HealingWell
Search Close Search
☰

Looking for LLMD in PA

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/1/2016 12:53 PM (GMT 0)
Hi. New here. Does anyone know where I can find a really good LLMD? Needs to understand hormones as well.

Thanks

Post Edited By Moderator (cd3764) : 5/1/2016 6:57:25 AM (GMT-6)

Posted 5/1/2016 12:56 PM (GMT 0)
Sorry...I'm in PA.
Posted 5/1/2016 1:00 PM (GMT 0)
Welcome Krimpet,

Sorry for the reason you're here but glad you found us.

I edited your thread only to put a subject on it. Our forum can get very busy and threads with subjects usually get more attention.

And, you'll need to enable your email option so members can contact you directly with recommendations. We don't allow posting of doctor contact info in the forum for privacy reasons.

To enable:

Click on "My profile"
Click on "Edit profile"
In the optional information section, be sure "Show my Email address" is checked off
At the bottom of that page, click on "Submit"

Have you been diagnosed with Lyme or are you suspicious that you have it?
Posted 5/1/2016 1:14 PM (GMT 0)
My doctor did the initial test that showed extremely high EBV titers, very low CD57, and very high Ca4. I tested positive on 2 bands (41 and 56 ( I think). He said it appeared that I have Lyme. However based on my symptoms I went to another doctor who did muscle testing and he said I did w/ several co-infections. They both said that based on my clinical symptoms, testing thus far (which are predominately Neuro) and the muscle testing, I could save money by just treating and not testing.
Posted 5/1/2016 1:17 PM (GMT 0)
From the muscle testing it appears that I have babs, Bart, and HHV-6.
Posted 5/1/2016 1:24 PM (GMT 0)
The first doctor told me to take biotin and Coillidal silver. I actually started taking cat's claw before I got the test results back. I'm also taking turmeric (an orange refrigerated gel), and a hosts of vitamins and pinella.

I'm also hypothyroid due to RAI. Based on my research I know that Lyme can effect everything (neurotransmitters, gut), etc. I really think that when I was diagnosed with SIBO last year it was really the beginning of Lyme. The antibiotics for SIBO didn't do anything for me other than get rid of all my good Lacto bacteria. I can't tell you how many breath tests I did for that.
Posted 5/1/2016 2:01 PM (GMT 0)
Thanks for sharing some of your story!

It sounds like the doctors you saw are more Lyme and Co's savvy than most. Testing is expensive and quite unreliable (there are more strains of these bugs than tests available).

As an almost 10-yr fellow thyroid patient, I offer any assistance you might want with thyroid lab test interpretation. I know that the suppressed TSH I have as a Graves' patient confused more doctors than not and it's only been since 2009 that I found a doctor who knows to ignore my TSH and prescribe adequate doses of thyroid hormone replacement (with my prodding ;)

And, I do have some LLMD locator resources I can share if you are interested. Not all LLMD's are created alike and I'm inclined to think personal recommendations are more helpful.

We will gladly help you throughout your journey with these infections. Just keep posting ;)
Posted 5/1/2016 2:12 PM (GMT 0)
Thank you. I am also wondering if anyone has tried any homeopathic formulas and/or ozone therapies, Myers cocktails. You seem to have an excellent LLMD. I guess I'm just more partial to herbs rather than antibiotics. Though I see you've done both.

Yes the thyroid is a whole other world. I believe that due to all these infections and co-infections, my thyroid medication is probably not being fully absorbed. It's funny before I really began having symptoms of Lyme, I was taking much less medication. Oh well...

I do know that some docs are doing skype as well.
Posted 5/1/2016 2:30 PM (GMT 0)
I forgot to add that the second dr also took blood and did the dark field microscope. So again for me more proof of Lyme. He did offer to do paper tests.
Posted 5/1/2016 2:41 PM (GMT 0)
Has the doctor come up with a game plan for treatment?

And I have seen in this community that thyroid can change with treatment, so you will need to keep testing that regularly.

I like the sounds of your doctors Krimpet. I like alternative approaches.
Posted 5/1/2016 2:51 PM (GMT 0)
Actually, I don't consider my LLMD excellent at all - I think he dropped the ball with me by insisting I was only dealing with Lyme.....even after I herxed on coinfection-specific herbs. And, he is not at all well-versed about helpful supplements. This forum really filled in a lot of blanks for me.

