Mepron - Side Effect, Herx, or MCAD?????

Hi KatieB!-

I am so sorry to hear that you are suffering so much. (((Hugs!)))

I consumed 6 bottles of Mepron (each bottle 600 ML) from February 1,2016 through May 2016. The whole time I was on Mepron, I suffered from severe depression. The type of depression where you literally feel like you lost your soul. I felt so empty inside and very suicidal. Not even the love and support of my husband could help me. I cried so much, and there were days that I was too sad to cry.

When I found out that I was positive for Lyme; my doctor had me start Doxycycline, it was like a bomb of What the Hell is this went off in my body. I had severe chronic fatigue. The type where you have to debate in your head"How bad you have to go to the bathroom." Because this means that you have to use your nonexistent energy to get out of bed. This is also when I started to stutter and the last time that I was able to drive my car. My brain wasn't functioning at all. I had times of repeating the same word out loud over and over again. I was unable to stop.

I stuttered daily on every word. The losing my ability to talk would happen once a month. It never mattered what type of Antibiotic combination I was on. It would last 2 to 8 days in a row , where I couldn't form a word. I could get sounds out example: "muh", "uh", and hum to music, just couldn't form words.

I have read that the Lyme bacteria come into your bloodstream every 4 to 6 weeks. So this could be the reason why once a month I would lose my ability to talk.

I went 1 year of stuttering daily; except the days that I couldn't talk. This got better May 2016, when I started to increase A-Inflam. A-Inflam is to get the inflammation down in your body. I now talk normal and don't stutter at all! I have read other people's posts and some are taking Japanese Knotweed for inflammation. You might want to look further into taking something for inflammation, if you are not already doing so.

I can relate to a lot of your symptoms. I have dealt with these also through treatment.

June 2016, I stopped all Antibiotic treatment due to severe symptoms. I feel like my body doesn't properly detox. I don't know if it's from my gene mutation (MTHFR Homozygous a1298c), or if something else like metals, mold, parasites, or the fact that I was misdiagnosed for 27 years. Something is in the way of me healing from Lyme , Babesia, Bartonella, and Candida.

In June, I started Byron White: Detox1. This is a herbal formula. I am taking 10 drops a day.

July 2016, I started Byron White: A-P. This is for parasites. I noticed the end of July, after my daily sauna, my sweat smelled terrible!! My husband said that I smelled like an old moldy, wet shoe. A couple of days later, I had to get out of the sauna before my time was done, because my sweat smelled like a bunch of cats urinated all over in my sauna. The smell of Ammonia was so strong that my eyes and nose were watering and burning!! I had to stop the sauna because all I was doing is re-inhaling the Ammonia.

So, to this day, I am still Not taking antibiotics. I still take A-BAB; Byron White formula for Babesia, still stuck at 6 drops total a day. A-INFLAM , for inflammation 40 drops a day. Detox1, 10 drops a day. A-P 40 drops a day. Detox 2, going to start soon. Supplements, vitamins, thyroid medication, Nystatin, and Diflucan (Fluconazole).

My next step is to start Detox2. I am also looking into the pharmaceutical protocol for parasites.

Here is a link to a thread about the latest findings on parasites: www.healingwell.com/community/default.aspx?f=30&m=3675849
I found the article very interesting!

Are you doing anything for detox? A lot of people here, including myself, detox daily and use multiple ways. There is a lot of great ideas about detoxing in the "New to Lyme?....Start Here!" thread located at the top of this forum. Here is another great link: www.tiredoflyme.com/detox-methods.html

Personally, I still detox daily and use multiple ways, even though it doesn't seem to help with my symptoms, I still keep trying!!

Ha ha ha! My "Alzheimer's" symptoms are horrible lately. It took me 5 hours to write this response down on paper and then to post it here. So please forgive me if I didn't answer your question. Please feel free to ask more if I can help you.

You might want to consider backing down the dose of Mepron, to give your body a break and then in a couple of days, try to increase it again. I had to decrease Mepron a couple of times. Please look into more ways of detoxing. This could also be helpful for you. You might want to also call your LLMD and let them know about your symptoms since starting Mepron.

Lyme disease is a giant puzzle. I am missing pieces of my puzzle, but still searching for answers!

Best Wishes!

