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lynbrez - I'm the opposite...for a very long time my symptoms would flare from 4 or 5:00 until about 9:00.

I think I was scared for over a year...seriously. Scared, sad, anxious....
I cried every single day for at least a year...

Just know that it does get better...with treatment and time.

Hang in there!

You might want to share the following link with hubby so he can understand why you're dealing with all these symptoms:

www.benbrew.com/lb/lyme5.pdf

And I hope you'll consider continuing to expand your detoxing protocol and follow it daily. It's your only hope of getting ahead of the toxins and reducing your symptoms.

Please understand that improvements are not going to happen overnight. Your body has been accumulating toxins the entire time you've been sick and continues to accumulate them. Treatment adds significantly to the toxin load because bugs are being killed and it's the dead bug parts that are toxic.

There are many, many detoxing methods that are as simple as popping a pill or taking a few drops of a tincture.

You'll get there.

Sleep ahhh....I only had two hours last night...we had a large storm come through around 11 and it woke me up...then I felt so awful couldn't get to sleep.

Can I take Benadryl with antibiotics? I have children's benadryl.

Yes, you can take Benadryl while you are taking abx.

With the issues you are still having, then no, that's still not enough detoxing. Besides, you forgot the oil pulling you are now doing!

Since you are up so much, have you had your adrenals checked? That would also give you plenty of time to get in a dose of some type of binder - activated charcoal or a nutritional clay or something like that. They are very effective at removing the toxins from the blood stream.

I'm going to make a new thread discussing detoxing more. I'll be back to post a link, I think you would benefit from the ensuing conversation that I'm sure will happen.

lynbrez said...
Sleep ahhh....I only had two hours last night...we had a large storm come through around 11 and it woke me up...then I felt so awful couldn't get to sleep.

Can I take Benadryl with antibiotics? I have children's benadryl.

I took children's because I am so sensitive and it worked great for me. You might need to take more. Just see what your body says.

They do make adult pills. LOL!!

Cold water won't help adrenal glands that are testing very low though - that takes some type of medication to help ease the burden of the adrenals since they are stuck in the "fight or flight" stage.

There are all types of things that can help sluggish adrenals though, including the cold water, and many adaptogenic herbs.

But, please take the 5HTP at night. You're body is really struggling right now and needs the support - that's why you are feeling so badly. The things that your doctor is giving you and we are telling you is how you rebuild your body so that you no longer need these things all the time. It's a long process for sure, but it can be done - I've done it once and I'm doing it again since I got reinfected!

With the experience that I had personally the first time around, and what I've watched others go through, here is what I believe needs to happen for many of us to heal:

a)Detoxing - gene mutations, mold exposure and multiple tick-borne infections can all prevent us from detoxing well, but we must be able to get those toxins out of our bodies. I think we've gone over this pretty thoroughly with you already, but I also have just started a thread I hope will help several newer members: www.healingwell.com/community/default.aspx?f=30&m=3591727

b)Supporting the body functions/systems. We have to have the body working at it's peak performance to heal from something as devastating as these infections. Supporting any gland, organ, body system that is struggling will allow the body to switch it's 'concentration' from just trying to function over to healing.

c) Raise the immune function. Many legitimate Lyme researchers now believe that it's the lowered immune function that determines who gets chronic Lyme and who heals right away. We already know that Lyme lowers the immune function and when a person has Bartonella and/or Babesia, the immune function is further compromised, so to heal we must raise our immune function.

d) Lastly, oddly enough, are anti-infective treatments. Many of us have experienced treatment failures​ or set backs​, so we can see that the treatments aren't the only thing we need to have - there has to be more to the equation, but anti-infective treatments are very important!! Lyme bacteria are one of the most complicated bacteria! ​Although it takes only hours or days for most bacteria to replicate, Lyme bacteria only replicates in the body every few weeks.​

Traveler that's why I'm on a very low dose of hydrocortisone. My doctor thinks my adrenal glands need to rest while in treatment.

I'm exhausted and can't wait for my husband to get home so I can get to bed early and hopefully sleep through the night.

What does the 5htp do Traveler...I'm afraid anything I take will make my heart race.

Yes I take both...do they both do the same thing? I see my doctor Wednesday and have a book to go over with him(lots of questions).

So the 5htp is kinda like an antidepressant?

If you are taking low dose hydrocortisone, then yes, they are both for the same thing. If you are on higher doses of hydrocortisone, then it will impede your healing. Steroids should never be used by Lyme patients unless it's truly a life threatening situation and steroids are the only option.

Desiccated adrenal supplements don't work for everyone either. And being on both it would be hard to figure out which one works for you.

"I wake up like clock work at 330 and feel crappy..."
That definitely sounds like it's due to the adrenals. I used to do that as well. I used to only sleep 3 hours a night, and even then I was only dozing as I heard every single sound in the house.

Healing adrenals takes a long time, so you have to adjust whatever you have to adjust to make it through. If you ever feel like you could lay down and rest (not sleep even, just rest), then you need to do so. I got to where I could lay perfectly still, completely relaxed for 20 minutes with my eyes closed. This was enough to provide a bit of a pick me up for a couple of hours. Now that I sleep approx. 7 hours a night, I'm not needing to do that so much - unless I've had a busy few days.

No, while serotonin does play a part in depression, it does sooo much more! www.medicalnewstoday.com/articles/232248.php#what_does_serotonin_do

Do your best to get all the answers you can from your doc - it will at least let you know what direction he is trying to take you. We can help you determine if it's a direction that will likely lead to your healing. So I would encourage you to ask why he has you on both hydrocortisone and desiccated adrenal products.

Your doc obviously prefers 5HTP over tryptophan, but it's what works for you. Tryptophan doesn't work for everyone either, just so there's no misunderstanding. He's telling you to take it though to help with your sleep.

Remember, right now your body likely needs a lot of support, it will take back over as you heal though and you will then be able to reduce your dosages and then reduce the number of things you take as well. But you have to support the body functions so that they can help the body heal.

Did you see all of the other supplements I take in the thread above? Curious what ya think? Or if you would add something?

Yes it's and probiotic made by ortho molecular products and my multivitamin has b6 and b12 b1 and b2...

How much are in your multi?

What do the b's do besides energy?