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Posted 5/6/2016 2:44 AM (GMT 0)
Hi,
So I am new here. Was just diagnosed two months ago with Lyme and possible babesia. My symptoms were mainly tachycardia, chest pain, headaches, fatigue, and feeling sore. I also had flushing, lightheadedness and diarrhea. Needless to say after seeing many doctors, I finally found a good one. I have POTS as well apparently.
We tried oral doxycycline but I kept puking. Tried some other oral ones but my symptoms got sooo much worse I could barely walk. I now have a picc line and am taking ceftriaxone daily along with glutathione. I am also taking mepron. I am still achy and my chest pain is worse but I have some good days and bad days. My heart rate is back to normal thanks to the midodrine. I'm just concerned that I'm still hurting and that my chest hurts. I don't want this picc forever. Does anyone have any suggestions? Thanks.
Posted 5/6/2016 2:53 AM (GMT 0)
Hi Catgalrn, welcome to our community!

So how long did you have symptoms prior to diagnosis and treatment?

Is it a LLMD you are seeing?

Are you doing amything for detoxing besides the glutathione?
You should be doing multiple methods of detoxing ...and daily .
Detoxing can help with the herx symptoms that happen as a result of the die off of bacteria.

Since you are new here, it would be helpful for you to take a look at the thread at the top of the page titled: "New to Lyme?...Start Here"
It's packed full of great information.
Posted 5/6/2016 4:22 AM (GMT 0)
Me too!
Posted 5/6/2016 5:30 AM (GMT 0)
I opted for a smart port in the chest, you can get better i have heard stories...how is the rocephin going.? .you may want to add herbs for babs we are here for you...do it all ..there are many modalities ...also a cyst buster like flaglyl or tinidazole or alinia or plaquinil may have to be brought in...are you a rn? And are you working with llmd? Are you open to alternative tx? I was a t a lyme clinic in next town over and asked if anyone ever graduates the nurse replied the ones that do bee venom in conjunction.

Post Edited (bluelyme) : 5/5/2016 11:44:34 PM (GMT-6)

Posted 5/6/2016 1:20 PM (GMT 0)
It is hard to say how long I have had symptoms before diagnosis because I also apparently have a mast cell activation disorder. I am seeing a llmd and he is awesome. Many of the symptoms of the mcad mimic Lyme. It also makes me allergic and sensitive to many foods and antibiotics and drugs.
So far the rocephin is going okay and I am tolerating the mepron. I can't do bee venom because I'm allergic to bees. I just can't take much more of this. I am thinking of switching to a port if he thinks I'm going to have to continue treatment for more than a month.
Posted 5/6/2016 2:04 PM (GMT 0)
I'm glad you have a great LLMD. That is most important.

You asked for suggestions and here is mine. You need a journal. Seem silly, right? I thought so too. But when I look back at how sick I was I can see improvement. That is what we all want is improvement. By writing down our symptoms we can better see when one all of a sudden is not on that list. Oh my gosh! it went away??? Honestly, my journal was more hope inspiring than anything.

I use my journal to keep track of the meds or herbs I have taken, all symptoms, how I feel mentally and physically and just about everything so I don't have to remember.

Oh and Welcome!! I'm so sorry you have lyme too. This stinks and you have a lot of complications. But, you will get better.

As for detox -- this is WHY and how -- www.tiredoflyme.com/detox-methods.html
Posted 5/6/2016 2:11 PM (GMT 0)
Welcome Cat, I am sorry to hear of yet another Lyme victi. You have come to the right place, I was just diagnosed in March and this forum has been such a Help! Denise K
Posted 5/6/2016 2:12 PM (GMT 0)
Yes the journal was a big help. You sometimes think things are not getting better and than look at it ad go ohh yeah I have not had that symptom in a while. It really helps to track progress.

You came to the right place for support though.
Posted 5/11/2016 11:17 PM (GMT 0)
Catgalrn I would love to talk with you about MCAD. My email is listed on my profile. Can you message me? Thanks.
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