Anybody else have muscle wasting?

I found this article

www.tiredoflyme.com/muscle-weakness.html

in the 2 years since i've been sick i've lost a lot of muscle. i think part of it is the infections themselves and part of it is the massive reduction in physical activity due to being sick. i think as you get the infections under control that all comes back if you pay attention to it and focus on improving.

Buhner recommends several things for muscle wasting. One is shiitake mushrooms and I believe wheat germ. I don't have the book in front of me but I was looking into trying the shiitake mushrooms.

Muscle wasting happened to me too. Lost about 20 lbs. I hope it doesn't continue.

I was doing the same, Krimpet - trying to eat as much as I can...stressing over it.

My p--p actually had a lot of undigested food in it...I think the infections were messing up with the entire digestive process.
I was able to hold it at bay....after the 14 lb loss...but didn't get any improvement until treatment started.

I had to start digestive enzymes and betaine for low stomach acid. PantsFace are you using any digestive enzymes?

Hey Pantsface,

My story is similar. I had some symptoms leading up to the muscle problems but I hadn't paid much attention to them at the time. Then at some point in January I had major spasms, twitching, pain and cramping in only my left calf which left me taking 2 hour hot baths multiple times a day to soothe the pain for a few weeks. Quickly it worked it's way through my left leg/foot and left behind decent muscle wasting as my left calf measures 1/2 inch smaller than my right and my left foot is noticeably smaller. All that happened in maybe 3-4 weeks. Since that time the same symptoms have moved around my body and mpw I think I'm getting wasting in various other places as well. I have been on abx for 2 months for Lyme and 2 weeks for Babs, no major improvement on that front even though most other symptoms seemed to have gone away in the past couple of months. I was never as bad as you were physically but I remember limping around for a period of time and forcing myself to walk daily to rehab. I have lots of twitching still at this point so I always have it at the back of my mind that this is some neuro disease which freaks me out. Sounds like from doing lots of research that lyme (and my LLMD even said Babs) can cause these symptoms. Seems to be pretty common and also for some reason seems to like the calves.

I'm going to try those mushrooms tonight.

Good luck.

Also wanted to mention that I never really felt 'weak'. Just the wasting/twitching/cramping but other than that I was always able to get around fine, with some pain which caused limping at the outset but no real weakness to go along with it which I find odd.

Post Edited (TymeToKillLyme) : 6/22/2016 1:55:18 PM (GMT-6)

Reminder: I did have my kidneys tested. Last test the GFR was 89, I have low liver enzymes, but was told that was a good thing. I am usually around 110-112 lbs when I am "healthy". In the past year, or maybe two?, I gained and weighed 129 and then lost it to 99 lbs in April due to being so sick and constantly vomitting, not being able to eat, all the fun stuff. Also very athletic, but not anymore :(

TimeToKill: I wish those mushrooms were magic........ ;) I had so much pain in my foot that I literally couldn't sleep or have anything, even cotton sheets, touching it. I was on painkillers, muscle relaxers and psych meds to help and NONE of them worked, I only got worse. Docs diagnosed me with Chronic Regional Pain Syndrome and then took the diagnoses back and said "we don't know". My physical therapist is actually the one who asked me, multiple times, if I had lyme. My entire body feels so weak sometimes, I can't believe that I was training for a half marathon only a year ago, was on crutches for 8 months and now I can only walk a mile and a half, and that was slowly and painfully!!!!

Krimpet: my nutritionist muscle tested me for digestive enzymes and said not yet. I specifically mentioned it to her. I am on Olive Leaf Extract though, and I think that helps detox by increasing bile production, which maybe that is helping me digest now?

Hi pants and everyone...i have done much research and pining over this ..it was very site specific in hands and feet ..like piranhas eating me feeling ... my rhuemy thought it was a vasculitis. .it looks like mpa ...microscopic poly anginis ...the als lyme people feel it is a lower moter neuron function problem ...when the id duc said my lyme was false positive he said mitochondrial. ..i beleive it is a combo of bart and mycoplasm as dr k thinks too...char bohemme of dna frequencys implicates a retro virus and also mycoplasm fermintans ...this guy on other forum said his stopped when he did 3 ys of floroquinalones. ..this other nurse that saw it me last yrs has gotten her life back with bvt ...
lous neuro said when you see wasting half of nerves are dead ...things that have helped are bvt 3x a week amber rose style , higj phospholipid s ,i have a blood parasite as toxo,proto or babesisia canis ...treating ascaris and giardia ...tini alinia ,iv silver ,iv rocephin, iv zith ,diflucan ,and rife (plasma) has helped ..this is horror movie stuff...you are not alone ..i have heard stories of 5 months of mino and empty pods grew back and also 4 ys abx and now skin and bones ...i do think gut is important but i think stopping bart is why rrminder and girlie and i have had some progress..i would like to keep this thread active for support . I tried to start one a while back it was healing well that helped save my life ...younare not alone ... this a study i found his hands are worse than mine but i was on my way http://jnnp.bmj.com/content/63/2/257.full#ref-1 It is lyme related you can seenit at 1000x btw

Post Edited (bluelyme) : 11/21/2016 10:10:18 PM (GMT-7)

Bumping to say that treating giardia and ascaris has helped some with protien absorption. .. also i am really going for bart/ mycoplasm after this herbal run ...

I also lost a lot of weight, mainly because of my stomach problems.

Krimpet could you tell me more about mushrooms? Are they for weight gain? Can you take them if you are taking abx?

Yes, I had muscle wasting too. went from 128lbs to 110 in a couple of weeks. I literally had no butt - my pants were flat in the back. My arms were thin, if I tried to tense my calves, you couldn't really feel any muscle there. It was scary. The good news is, once you treat lyme properly, you can SLOWLY reintroduce exercise. Total body sculpting is the best, in addition to yoga - cardio and aerobics are the worst.

I have more muscles now than I did before I had lyme!! Ive have become a fitness fanatic. i am doing all different weight lifting programs, bc my body is allowing me to. I could barely do anything after i finished treatment, so just know it is a very slow process, and you need patience, but one day, you surely can get to where i am now!!!