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To the Canadians!
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Lyme Disease
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Asmoline
Regular Member
Joined : Feb 2016
Posts : 132
Posted 5/17/2016 10:29 PM (GMT 0)
Hello to all my fellow Canadians!
I was reading an atricle and I read this. "We think the numbers are much higher and it's alarming that the numbers are increasing continuously," said Dr. Gregory Taylor, the country's chief public health officer."
Then I was thinking, what if the word could get out and all the Canadians could find this guys e-mail and send him one to say "I'm currently seeking treatment in the states and here is my diagnoses". I wonder if that kind of kick would give them a more accurate number much easier!
I had to send this out as the thought came to me, sorry if it's a stupid thing that a lyme brain would do but I had to let it fly!
Mustard Seed
Veteran Member
Joined : May 2016
Posts : 1171
Posted 5/17/2016 11:03 PM (GMT 0)
Well I'm assuming he was at that Lyme Disease Conference in Ottawa this week, so I'm sure he heard all about
it.
trumpet123
Regular Member
Joined : Apr 2013
Posts : 141
Posted 5/18/2016 12:01 AM (GMT 0)
At the conference Sunday night it was the same old story over and over again. The patient went around in circles for years not knowing what they had and finally went to the US for treatment.
There is something rotten at the top of the government health centers that allows this stinking corruption to exist in our health care systems. I hope the Canadian Government chooses a different path quickly to get this corrected. Things are so out of control.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 5/18/2016 1:11 AM (GMT 0)
Whatever happened to the bill that MP Elizabeth May pushed through...about
better testing, diagnosing, and treating Lyme??
What has changed....nothing!! It's been almost two years now
Asmoline
Regular Member
Joined : Feb 2016
Posts : 132
Posted 5/18/2016 4:47 AM (GMT 0)
I almost feel like if the community took a more aggressive approach it may be handled differently. I just don't know how to do it. I feel like if it is left to someone who is not effected self motivation, it is a problem that can sit on the side table as other things that are more in your face like the threat of "THE ZIKA VIRUS!" get the spotlight.
It was obviously an odd thought, but if the same old routine of going through the system is falling on deaf ears, maybe a new approach is needed? I mean look at the "Black Lives Matter" group. Ignored for weeks and weeks until they did something extreme and showed up at Wynnes house. Now they are being listened to (or so they say!)
Mustard Seed
Veteran Member
Joined : May 2016
Posts : 1171
Posted 5/18/2016 1:53 PM (GMT 0)
Ya, the Lyme group is generally one of the nicest, kind-hearted, caring groups of people I have ever met.
It's a problem when it comes to stuff like this :p
echo23
New Member
Joined : Dec 2015
Posts : 17
Posted 5/23/2016 9:24 PM (GMT 0)
I went to the conference online- it was sad and infuriating. I really struggled particularly with Dr William Bowie who just seemed so intrenched in old school beliefs!
Anyway, Health Canada now has 6 months (according to Elizabeth May's Act) to present a new Lyme framework for the country hopefully this will bring change.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 5/23/2016 11:17 PM (GMT 0)
I'll believe it when I see it...
I don't have much faith...
rowingmom
Veteran Member
Joined : Dec 2011
Posts : 1652
Posted 5/24/2016 12:34 AM (GMT 0)
Girlie said...
I'll believe it when I see it...
I don't have much faith...
I agree. We just don't have the time to waste waiting for someone in Canada to help us. By the time they do it will be too late for many people coping with these infections.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 5/24/2016 1:02 AM (GMT 0)
To get diagnosed and treated here - you're jumping through hoops.
Not everyone has the energy and wherewithal to spend countless hours till the wee hours of the morning googling their symptoms...etc. Many people trust their Doctors.
Many people suffering needlessly.
I was lucky....but still went 15 months undiagnosed....
It's criminal.
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