I don't know what to do...

I'm still waiting on Lyme results but I'm having major issues sleeping.

I took 2 benadryl at the advice of a sleep study doctor today. Have not slept in 3 days. Tonight will be 4th night. I'm not imagining this, but the hospital thinks it's anxiety and so does sleep doctor. I already have confirmed sleep apnea on my back and mind on my side from 2 years ago.

I keep getting a throat obstruction as soon as I start to dose no matter what position I am in. Lying down, sitting straight up. You name it. Once this obstruction happens it's like breathing through a tiny straw you mix drinks with. I went to hospital 2 times. They did a catscan with contrast and claim they see nothing. I really feel if I do eventually fall asleep it will be for good but none of these people believe me.

What can I do?? My fasiculations are not that bad anymore but this is driving me crazy!!

Yes I am but he i far away. He talked to the hospital last night. I only saw the guy 1 time. I feel like I am going to die and the hospitals think I am crazy. I would sleep if I could but I just cannot do it without waking almost immediately gasping for air.

jack - have you tried sleeping during the day? maybe not in the bedroom...but on a couch in front of a t.v.?

I know it's not ideal to sleep during the day...but at this point...whenever/wherever you can get it is helpful.

Can you not get your Dr. to get you into one of those overnight sleep studies that are done at a hospital?

Jack,
I know exactly what you are feeling. After going on abx in Dec for what they thought was a respiratory infection I had a very simaler experience with mine starting as numbness and tingling all over and then muscle twitches.
X-rays CT scan breathing problems twitching like crazy ears hurting and then the breathing issues for me were very simaler I would wake up gasping and then I got so worried about falling asleep because I just knew it could be my last night my body was so exhausted that I thought I would just stop breathing and everything was resonating through my ears so I could not sleep even when trying every possible position.
Every doc thought it was stress and anxiety and said I looked to good to be sick and my labs were all normal so they said I was just not used to being sick and my body must be fighting a bad virus. 72 hrs I went with no sleep and the third er visit they gave me a lorazapam pill to take to help me sleep which did help me sleep that night but it took many more visits and tests before figuring it out.

I am so sorry you are experiencing this my heart goes out to you but this does sound exactly like mine Andi am pretty sure it was the abx that brought it out so fierce in me. I literally had to sleep during the day so my wife could check on me I was that physically exhausted that I was sure I would stop breathing. Bless her heart!!

Thinking about you and hoping you get one good night's sleep in so that you can hit the reset button and start on the road to recovery. Epsom salts baths and magnesium supplement really helped me to get my body to calm down.

Hi,

Yes, I agree with the Melatonin. I take 1mg Melatonin every night about 30 minutes before I get in the bed. If I didn't take that I don't think I would be able to sleep at all. I take the KAL Melatonin 1mg or you can get a 1/2 dose lower with Pure Encapsulations 0.5 mg. I'm very sensitive to ingredients and the KAL Melatonin doesn't bother me. It's a very tiny pill, so it goes down really easy. The Epsom salt baths would probably help also. I've noticed that everybody has different symptoms with Lymes Disease. I have this persistent aching, sharp pains at times in my abdomen, but after several tests, no one knows what's causing it. You can't always assume it's Lymes. Sometimes the Lymes Disease can cause something else that needs a different type of treatment. It's just like if I have an Ulcer, I have to be treated for an Ulcer, the Lymes is probably what caused it, but it's a different illness.