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Injuries pre Lyme and post lyme

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Posted 6/3/2016 12:35 AM (GMT 0)
Hi all,
For anyone who is remission and who have had injuries or surgeries before Lyme, have your injuries or surgeries healed now that you're in remission?
Posted 6/3/2016 12:51 AM (GMT 0)
Bump

(Great question - unfortunately, there aren't too many lemmas in remission on the forum so it might take awhile to get a response).

-p
Posted 6/3/2016 1:28 AM (GMT 0)
Thanks pirouette :)
Posted 6/3/2016 4:22 PM (GMT 0)
Bump
Posted 6/3/2016 4:31 PM (GMT 0)
Well, I had my injuries all while I had Lyme, because I got all my injuries after the age of 7. I can tell you though, that once I healed for that one year, my injuries were not bothering me like they do when I'm actively fighting these infections.

I've broken nearly every bone in my feet - but they didn't really bother me when I was healed. I had amazingly little pain once I healed, actually. The knee that had surgery wasn't wonky and getting tweaked easily. Fingers weren't painful and things like that.

My surgeries all healed, although it did take longer for complete healing.
Posted 6/3/2016 5:59 PM (GMT 0)
Thanks Trav that makes me feel better! I have a shoulder repair that hasn't healed yet so I'm hoping once i'm in remission it'll heal properly. I'm also looking at possibly having surgery on the other shoulder, but that may have to wait.
Posted 6/3/2016 7:11 PM (GMT 0)
Dave-Do x-rays or scans show that it hasn't healed yet or does it just feel as though it hasn't healed yet?
Posted 6/3/2016 8:06 PM (GMT 0)
Hey jrpsf- I have had MRIs on it about a year, year and a half ago, which showed some damage but that I think is a combo of years of weight lifting and possible inflammation; but it also feels as though is hasn't healed yet.
Posted 6/3/2016 8:15 PM (GMT 0)
Hey Dave,

I had some bad tendonitis in my wrists and hamstrings. I did a ton of physiotherapy for it before I knew I had Lyme, and it was mostly ineffective.

During the first couple of years of treatment I was able to clear the Lyme from almost all my body. Getting the Lyme out fixed it all. My hamstrings are fine. My wrists are now totally healed which is amazing to me after 8 years of pain. Even my 20+ year neck pain which was one of my first symptoms is gone. I don't know how much $ I spent in manual treatment for those issues over the years which was only palliative at best. I never had surgery but my issues were pretty long standing and almost seemed incurable.

I think if you just focus on killing Lyme your body will take care of healing the rest. However that is easier said than done and I am still slowly working on getting it out of my brain. I still am careful with my body. I stopped rock climbing altogether as it puts a lot of strain on the arms.
Posted 6/3/2016 9:36 PM (GMT 0)
My daughter (Heather) has not had any lyme or coinfection symptoms for 6 years, and we consider her to be "cured". I don't like the word "remission", as the medical definitions seem to carry the negative connotation that there will likely be a future relapse.

She has had some of the normal shoulder issues that long term swimmers often have, but she has always recovered without surgery.

Heather also had a bad concussion last November. Unfortunately she had some lingering symptoms until recently. We took her for a short 2 day visit to the Hansa Center in April. Dr. Jowdy diagnosed her with with "post concussion syndrome". He said that her brain has healed but that the blood and lymphatic flow was sluggish on the left side of her head, neck, and upper torso. He treated her over those 2 days and sent her home with an herbal remedy.

Dr. Jowdy stressed that the symptoms that she was experiencing were entirely new and NOT related to the past lyme. We had Heather blood tested by a conventional MD prior to taking her to the Hansa Center. All immune tests were within normal range, but of course, she still is CDC positive on the Western Blot. Inflammation markers were within normal range.

We spoke to Dr. Jernigan who is the physician that originally cured Heather 6 years ago. He recommended that she receive brain wave treatments at a clinic located near where she goes to college. The Hansa Center also now performs those treatments, but there wasn't enough time for the treatments due to only being there for 2 days. Heather received the treatments and responded very well so far. I will be reporting on brainwave technology in a month or 2 after the full value of the treatments have been realized.

My conclusion is that Heather's severe and debilitating bout of LD and coinfections has not seemed to make her more vulnerable to injuries to her body. The reason is that Heather has received various superior treatments that eclipsed her body's ability to simply heal itself. There is no way that she would be where she is today, if we had only focused on the goal of achieving "remission".

Don

Post Edited (Heathersdad) : 6/3/2016 3:39:32 PM (GMT-6)

Posted 6/3/2016 9:55 PM (GMT 0)
I personally would be a bit more proactive if I had sustained a new head injury having had a history of Lyme.

I'm personally convinced that CTE is going to be found to have an infectious origin. It's just too suspicious that a history of head injuries manifests in this degenerative disease, but only really becomes pronounced many years later. The slow progression of the disease just screams chronic infection.

"This trauma triggers progressive degeneration of the brain tissue, including the build-up of an abnormal protein called tau."
/www.bu.edu/cte/about/what-is-cte/

"The second hallmark of AD, also described by Dr. Alzheimer, is neurofibrillary tangles. Tangles are abnormal collections of twisted protein threads found inside nerve cells. The chief component of tangles is a protein called tau."

/www.nia.nih.gov/alzheimers/publication/part-2-what-happens-brain-ad/hallmarks-ad

I think head injuries must somehow disrupt the immune functioning of the brain. I know I had a concussion as a child and wonder if this might have predisposed me to a neurological manifestation of lyme.
Posted 6/3/2016 10:23 PM (GMT 0)
project- First, I DO very much appreciate your thoughtful post.

