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Posted 4/16/2016 11:19 AM (GMT 0)
I have used this site for anxiety and fibromyalgia and now here I am reading the lyme blogs. My story is I have had lyme twice, one in 1990 and again in 2014. However I have been sick since 2010 with one strange symptom after another. The list of some of these are confusion, dizziness, feeling faint, vision problems like floaters, jaw pain, nausea, muscle and joint pain, mostly shoulders and neck. Cold hands and feet, chills, severe anxiety and I could go on and on. I was told I have fibro last year but just saw a lyme specialist and now on two antibiotics and 5 supplements to try and detox and feel better. I have been through hell and back with so many doctors and hope this is finally the right road. It is so hard to keep going and put on a happy face when you feel so horrible. I am reading a lot of great advice on here and hope it helps me.
Posted 4/16/2016 1:28 PM (GMT 0)
Welcome to the Lyme forum!

So sorry you found the need to join us but glad you're working with a lyme specialist.

Have you had your thyroid checked at any time? An out-of-whack thyroid can also cause the issues you have and Lyme is famous for messing with the thyroid.

The right tests to evaluate thyroid function are the Free T4 (T4 or thyroxine, free, direct) and Free T3 (tri-iodothyronine, free, serum).

Healthy people have certain types of Free T4/T3 levels - not just any level within the normal range. If you post your thyroid results here, I'll show you how to interpret them. (I'm an almost 10-yr thyroid patient who had to educate herself to get the proper care....thyroid mismanagement is rampant).

And, while I'm happy to hear you're taking some supplements to help with detox, it's really good to incorporate more detoxing methods. You see, our symptoms are caused by the inflammation the bugs cause and the inflammation worsens significantly during treatment (ala dead bug parts).

The more you can do to get those toxins out, the better you will feel.

Here's a link to a site that explains why we need to detox and also shares quite the comprehensive list of detoxing methods:

www.tiredoflyme.com/detox-methods.html

And, here's a link to a recent thread wherein members shared what they are doing for detoxing:

www.healingwell.com/community/default.aspx?f=30&m=3602759

As you can see, I've done over 20 things for detoxing....and I can tell you that using all of those methods took no more than 5-10 minutes out of my day.

Hope you feel better soon!!
Posted 4/16/2016 3:56 PM (GMT 0)
It is hard to smile when you hurt inside. It is also hard for others to understand how you can "look normal" and be so sick.

I think it makes us tougher but more compassionate. I take care of me a lot better now. I put what is best for my health above a lot of things.

I also now look at people and wonder if they are dealing with an unseen owie.

I am happy you found a lyme doctor and are in treatment. Treatment has its ups and downs and for a lyme patient, there is always a new symptom popping up.

The saying is my house was "is it lyme or memorex?" I would get a twinge, pain or stabbing and wonder is this something I should be concerned about? Or is this just lyme moving through my body?

Being able to come here and ask "have you felt this______?" Was such a relief to find that I was not alone and it was more than likely just another lyme symptom. Being able to come here and ask "did this herb make you jittery?" I do not know how I would have made it without this place.

Feel free to ask anything. I sure did. And welcome once again.
Posted 4/16/2016 9:00 PM (GMT 0)
Thank you for the replies, I will read and ask as many questions to educate myself. I hope that I am finally on the right road to getting healthy again. I'm a single mom and it takes a lot of energy to raise a little girl. She just wants me to feel better so I can do more with her, it breaks my heart to have to say mommy isn't feeling good and I cant do that today.
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