NPR story on Chronic Lyme

I had to put my 2 cents in. Had to...

I got off of Facebook. So I won't open the link The aggravation it caused was not worth the info I got. My peace of mind has been greatly improved.

However, I am always shocked in this day and age that smart people can denigrate Lyme. It's beyond me that RA doctors and ID specialist cant see beyond the framework they have learned in.

My cousin works at the Harvard clinic. I thought I'd ask if she knew what they were doing for Lyme. I got a letter from her ID friend basically telling me if after three months of antibiotics you are not well, You're stuck. Go to an RA for the symptoms. no thank you!! Ive been to an RA doc. He doesn't believe in Lyme disease.

Yeah, I know Purple Tulip, I completely understand.

Some stellar institutions, like Yale, have not only held us back in these arenas of these diseases but they have worked hard at minimizing the disease complexes and really been very derogatory towards suffering patients. The thing about these diseases is that they force us to completely reevaluate how we manage and treat patients, it's a new paradigm. Much like hiv/aids forced a new paradigm of treatment and thinking back in the 80s. Dr Jemsek has some very interesting things to say about that in this interview: http://www.publichealthalert.org/joseph-jemsek-md-the-power-of-truth.html

Places like UCSF, Columbia, Johns Hopkins seem to be working in the right direction. But it's all very piece meal, we really need greater investment in research and testing which would allow for better treatment and recognition of these stealth pathogens.

But like gfields mentions, it's good that there are hits on these articles, it means there is greater awareness. I truly believe we will reach an inflection point, and we as a society will start tackling these diseases and investing resources to helping people.