New Here

Hello everybody,

I'm new to the forum but have lurked occasionally over the past couple years. I've been sick for around 3 to 4 years. I was diagnosed with lyme disease (Igenex) 2 years ago. I've tried multiple treatment protocols, and am currently looking for help.

Obviously by now I understand there isn't a silver bullet, and I understand that many people report varying levels of success with different protocols. I'm interested in potentially finding a new MD, or at least starting a new protocol. I live in Salt Lake City, Utah, but I have the means to travel.

Initially I underwent 6 months of IV therapy including multiple antibiotics (primarily Doxycycline), supported with IV vitamins, chelation, and a number of other treatments. I have since consumed all of the following for a minimum of 3 months: Doxycycline, Tetracycline, Mepron, Clarithromycin, Sulfamethoxazole, Fluconazole, Nystatin. I have also consumed an ungodly amount of supplements / natural substances that I do not have the willpower to document.

After 2 years and multiple protocols I can honestly say I'm no healthier than when I started.

I'm not exactly sure what role this forum can play in my recovery, however I'm hoping to open up a dialogue with people who have experience with lyme disease. In the next couple of months I plan on starting and committing to a new protocol, and I am trying to do my homework beforehand.

Any kind of anecdotes or opinions are welcome. Feel free to ask me any questions. If there are already established threads with information regarding new and or proven treatments I am most certainly interested.

Thanks in advance,

CJ

Thanks, will do!

Welcome and I am so sorry you have lyme. I wish there was a silver bullet, I would be the first in line! I want this stinker out of me and now.

One thing I do know is that there are a lot of loving people on here and there are tons of different protocols to try. I just went with my gut in the one I am trying now. I don't even know how otherspicked their protocol. I think I picked based on what I thought (me of very little brain, especially brain fog) made sense at the time.

Who knows..... I will give this one a shot and maybe HAVE TO try another. It is a carp shoot, that's for sure.

I'm staying positive and praying. Praying not just for me but for everyone here. Because everyone here brings hope to the rest of us.

Welcome CJB

Sorry for the reason you're here but glad you found us.

And, I'm really sorry you're not feeling any better. You've had extensive treatment but one thing I'm not seeing is mention of any detoxing.

Did your LLMD talk to you about that at all? It's a vital part of healing.

You see, our symptoms are caused by the toxins released by the bugs:

www.benbrew.com/lb/lyme5.pdf

And, as we go through treatments, more toxins are created ala the dead bug parts. If we don't do things to get those toxins out, they can be reabsorbed by the body and make symptoms worse.

An effective daily detoxing protocol that consists of multiple methods that address the various body detoxification systems will help immensely. The site I'm linking below has quite the comprehensive list of detoxing methods:

www.tiredoflyme.com/detox-methods.html

Based upon the fact that you took Mepron, I'm thinking you were diagnosed with Babesia. Unfortunately, researchers have discovered that some Babesia strains are resistant to Mepron and LLMD's usually incorporate other anti-parasitic treatments for that particular infection. Herbs can be very effective in situations such as these.

Would you mind sharing just what infections you've been treated for? It's possible that you have an asymptomatic infection that is impeding your healing.

And, if you are so inclined, a list of your symptoms might prove useful...

We are committed to helping you as much as we can and knowing the answers to these questions will help us help you.