My LLMD released me in October of last year since he felt there was nothing more he could do for me but he left the door open if I wanted to go back on abx (we both felt I wasn't a candidate since I am doing very well on herbs of which he has no knowledge).

20/20 hindsight tells me I should have insisted on doing herbs concurrently with abx and my journey might not have taken as long.

Then again, I look at how long it's taken for some members to eliminate those final symptoms after going off abx and I'm not far behind.

Yes, my thyroid levels took a big hit after I started treating Lyme. I was taking alternating doses of 125/137mcg T4 and 10mcg T3 when I got bit by the tick in July 2014. I'm now taking 162mcg T4 and 17.5mcg T3 and I weigh 135 lbs.

Still, if we need more hormone, we need more hormone. It's unrealistic to think that healing can happen with sub-par thyroid levels.

I'm with PeteZa about the sounds of your doctors. Hope you can find an even better one with help from the members here.
Posted 5/1/2016 2:53 PM (GMT 0)

Krimpet said...
Thank you. I am also wondering if anyone has tried any homeopathic formulas and/or ozone therapies, Myers cocktails.

You'll get more responses to this question if you create a separate thread on the topic...

Another option is to use the search feature that can be found by clicking "Search" among the 6 options listed in the solid blue line that runs just above our threads. Be sure to include "Lyme" in your search to isolate those searches to the Lyme forum.
Posted 5/1/2016 3:07 PM (GMT 0)
My doctor is testing me for mycotoxins, Marcons swab, adrenals, neurotransmitters, HPA profile, and some other things that I can't remember right now.

He wants to do ozone therapy, uvbi, Myers cocktail, glutathione, to assist with immune building and helping with my extreme fatigue. I'm supposed to do VRM2 for a parasite, monetary of herbs for EBV and the hsv vi, and a homeopathic blend for EBV, hsv vi, and the Lyme/ co-infections. I have been muscle tested on all but the latter which will occur shortly.

He also wants me to take LDN 3 ( but I'm going to start at 1.5).

He has me taking some things for my small intestine and gut health such as Restore, biocidin, probiotics, colostrum, digestive enzymes, fish oil, nanogreens, and HCL.
Posted 5/1/2016 3:20 PM (GMT 0)
Dare I ask why you're looking for a different doctor?

Your doctor seems phenomenally thorough and well-versed in the current modes of treatment.
Posted 5/1/2016 3:36 PM (GMT 0)
I guess it's more like a back-up. I just haven't seen a lot written on some of these approaches...so I really don't know what to expect. But I'm praying that his approach really has a positive effect.
Posted 5/1/2016 3:45 PM (GMT 0)
Cd...Why did you use the LDN and why did you stop?
Posted 5/1/2016 4:03 PM (GMT 0)

Krimpet said...
I guess it's more like a back-up. I just haven't seen a lot written on some of these approaches...so I really don't know what to expect. But I'm praying that his approach really has a positive effect.

Well, I can't say I've heard of ALL the approaches being recommended but I'm familiar with many of them.

Because every...single....case is entirely different from another, we are basically all guinea pigs.

We try treatments that have worked for others and hope they work for us. If they don't, it's on to the next thing.

Keeping a journal can really help.
Posted 5/1/2016 4:07 PM (GMT 0)

Krimpet said...
Cd...Why did you use the LDN and why did you stop?

I'd become interested in LDN in my early days of Graves' Disease but had enough trouble finding a doctor to manage my thyroid that I didn't push for LDN back then.

Once I'd read it could help with Lyme, I decided to see if it made any difference with that as well as my thyroid....mostly from an immune modulating aspect.

I'm very fortunate that my Lyme symptoms have been relatively mild and I can't say LDN made a difference with that.....or my thyroid.

Since I was responding to Buhner's protocols more than anything and they also modulate the immune system, I opted to stop taking LDN and instead use that money for herbs.

It seems some people find LDN effective for pain which wasn't one of my symptoms except for a few seconds worth of a few herxes...
Posted 5/1/2016 4:21 PM (GMT 0)
Yes I don't have a lot of pain. Mine is neurological mainly. I know that it's in my brain because when I take the pinella it really helps clear things up.
✚ New Topic ✚ Reply