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Posted 6/1/2016 5:27 PM (GMT 0)
In case anyone wants to get test ran and get insurance to pay for it...go to allergist/immunologist.....

one who specializes in more than allergies...I have appointment tomorrow and according to lady on the phone ..they will run lots of labs for all kinds of infections etc and they have treated chronic lyme and sometimes do abts.....so whether you go that route or not you may be able to get testing paid for through insurance
Posted 6/1/2016 11:56 PM (GMT 0)
bumping for more views
Posted 6/2/2016 3:41 AM (GMT 0)
I was wrote a post a few weeks back asking what type of "conventional" Dr knows the immune system, well, an Immunologist would be the one.

Although finding one who understands autoimmune conditions (not lyme) and T cell levels would be a shot in the dark, It might be worth my co-pay.

[ur]lhttps://en.wikipedia.org/wiki/Immunology#Immunologist
Posted 6/2/2016 3:58 AM (GMT 0)
Thanks for posting, that is an idea to consider.
Posted 6/2/2016 3:21 PM (GMT 0)
it wasn't worth the copay. Autoimmune is rheumatologist they said..I already have one of those and Im not going on the immunosuppressant drugs.
Posted 6/2/2016 3:30 PM (GMT 0)

carla said...
it wasn't worth the copay. Autoimmune is rheumatologist they said..I already have one of those and Im not going on the immunosuppressant drugs.

So you went and got blood work and they cannot help you?
Posted 6/2/2016 3:33 PM (GMT 0)
They deny Lyme is even an issue in Arkansas. It's very, very difficult to find a doctor that is willing to not join the rest of the crowd of deniers here. If you do find one, it's very likely that when pressed, they will deny saying that they even considered that you had Lyme. I had a Neuro do a complete flip on what he said to me - that I had Bell's palsy, a sign of Lyme and that would fit my Neuro symptoms as well. He actually got mad at me for even suggesting he said this. I was so stunned, I was speechless.
Posted 6/2/2016 3:37 PM (GMT 0)
What a sad state! I imagine that there are other states, but gosh - how sad for anyone in your state.

You are sick and have to travel for a doctor that "is allowed" to believe in lyme disease.
Posted 6/2/2016 3:40 PM (GMT 0)
Exactly. The sad part is that when we finally do track down an elected official (a Congressman!!!), he told me that things are being done and that Lyme is recognized in Arkansas - but he must be living in a dream state, because that's not what's actually happening in our state. It's being ignored, people with bulls eye rashes are being turned away (& told that it's not Lyme), and if you should have other symptoms - you got it! We get antidepressants, anti-anxiety meds, pain pills and other things so that they don't have to acknowledge or treat Lyme and company.
Posted 6/2/2016 4:15 PM (GMT 0)
My LLMD and his wife were just across the border and they both got lyme in TN! Of course now they are here in the "free state" of CA to treat lyme.
Posted 6/2/2016 4:23 PM (GMT 0)
Tennessee is better at recognizing the problem with Lyme than Arkansas - I use that as part of my argument when talking to these fools that think just because we live in Arkansas we don't have to be concerned with Lyme and company.

Can you tell I'm VERY disgusted with my state lately???? LOL!
Posted 6/2/2016 4:26 PM (GMT 0)
no they could not help..I am starting to get discouraged..if it wasn't for this burning pain throughout my body..I could deal with this for the most part..but I cant sleep..sometimes can't breath...Im exhausted and sometimes like I forget to breathe...so going to sleep is scarey at night anyway..but when I am on fire like this I can't sleep....then when I wake up feeling like I can't hardly move like Im really weak.....Im just tired...tired of all of it...I can't wait to be able to start some treatment so at least I feel I am doing something...but I am not seeing any improvements with detoxing...so I dont' know




does anyone else have it where if you wash your hands or touch something...you taste it in your mouth?

That is miserable


I am miserable...
2 years with hardly any sleep..I can't keep this up...

Post Edited (carla) : 6/2/2016 10:34:28 AM (GMT-6)

Posted 6/2/2016 9:19 PM (GMT 0)
Carla are you not doing any treatment at all?
Posted 6/2/2016 9:49 PM (GMT 0)
NEVER GIVE UP Carla!!

You will get there. Once you get to this doctor and start a course of getting well, you will see.

I have not heard of anyone on here ever that said "I got better and did nothing." That just will not happen.

You are detoxing and that is getting ready and you have to do that now before you start treatment. You want to make sure that when you start killing the bugs they have a clear path out of your body.
Posted 6/3/2016 1:10 PM (GMT 0)
I'm trying not too..I have no one to help me..My husband isn't a lot of help because he doesn't understand......anyway...I have to do shopping cooking...remembering my pills..everything..I am just so tired and feel so bad...I hate it when I feel like my limbs are so heavy....

Anyway talking to another gal on here who had this for 20 years has helped me and traveler.....


Thanks,
Carla
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