Hi KatieB!-
WOW!!!! You have really done your research!! :)

For me personally, I feel liike all that the Mepron did was make me feel worse. I would agree with what you said, " did it just make you suicidial and symptomatic and not improve the babesia symptoms." It is so hard to know what symptoms are from Lyme, Bartonella, Babesia, and Candida. The severe sweating for no reason and air hunger were the two major symptoms for me to know that I have Babesia.

Regarding sauna: Yes, Ihave a sauna in my house. It is a 2 person Far Infarared sauna. my husband bought it from Amazon. It cost around $1,100. I have been using it for a year now and try very hard to use it everyday. It wasn't until July 2016 tht my sweat smelled very bad. Yes, I would have to agree with you that something (toxins) are starting to get out of my body. If you decide to get a sauna, please remember to start out slowly in the begining. It took me a while to get up to 140 degree Fahrenheit for 50 minutes.

Ha ha ha!, No , I haven't heard of chronic inflammatory response syndrome, but I am 100% sure that I have it! Is it the same as a Cytokine Cascade? No, I haven't been tested for Mold Allegies. I was supposed to get tested for mold several months ago, but the lab that I go to was confused about the tests and it sounded like it was going to cost a lot of money. Thank you so much for the website. It sounds interesting. I will definetaly take a look at it! I think that I do have a mold issue because of my stinky sweat. The A-P (for parasites) formula is also for mold and Candida.

Yes, I have read other peoples posts and have learned about Ammonia in the brain. I would agree with you on this also. I have read that ammonia is the reason for brain fog. No, I haven't tried Dr. Jernigan's Neuro Antitox. The Detox1 that I am taking now, and Detox2 are supposed to be good for Neurotoxins also. I will be starting Detox2 soon. Do you use Dr. J's Neuro Antitox? Does it help with your symptoms?

No, I didn't do the 23 and me test. I could kick myself. I wish that I would have spent the money on that instead of just testing fot MTHFR through my local lab. I personally think that I have other mutations that could be the reason why medications never work for me. I am also taking Liposomal Glutathione. I have been for quite some time. It never seemed to do anything for me. And yet, I keep taking it. Now I wonder if I have CBS mutations? ..... hum?

Ha ha ha! I am so sorry that you also have the "mthr****er" mutation. :( thank you for the information about Dr. Amy Yasko. I have looked at her website in the past.There have been posts from other people here that have talked about her protocol. If I remember correctly, isn't her protocol kinda expensive?

Thank you for the great information about Zinc. My LLMD wanted me to start this. I just haven't bought any yet. I was also informed through a friend about taking minerals to help support my body. I haven't bought those either. Ugh! I am on sooo much stuff. My day is consumed with medications, herbs, vitamins, supplements, and detoxing. Pretty much every waking hour of the day, I am taking something. Or a couple of things within the hour.

Ha ha ha! Yes!, I have thyroid issues, I am sure that there are times my adrenals are low. They were already low when I was tested in my late teen years. Hormones!, Yes! I have had menstration issues for a long time. Although, I think I might be on track right now. Ha ha ha! Yes! Like you said, "it's like it never ends!" I 100% agree with you!!! :)

Never appoligize for too much information. This is how we all figure out what to look into or try next. I am happy that you are researching for yourself! This will help you to know what questions to ask your LLMD or what tests to possibly have done next. You are your best advocate!!! Although it sucks to be so sick and it is still up to you to find the answers.

I also have pressure in my head daily. It used to be a lot worse. I think that the A-Inflam helped with relieving most of the pressure, but still quite a bit in there. It used to feel like my brain was pushing on my skull.

Well, since I have stopped antibiotics, it is hard to say what is going on. I still have a lot of daily symptoms. And everyday is different. Example: yesterday, stabbing pain in left hip and right wrist, very forgetful, pressure in head, headache, sore stiff neck, "Alzheimer's" symptoms flaring (lack of concentration, focus, can't find words, mispelling words, asking my husband same question over and over again), not sure if I am awake when I am, clicking noise in left ear, right ear feels plugged yet sensitive to noise, right knee gave out, heart pounding harder, fatigue, black outs, and feel like the walking dead. It is like my brain is jello!!

The only symptom that I have been able to completely eliminate is the stuttering and losing my ability to talk. This happened May 2016. My symptoms are all over the place. they have been since I started treatment. Every system of my body has been affected since treatment.

My major complaints for daily function. Ha haha! This is the million dollar question! :) I just take it one day at a time. Sometimes my symptoms change by the minute. Every day is different. I don't know what symptoms will rear their ugly head for the day.

Best Wishes!