However, please tell me what I should have done in that situation? Heather was seen by a campus MD as well as an MD off campus. The truth is that apparently the conventional medical paradigm actually acknowledges "Post Concussion Syndrome," but it has NO treatment approach in its database! Their whole treatment approach is the same assumption that they have when treating LD.... that the body will somehow heal itself. We weren't able to get Heather into the Hansa Center due to scheduling problems.

Proactive as far as what is concerned? She has not needed anything for LD at all. Where can I find a competent physician for head injuries other than the one that I have? I didn't mention that in December we took her to an MD in Washington D.C. that specializes in brain injuries. His only treatment was an IV of a mix of certain minerals and vitamins to promote healing. I believe that it was called "prolotherapy". II gave Heather severe headaches for 2 days afterwards, and had no discernible positive effects. Those 3 MD's were worthless.

I am not upset at all, but I am curious as to what you mean by proactive? In my case, I just wish that somehow we had taken her to the Hansa Center sooner. My question to you is more of a rhetorical nature. My real question is.... why am I always forced to take my daughter to "alternative" practitioners to find solutions for my daughter?

Don

Post Edited (Heathersdad) : 6/3/2016 4:34:37 PM (GMT-6)

Posted 6/3/2016 11:18 PM (GMT 0)
Don - I'm not questioning your dedication to your daughter. Heaven knows that if my parents had been as involved as you have been I probably would be in a lot better shape now.

I just think that Lyme is really insidious. So by proactive I mean I would treat for Lyme in the absence of knowledge. Until someone can prove to me definitively that an issue is not being caused by active Borrelia, I would consider it guilty until proven innocent in a person that's known to have had it.

In general I believe energy testing like what they do at Hansa can work, but I have suspected that it is likely inaccurate. I read this the other day which would seem to confirm my suspicions:

"I don't know how else to explain why some of the best doctors who have muscle tested and Zyto-ed me have proclaimed the Lyme infections to not be an issue for my body, since, if I take a drop of my blood and look at it under a dark field microscope, I can still see critters swimming around."
conniestrasheim.org/blog/2014/06/lyme-disease-dont-bother-with-bugs.html

I think once the Ceres Nanotrap test is approved in a couple of years it will completely change the game. We'll finally know definitively if someone has active Borrelia or not. This will force the mainstream medical community to confront the problem head on after decades of avoidance.
www.ceresnano.com/#!nanotrap-lyme-test/c64d
Posted 6/5/2016 3:51 AM (GMT 0)
"For anyone who is remission and who have had injuries or surgeries before Lyme, have your injuries or surgeries healed now that you're in remission?"...........-

After 25-30 years of this, I cant say for sure if I'm in remission, nor do I completely believe in that term, BUT after 1 year of ABX, my muscles are getting better, very , very slowly.

As a past endurance athlete, I had so many accumulated tissue injuries from not being able to heal in the past that I imagine some might not get 100% healed. But, lyme or not lyme, not all injuries heal 100% anyway.

I am getting stronger, and am able to get trigger point knots to go away now - with a lot of work on my own. Ive spent a lot in all forms of soft tissue repair with medical professionals, PTs, chiros, massagers ect with out much luck till this year.

I'm convinced that for people with a lot of injuries, just killing the bugs is NOT enough. In my case "rebuilding" is a 100% necessity. At least I am now able to "re-build" some tissues, muscles, tendons ect. with manual work/therapy.

I have discovered something new for stubborn trigger knots - is called DRY NEEDLING done by PT's and covered as part of the therapy visit. Its sticking a needle 3/8 to 3/4 inch into the muscle knot, is goes into spasm and then releases. The next day you feel a little better, and slowly heal the following weeks. It seems to work for tendons also. Time will tell if it lasts.

Now, If only I could find something for fatigue, I really need to be physical to be "awake".

I am still going to go forward with mitochondria testing late summer - waiting for that is like waiting for an LLMD- months.
Posted 6/6/2016 10:29 PM (GMT 0)
project- I know that you weren't trying to say anything that was inflammatory. That's why I wasn't offended!

I appreciate your sensitivities towards Borrelia as you believe they may pertain to my daughter, but I do not share them. I created a spreadsheet of pro's and con's, and I overwhelmingly proved to myself that her LD that was cured 6 years ago was not a current driving factor when considering how we would approach the current situation. She was treated at the Hansa Center and it will take about 2 more months before the benefits of brain wave treatments will be fully realized. If I were to limit my area of inquiry to the law of cause and effect, I would already have to conclude that the concussion was the sole source of current problems. I will update my spreadsheet in August after the full brainwave results are finished... and after the August blood testing results are available. I only provided a few scant details that probably only confused you. That future thread will go into great detail.

As far as Dr. Jernigan's Bio Resonance testing is concerned, your comparison to muscle testing and Zyto is like comparing the burlap bag used for a sack race to the Space Shuttle. I'm shaking my head on that one!!!

Still, I appreciate that you expressed your scepticism, and brought up good points that are often relevant in other situations.

Don

Post Edited (Heathersdad) : 6/6/2016 4:42:35 PM (GMT-6)

Posted 6/6/2016 10:36 PM (GMT 0)
My right shoulder it feels like i torn the muscle pretty bad.... it's useless at the moment!!!
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