me question sometimes if Lyme is what I have..especially when I feel so awful. What are your symptoms?

I know...it's hard to accept it without 100% proof. I am naturally one of those people that question everything. My symptoms are mostly neuro - numbness, internal vibrations, tinnitus. A bunch of other small things that don't bother me as much as those.

I used to have a ton of palps but haven't had any since taking Hawthorne (knock on wood!).

I would suggest that you talk to your doctor about anti-anxiety meds as PeteZa suggested. Worrying like this won't change a thing, but what it will do is add stress to your life and Lyme just LOVES stress because it lowers our immune function even more.

What you described in your above post is very, very common for Lyme disease. If all of our symptoms came on all at once, it would really scare us bad. But this shows the progression of the infection. When you started treatments, you started herxing, which brought out even more symptoms - again, quite common for Lyme.

Agreed that this sucks - I got reinfected, so I can REALLY sympathize - but that won't keep me down because I'm going to kick some little Bart butts anyway!! And then I will get my life back yet again. They are NOT going to keep me down - I will win!! LOL!

Traveler thats ok...I totally understand... I have a four and two year old I'm trying to keep up with.
I am really nervous about drinking that tea again...the heart palpitations really freak me out! I can deal with tingling/numbness eye floaters, but chest discomfort heart palpitations and feeling anxious is just really starting to get to me. As you read I took myself to er because I couldn't take it anymore and my blood pressure, blood work and chest X-ray were normal.
Just very sad:(

Thank you for all of the information you share.

Thank you Annette.

I am so very thankful that I found this forum. I have no choice but to stay busy I have a four and two year old that depend on me. They are in preschool for a few hours in the morning.
I can deal with all of the neuro symptoms...its the chest and heart that totally freak me out. Do you experience any chest/heart issues?

I DID. I am almost completely healed now. I had 3 weeks in a row of absolutely no symptoms. Then I let myself get in a stressful situation and of all things, I got a back ache. I thought it was a pulled muscle. But one night it went from a 10 on the pain scale to a 0 in seconds. That is lyme right there!

Now I stay as stress free as I can. I want to be 100%. This back issue just showed me that something is still there, so I added to my treatment.

My heart was the scariest for me. My Dad died of a heart attack at age 36 so I have history in my family. When my blood pressure and heart rate were sky rocketing, I was scared. Like I said, Motherwort and Hawthorn were my go to herbs for the heart problems.

My heart beat was heard in my head all day long. Annoying as all get out and my ears were plugged feeling. I was not a happy camper. Tired was not the word for it. I slept for a couple of weeks. I would sleep all 10 hours at night and wake up ready to take a nap. But I have always turned to sleep when I am ill.

I feel for you with the toddlers. I was a Nanny after I retired from my job-job. I then got to do what I wanted and I love kids. I have a 10 and a 6 year old that just called me last night. They call me Grandma Net and I got the 6 year old when she was 3 days old. They are just as much my grands as my blood grands are. I loved being a nanny until the babe started pre-K, because I did not have to do anything but be with the kids. No problems or other jobs, just be with the kids. More fun than being a mother and juggling everything.

Annette, That is terrific you are almost healed:)What would the doctor say about your heart? How long were you sick for before treatment and how long were you treated before you felt somewhat better? Did you feel WAY worse for a while? When did things calm for you? Did you take antibiotics?
Did your doctor put you on motherwort and hawthorn, or is this something you just started to take on your own? I feel like I'm taking so much it makes me nervous.
Did you get brain fogged? thats another horrible symptom I get..I feel so disconnected.

I know I will beat this, but didn't think it would be like this getting there.

Did I get brain fog? Oh boy..... I could not get out a sentence. I had to make a grocery list. I still make "to do" lists. I am a part time clerk for the fire department and bookkeeping is my job. I had to do everything twice and three times to make sure I did it right. Very humbling was the brain fog. I was no longer superwoman. Hard for me to accept this. I had to learn to be gentle with myself. Forgive myself for mistakes and not also be so sharp, witty and full of answers. I think this was a good lesson. Humble is nice and I like this part of coming out of lyme on the other side. Sounds weird, huh?

I did antibiotics. I was diagnosed with a sinus infection. Took a Z-pac. Then I read this:Zithromax (Z-Pak) is an antibiotic that treats a number of infections. The drug is linked to an increased risk of fatal heart problems. Zithromax (azithromycin) is an antibiotic used to treat bacterial infections such as bronchitis, pneumonia, and infections of the ears, lungs and other organs.

about this time my blood pressure and racing heart beat started. I did not know this about the Z-Pac at the time. I think it was 4 months later I read this.

Then I went to an LLMD and he put me on Ceftin and Biaxin. I took those for a month and went back to him and HE ASKED ME what do you want to do? I was so foggy, new to this and absolutely no knowledge whatsoever about lyme. I began my research. 1 month of antibiotics and no change did not sit well in my little comfortable world. 2 antibiotics should have killed whatever and I should have been done with it. That was my thinking. Boy did I learn different. I picked another LLMD and asked him is there were herbs I could try and he put me on Beyond Balance. It was a slow, journey but I started to feel better. I finished a couple of bottles of those Beyond Balance and asked him "now what?" He said he would have to call the company and ask them. I was tired of paying lots for a doctor that didn't know. I had been reading everything and found this forum. I just clicked with cd of this forum and she was doing Buhner herbs. She was so very encouraging and uplifting and she believed I could do this on my own. Her faith in my abilities (someone who had never met me) just lifted my spirits and made me feel empowered. I began to do Buhner herbs. I made a lot of mistakes, did things the wrong way, and probably still am. But I am getting well. I am so very close but I have to be careful. Too much of anything can tip the scales. It is hard for me to feel this well and not do everything. That is the patience I continually have to acknowledge I need.

You will get there. Patience!!!! Be gentle with yourself. Give yourself permission to not be perfect or superwoman. One day at a time and each day do good for your body.

One more important thing. Learn to say NO! This was another hard one. I just could not go and do like I used to. I had to learn that my health meant more than their feelings.

Hugs of comfort. It is overwhelming and some day you will type this to someone who needs help.

<3

You are so very welcome.

By the way, my heart tested normal too. It is just lyme, but nothing you should ignore or listen to me on a forum. Always talk to your doctor.