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Bone, teeth, sinus pain and pressure??

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Posted 6/20/2016 11:37 PM (GMT 0)
Hi everyone,
can you please help me identify what i am dealing with? I have treated for Lyme for 18 months and felt better, then suddenly i got a ton worse. Now I am treating every other day MWF with rifampin and tinidazole for bart (and to keep the lyme in check) and Tues Thursd with Malarone and CSA from Woodland Essence.
I am so incredibly sick. I cant sleep at all. I have tremendous head pressure, with pain in my bones, teeth and sinuses. It feels like they are going to explode. is this bart or babs?
Posted 6/20/2016 11:43 PM (GMT 0)
you said you treated lyme for 18 months and felt better...would you mind sharing what your protocols were in the 18 months?

Maybe you need to go back to a protocol that was working...and give it a little longer?

I have head pressure - I don't know if it's lyme/bart/babs....
It did get better when I was taking minocycline - maybe because it penetrated the b/b barrier well.

It's come back a little bit lately...so I might have to do mino instead of biaxin and see if that helps.
Posted 6/21/2016 12:04 AM (GMT 0)
Hi swede ---

So sorry you're struggling with that kind of pain. I've been there.

Head/sinus/teeth pain is very likely due to a sinus infection. So the key is to figure out if it is a bacterial or fungal infection. I'd get to an MD ASAP and get it cultured for both bacteria and yeast/fungus. Tell them exactly that--let them know you've been on abx for a long time and that you have a yeast/fungal issue (I think you posted about y/f symptoms a few wks ago). Do not allow anyone to just assume it's bacterial and give you more abx... Try to do this as soon as you can.

Hope this helps -

-p
Posted 6/21/2016 12:34 AM (GMT 0)
I'd look into Protomyxzoa Rheumatica. I've been dealing with shin bone / sinus / teeth pain and I couldn't get it to go away. I started treating for proto and get major flares in all these areas when I herx. The bug seems to love hiding in red blood cells within the bone marrow.

I think it can be a major player yet many are not aware of its existence. It's a protozoa like Babesia and is extremely difficult to eradicate completely.

Here's some info:

protomyxzoa.org/wp-content/uploads/2013/05/Protomyxzoa_rheumatica.pdf
Posted 6/21/2016 1:48 AM (GMT 0)
UGH, Swede -I know those pains all too well.....wish I could help, but I am at a loss too right now. Been treating Bart and BABS for over 2 yrs. now, and am still experiencing all that - very exhausting to say the least. Hopefully more members will chime in. Hope it lessens for you soon, Swede!
Posted 6/21/2016 1:54 AM (GMT 0)
When teeth-sinus and head hurts you should , at least, get checked by a biological dds. The roots of teeth can by up against or in sinus.
Infection in jaw are usually a combo of bacteria and fungus and amoeba-hard to treat. Refers sympetoms elsewhere.
Posted 6/21/2016 2:17 AM (GMT 0)
magoo--
Do you think a biological dentist can culture the sinuses? Do you think he/she might be better able to more accurately diagnose than a regular MD? And DDs can prescribe all medications??? Funny that I don't even know the answer to that. ;)

Thanks -

-p
Posted 6/21/2016 2:41 AM (GMT 0)
DDs can prescribe most meds.

I went to my dentist for what I thought was a bad tooth and he said I had a sinus infection. He showed it to me on the xray. He said "how is your insurance?" I said, "great." He said you should be looked at my your medical doctor.

I think if I had of said I had crappy ins. he would have given me an antibiotic.

My experience with tooth, jaw and head pain was all lymph. Red root and Japanese Knotweed were my cures.
Posted 6/21/2016 4:06 AM (GMT 0)
thank you everyone - i have had the pain in the teeth and head pressure for years. Now when I am treating Bart and Babs it has exploded. It is also in my tailbone and hips. My muscles contract really badly and wont relax.
you think it is a sinus infection? It seems way too severe and somewhat widespread for that? Pirouette told me i should treat yeast/fungus and I have been taking Diflucan every day. I seem to herx from it?

