Hi Wilster, I found where you were posting about
what you had been through, and found this:
"I was initially treated with a standard three week course after my Elisa and western blot were both positive."
www.healingwell.com/community/default.aspx?f=30&m=3508719&g=3509077#m3509077 You need more treatment. You simply were not treated long enough. Standard treatments are 6- 8 weeks long even in the earliest stages of the infection -
before there are any symptoms. Once symptoms appear, then you treat until the symptoms are gone and stay gone for around 2 or 3 months.
That is the issue right there. Three weeks of abx is not at all adequate for these infections, especially since you have body wide symptoms. You stated in that other thread: "Overall, I went from not able to stand for five minutes, to living a somewhat normal lifestyle, except the symptoms make it too taxing to hold a full time job, but otherwise my energy is good. So it is just about
getting over this very annoying, final stubborn hump. My LLMD has me off abx now to see how I do. "
You sound like you are relapsing, which means you need further treatments.
You also stated that your doctor is ILADS trained. The thing is that doesn't guarantee that they are knowledgeable to effectively treat every case they come across, though. There are good doctors and not so good doctors in ILADS as well. It really doesn't matter if they have spoken at ILADS conferences or anything else - what matters is - are you healing, and you haven't.
You could also still have Bartonella or Babesia, even though you tested negative. Why? Lyme inhibits the immune function, which prevents the it from making the precious antibodies those tests are looking for - plus, it takes only a very small amount of either of those bacteria to make someone very ill, yet there had to be a large number of those same bacteria in the sample they take in order to get a positive test! So even PCR testing is not all that good.