help

I think I got this about 12 or so years ago. I got bit...my feet felt like they were on fire and I broke out in hives with swollen lymph nodes.....I didn't know a lot about drugs or anything then and they gave me steroids...back tract 2 a few years and my son was 3 months early and I got tons of steroids to help him develop. I think that ultimaly lowered my immune system. Then I got really sick when my mom as dying and had antibioitics..which I think may have given me candida..but I didn't know about all of that at the time....Anyway...symptoms of bone pain. Cant concentrate..my skin turned a reddish color and I got spider veins on my face..I never always told the doctor all of my symptoms...because I didn't really think they were related...anyway...lots more symptoms. Antidepressants lots of antibiotic for sinus infections eye infections...red eyes..etc...everyone once in a while I would feel like I had a nerve problem. ..etx..fast forward to about 4 years ago I got a root canal and they filled it..I never got it crowned..I know..very stupid...then I was sitting on the couch one day and all of a sudden while eating top ramen noodles my mouth got on fire...up until this I started have gut issues..lots of diarrhea..but I had just had a colonospy right before this and everything was ok..so I thought well we develop allergies as we age...chocolate would have a problem for me...anyway..I had abscess and that started my journey..now I have reynauds levida reticularils ..altered sensations all through my body..I cnt tell what effects me and what doesn't..chemical sensitivities....anxiety of course...sometimes air hunger feeling like band around my belly...etc...I am so mad at myself because If I would have did more research or paid closer attention...I wouldn't be suffering like this now...I must have had a pretty good immune system at one time...as this has went on for years and really if Felt fine for the most part until the last few years was getting really tired.......I may eat something and my nose may tingle..then I may eat it again and it doesn't forhead feel like it is crawling at time...eyes swollen ..swollen legs...one side of body more affected then the other...gut a mess hiatal hearnia gastritis duodenis slow motility ...8 brain lesions...aft that root canal...all hell broke loose in my body....sometimes my face feels hot..my body gets on fire....palpitation...and the list goes on...I don't know if I think I have a gene mutation..the ND told me I did when I went but she didn't want to address that yet..which bothers me....she did ASYRA test....she want to support organs and work on heavy metals..the tintures she is given me has alcohol in them and I can't tell if that is bothering me or not........I know now I can taste things in my mouth again.....like if I touch something I can taste it in my mouth..this is so weird.....IS THERE HOPE OR AM I TOO FAR GONE....it seems so much to fix...and I have been working on gut for 2 years...no sugar candida diet probioitcs and nothing.....I am learning I probably need glutathione..etx..and did know it....I am scared

I am trying to detox now and I am having more symptoms..not sure if from detox or new stuff from ND....I don't know what to do....I am doing this alone..my husbabnd isn't much help and I don't know which way to go and I am about out of moneuy....I have a hard time trusting NDs because I have gotten worse since using them or one person who said she had lyme and put me on isagenix...which I think made me worse.

I am not doing much in the way of detoxing..I am dry skin brushing..drinking water....soaking my feet for 5 minutes in Epson salt and peroxide....I did rebounding a couple of days ago for 5 min...but Wasn't sure if that was too much..I can't read my body right now..I can't tell what is doing what...I am usually on fire or tingling........ I also walk when I can and oil pull

I also can't tell how fast or slow Im detoxing..I don't really feel any different...just different symptoms which could be from detoxing or it could be from new protocall....

has anyone had this..this long and had these crazy symptoms..who couldn't read their body?

yes..until this root canal and abscessed tooth...I dealt with a little joint pain and tiredness from time to tome and weight gain that I couldn't lose.....I think it started with Lyme..but not sure if something else has cropped up or not....I hope not..I have been trying to get better before I knew what I had....and I was killing things and not detoxing properly and have gotten worse...so I know lyme is defiantly an issue even though I haven't had igenix test and the asyra test said that I have lyme bacteria.

I have been too scared to watch any of them to be honest with you...if I didn't have this burning pain and air hunger I would be able to deal a lot better

I think I am super bad....are you the one who detoxed all of your life....Not sure what your symptoms were but it just seems mine are over the top compared to people who have talked to me on here

I don't mean this to be ugly...I just haven't talked to a lot of people with symptoms similar to mine....like everytime I eat something tingles...on my face or my lip goes numb...

I touch my husband and I can taste..what I assume are chemicals in his bodyl......he can be taking a bath in the bathroom with the door closed and I can be in bed and I can taste his body wash...and sometimes it makes me tingle...weird stuff like that...I haven't heard that from anyone and I don't understand itl.

Post Edited (carla) : 5/23/2016 10:38:55 AM (GMT-6)

I know traveler..that is why I was wanting to talk to yu again I was wanting to tell you some of these syptoms I haven't had a chance to share the little ones...more than the huge not being able to breath etc....

carla - i'm sorry you're suffering with this....I know it's scary. I was scared, too. I thought I was going crazy...I thought I could possibly die from whatever I had....and I thought I was losing my mind at one point.

You won't feel better over night. But, if you concentrate on eating healthy, detoxing...little by little you will start to see improvements.

To distract myself, especially when I'm having a bad day psychologically...I will put on my music - really loud and distract myself. Then I will hold my kitty on my lap.
Do you have something that soothes you?

I also did meditation. I had never meditated before...didn't know what/how to do it.
I used a guided meditation - here is a link to the one I did:

/www.youtube.com/watch?v=oVzTnS_IONU

Carla i am with you ...skin stuff ,muscle wasting ,twitching ...i am with you ...the is more than one way to skin this cat ...burjing is bart and air is likely babesia ..start buhner herbs it may relieve symptoms...i too have white matter and having some trouble ..never did i studder .or feel anxiety...ask hubby to watch justinandcristie.ca wth you ask if he will be there l I ke he vowed...if not make plans with fam? ,divorce get alimony apply for disability ..idk ...bees are cheap...also rife is one time investment ..sell the house ,get a loan dont give up...

Post Edited (bluelyme) : 5/23/2016 4:08:53 PM (GMT-6)

I rarely watch those types of videos just so that I don't set off any PTSD type reactions that I have. Lyme is hard to get through and while there is a good purpose for making these types of videos, they aren't helpful for some Lyme patients either.

Good thinking to warn people of this, Girlie.

Divorce and alimony? That's not a good thing either, except in extreme cases. A divorce is incredibly emotional, and if it gets "nasty", it only gets worse. That could set back a Lyme patient pretty bad.

I'm sorry that happened to you bluelyme.

I know this disease has been life-altering for my husband and I. We will be forever changed...hopefully come out of it stronger and better for it. Time will tell.
At this point we are still feeling broken and vulnerable.