I thought these symptoms could be traced to either bart or babs.
I had the Fry test for Protomyxzoa and it was negative. the test even showed very low biofilm

I am suffering so badly I have thoughts of suicide.
Posted 6/21/2016 4:39 AM (GMT 0)
Thanks for clarifying - that is helpful. In my experience, sinus and head pain can be excruciating. And I know exactly how you are feeling - if it is that bad it is not tolerable. Hang in there - we will help you figure this out.

One possibility is that now that you are treating with antimicrobials, they are kiling the good bacteria and making the yeast/fungal issue worse. Diflucan didn't work for my fungal sinus infection---try Ketoconazole. That worked for me.

If it is due to a herx from killing the microbes, you aren't detoxing enough. Try the oil pulling I think I mentioned before and maybe a sauna would help. Or ice packs? Are you taking anything for inflammation?

But I think for now you might need to reduce the antimicrobials until you can detox and handle the treatment better. Have you talked with you LLMD about it?

I am so sorry you are struggling. I know this is really tough. I wasn't doing well at my 18 month mark too... I was too aggressive. If you can call your MD first thing tomorrow.

-p
Posted 6/21/2016 10:58 PM (GMT 0)
Hi Pirouette - so good to have you out there. I think the Diflucan may be helping. I read that most MDs dont prescribe high enough doses and that those who do know y/f prescribe anywhere from 400mg to 1000 mg per day at least initially to get the y/f under control. I followed that and increased my Diflucan to 800 mg per day for 3 days, and I think i herxed really badly. Now I am taking 400mg per day.
My symptoms would come on immediately after i ate - pretty much anything except soup. Now since a week of the Diflucan I can eat without it coming on. THis is thanks to you.

Unfortunately my LLMDs, i see two, are not great. they just kind of shake their heads and dont know what to suggest.
Are you better Pirouette? I am a late stage Lyme as well. infected in 2000 as well and diagnosed in Jan 15. unbelievable what a horrible disease this is.
Posted 6/22/2016 1:38 AM (GMT 0)
I think you need a good doc or biological dds to find out whats going on.Throwing meds at something you could get lucky but you also could get unlucky. You could have both a sinus infection and a dental infection and they are most likely polymicrobial. maybe even dental spirochette
The key is going to a doc who finds both kind of infections as part of their practice. Most docs and dds don't.
I know a doctor in Switzerland and one in St. Louis that do-I'm sure there are others but not many.
Do you have any dental work in mouth?
Best of luck

Often times for a chronic ill person there is something wearing down their system and
if you can find and fix that something you can regain a big chunk of you health back in just a few months.
Many docs never look at what could cause a system to be worn down-
Look at the women on real housewife-she saw 100 docs before some suggested her breast implants could be the issue-I think she said she gained back 70% of her health after they were removed.
Dental is usually one of those things that can you back from healing-its worth seeing a biological dds-not
worth seeing a regular dds

Post Edited (magoo2) : 6/21/2016 7:46:28 PM (GMT-6)

Posted 6/22/2016 1:57 AM (GMT 0)
magoo2 - could you give me the details of the Doctor in Switzerland, I live in UK and would like to investigate this.
Posted 6/22/2016 2:37 AM (GMT 0)
Dr Thomas Rau-Head guy at Paracelsus
Posted 6/22/2016 2:51 AM (GMT 0)
Swede--
AWESOME! so glad you are feeling a little progress. I always want to suggest people take those higher doses of antifungals but it's tough to do that when we all know very little about each other! Anyway, you had so many of the same symptoms I did I just knew you were dealing with a significant fungal issue in your head.

So -stay on course. These infections can be a little dangerous so the more comprehensively you can heal the better.

Make sure you Avoid ANY AND ALL forms of sugar and foods that convert to sugars fast like simple carbs (white rice, potatoes, white bread, pasta) not forever but until your yeast/fungus symptoms are gone.

Make sure you are detoxing as much as you can handle -- all the y/f the diflucan is killing needs help getting out of your body and it will help with the really intense die off. Drink a ton of water. Do oil pulling, you need to take a binder (activated charcoal or bentonite clay) with 1-2 hr buffers before you take it and 2-3 hr buffers after you take it----to separate the binder from any food, beverage, medication, supplement. Be sure to take the binder after you take your diflucan (doesn't have to be immediately after at all--- just in that sequence). And drink lots of water. Lots of water!!

Please post any other questions or you can email me if things get bad again.

-p
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