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reynauds levida reticularis

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Posted 5/23/2016 2:05 PM (GMT 0)
has anyone had these and they got better
Posted 5/23/2016 2:17 PM (GMT 0)
My uncle had raynaud's. He had to wear gloves and wool socks even in the summer when it is 100 degrees. There is a history of Lupus in his family so they think that is the cause. His hands would start to get cold and up he would jump and start exercising. So he wouldn't feel funny we all did it too. We would flap our arms like a bird and then we would swing our arms in circles. We made a game out of it. I have not seen him in several years so I have no idea if he still has it.
Posted 5/23/2016 2:22 PM (GMT 0)
I have been worried this may be lupus too....I hope not....
Posted 5/23/2016 2:33 PM (GMT 0)
http://www.preventionandhealing.com/articles/Lupus_Autoimmune_Disease_and_Hidden_Pathogens.pdf

makes me wonder if lupus is lyme
Posted 5/23/2016 3:05 PM (GMT 0)
Lupus is not lyme.

This is why we suggest you get a lyme test by Igenex. This will give you so many answers. Your ND can sign the paper for the blood work and then you will have an answer.
Posted 5/23/2016 3:10 PM (GMT 0)
I got the western blot and elisa test....it ws positive...I haven't did igenix due to money....and I was wondering about lupus because no one else seems to have the reynauds and levida reticularis...but I may have to suck it up and do it.
Posted 5/23/2016 3:35 PM (GMT 0)
Peteza - You don't think their could be a connection with lupus and lyme? Seems the symptoms overlap so much. How do we differentiate one from the other?
Posted 5/23/2016 3:42 PM (GMT 0)
K07 I have a family full of lupus and yes the symptoms do overlap, but they all were negative for lyme. Lupus is horrible and I have lost 2 cousins to it. Their siblings have problems and the dad is the one with Raynauds. The whole family was negative for lyme.

Now that is not to say that carla does not have lupus and lyme. I believe that is possible.

Carla, I had forgotten that you tested positive for lyme.

Lupus is difficult to test for. My aunt, uncle and 4 children all went to San Francisco to a rheumy and underwent many tests. 3 out of 6 are positive for lupus and 2 have other autoimmune diseases.

When I first got lyme symptoms I was sure I had lupus.
Posted 5/23/2016 3:43 PM (GMT 0)
I think there is a connection because after this happened to me my ana was 320 speckled pattern but negative for lupus on every test...but then I started looking in to lyme and I know I got bit about 12 years ago and I don't know many people with lupus but the ones I know don't have burning pain... I could have both....because all of this is autoimmune..I also have where my skin is really read and marks are left when I scratch or ..I have dermagraphics..all of this happened after my root canal...but I did have symptoms for years that I now can trace back to getting bit..but these bad symptoms that I can't hardly tolerated started after the root canal....Im scared..there just seem so much...I don't have a lot of joint pain anymore..mine is mostly nerve pain..the nerve pain seems to have taken over. IT is hard to differenciate....my sister swears she has lupus..but I have been told by others who have lyme..that it probably started as lyme and is part of the biotoxin illness....I don't know
Posted 5/23/2016 3:47 PM (GMT 0)
my ana was high but was told that didn't necessarily mean you had an autoimmune..but I am thinking I do ..I also got guttate psorisos when I got strep a couple of years ago..again after that root canal..I was going through a divorce and wasn't taking care of myself..didn't do what I needed to do and didn't go to the dentist for a couple of year...and now look at me...I know I have lyme...but now I think I may have other things on top of it...I need to go back to rheumatologist I guess...but I won't take their treatments anyway.....theirs is immunosuppressive drugs which I won't take
Posted 5/23/2016 3:53 PM (GMT 0)
when I went in with these symptoms my rheumatologist didn't seem to know what it was or what to do with me...so as bad as lyme is..I hope it is mostly lyme

my sis swears she has lupus but her lyme test came back positive
Posted 5/23/2016 4:00 PM (GMT 0)
Since you have two identical threads going, Carla, I deleted the other one, as I had been the only one to answer it at this point.

And here's my comment:
I have. I have the livido reticularis again now, thanks to Bart - but it went away as I treated last time, so I expect it to go away with treatment again this time.

As for Lupus and Lyme:
"It is possible that Lyme disease can be a major environmental factor which triggers the disorder in susceptible individuals. At any rate, the two diseases can look very similar and most be sorted out in the process of differential diagnosis. "

Lyme can most definitely mimic Lupus, as is said in this short blog post: lymemd.blogspot.com/2008/06/lyme-and-lupus.html

I do believe there are Lupus patients that have both Lyme and Lupus, I believe that Lyme can perfectly mimic Lupus as well. It's up to us to be sure we have the right diagnosis though, as doctors often fail to do proper testing for either condition most of the time.
Posted 5/23/2016 4:11 PM (GMT 0)
Well a good doctor will start with the worst symptom and try and get you relief there first.

My doc was so dang focused on my racing pulse and blood pressure that I had a hard time getting him to focus on my head pain.

I had to get VERY pushy and say "hey! listen to me!" It was the only way I was getting understood.

Then I felt bad for yelling at him.
Posted 5/23/2016 4:30 PM (GMT 0)
Are you seeing a biological dentist to take care of that root canal? There's been a lot of talk on here and on the recent Lyme Summit about fixing dental issues first as they may be holding you back from getting well.

Is there a specific lupus test that can differentiate it from Lyme?
Posted 5/23/2016 4:36 PM (GMT 0)
You can see in this article that many of the tests that are used to determine if a person has Lupus will also be raised in a Lyme patient many times: www.uptodate.com/contents/diagnosis-and-differential-diagnosis-of-systemic-lupus-erythematosus-in-adults

The problem comes from therapy for Lupus, an autoimmune issue, will suppress the immune function, which is exactly opposite from what Lyme therapy is all about.
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