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Posted 9/21/2017 5:45 PM (GMT 0)

Girlie said...

dacarte3 said...

Hoagie said...

dacarte3 said...
Also, do I take both doxy and flagyl at the same time? Spread them apart?

My doctor has me take Flagyl only 2 days out of a month. And then I'm off of all abx for over a week. Flagyl is supposed to be pretty heavy duty. I herxed pretty bad when I took it. But I also took it along with Mino and Zithromax.

Well I took it.

Herbs and abx, trying to cover all my basis. My last hope. Crossing fingers to seeing improvement along the way.

Wish me luck.

If you're worried about alcohol...maybe space it an hour or two away from it. The tinctures being liquid should leave your stomach quite quickly, I would think. (Still not ideal, but may help)
Remember - there is only a tiny amount of alcohol in the tinctures.

When my LLND prescribed Tinidazole, I took it two days a week...

Now I'm only taking it two days a month.

Flagyl and Tinidazole is that potent? It can work effectively in just a couple doses a week or month? These abx allegedly bust cyst right?

What kind of sorcery is this?
Posted 9/21/2017 6:14 PM (GMT 0)
Yes, it's for Cysts.

Other LLMD's have said just pulsing meds is enough to allow the spirochetes to come out of the cysts.

When i took it twice a week, I was not taking any breaks from abx.

Now that I'm only taking it two days per month, I also have 2 weeks off per month. So , maybe in that 2 weeks, the spirochetes come out of cyst form.
Posted 9/21/2017 6:41 PM (GMT 0)

Girlie said...
Yes, it's for Cysts.

Other LLMD's have said just pulsing meds is enough to allow the spirochetes to come out of the cysts.

How long have you been on consistent abx treatment?

When i took it twice a week, I was not taking any breaks from abx.

Now that I'm only taking it two days per month, I also have 2 weeks off per month. So , maybe in that 2 weeks, the spirochetes come out of cyst form.

Posted 9/21/2017 7:10 PM (GMT 0)
That totally didn't quote correctly.

Girlie, how long have you been on consistent abx treatment?
Posted 9/21/2017 7:27 PM (GMT 0)

dacarte3 said...
That totally didn't quote correctly.

Girlie, how long have you been on consistent abx treatment?

A LOOONNNGGG time.


July, 2014 started...but wasn't consistent until beginning of Sept., 2014.

Have had some breaks though... 2 1/2 months in spring of 2015 and then again in spring of 2016 another couple of months. So, 3 years and counting.

I'm finally doing Babesia treatment now...this should have been done a year and a half ago IMO.
Posted 9/21/2017 7:33 PM (GMT 0)

dacarte3 said...

Hoagie said...

dacarte3 said...
Also, do I take both doxy and flagyl at the same time? Spread them apart?

My doctor has me take Flagyl only 2 days out of a month. And then I'm off of all abx for over a week. Flagyl is supposed to be pretty heavy duty. I herxed pretty bad when I took it. But I also took it along with Mino and Zithromax.

Well I took it.

Herbs and abx, trying to cover all my basis. My last hope. Crossing fingers to seeing improvement along the way.

Wish me luck.

I wish you well! I really hope you see improvement.
Posted 9/21/2017 7:37 PM (GMT 0)

Girlie said...

Hoagie said...

dacarte3 said...
Also, do I take both doxy and flagyl at the same time? Spread them apart?

My doctor has me take Flagyl only 2 days out of a month. And then I'm off of all abx for over a week. Flagyl is supposed to be pretty heavy duty. I herxed pretty bad when I took it. But I also took it along with Mino and Zithromax.


Are you seeing Dr. J?

(I recognize the protocol)

I wish. My doctor's practice uses his protocol. It seems to be successful in the majority of his patients. It is the protocol my doctor was on as well. He is still recovering. Over the past two years he has slowly been getting back to a full week's work. He started out with one day a week two years ago after not being able to work for 2 years. He is up to 4 days a week now. They say it takes time, but is a good protocol.
Posted 9/21/2017 7:49 PM (GMT 0)
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?
Posted 9/21/2017 8:27 PM (GMT 0)

Girlie said...
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?

The doctor I personally see works under the doctor who talks back and forth with Dr J. I'm not sure if Jemsek trained him, but they do converse from time to time.

Honestly, I'm not sure if my dr is still treating with abx or not. I see him this Tuesday, and I will be sure to ask him. I'll add it to my list of questions that I plan on asking him. I want to say that Dr J's protocol hits all 3 Bs, but I've read that Rifampin should be added when treating Bartonella, which I believe I have.
Posted 9/21/2017 8:46 PM (GMT 0)

Girlie said...

dacarte3 said...
That totally didn't quote correctly.

Girlie, how long have you been on consistent abx treatment?

A LOOONNNGGG time.


July, 2014 started...but wasn't consistent until beginning of Sept., 2014.

Have had some breaks though... 2 1/2 months in spring of 2015 and then again in spring of 2016 another couple of months. So, 3 years and counting.

I'm finally doing Babesia treatment now...this should have been done a year and a half ago IMO.

Did you do herbs at the same time?
Posted 9/21/2017 8:49 PM (GMT 0)

Hoagie said...

Girlie said...
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?

The doctor I personally see works under the doctor who talks back and forth with Dr J. I'm not sure if Jemsek trained him, but they do converse from time to time.

Honestly, I'm not sure if my dr is still treating with abx or not. I see him this Tuesday, and I will be sure to ask him. I'll add it to my list of questions that I plan on asking him. I want to say that Dr J's protocol hits all 3 Bs, but I've read that Rifampin should be added when treating Bartonella, which I believe I have.

Doing full bart and babs together is difficult unless you're willing to take a fluoroquinolone with Mepron.
Rifampin and Mepron aren't prescribed together.

But, yes Dr. J does treat all three B's.
Posted 9/21/2017 8:50 PM (GMT 0)

dacarte3 said...

Girlie said...

dacarte3 said...
That totally didn't quote correctly.

Girlie, how long have you been on consistent abx treatment?

A LOOONNNGGG time.


July, 2014 started...but wasn't consistent until beginning of Sept., 2014.

Have had some breaks though... 2 1/2 months in spring of 2015 and then again in spring of 2016 another couple of months. So, 3 years and counting.

I'm finally doing Babesia treatment now...this should have been done a year and a half ago IMO.

Did you do herbs at the same time?

I did Buhner's lyme herbs before diagnosis for almost 3 months. Then dropped them to do abx.

I added the Buhner's bart herbs in later while on lyme abx. Took them for 4-5 months before discontinuing them.
Posted 9/21/2017 9:18 PM (GMT 0)

Girlie said...

dacarte3 said...

Girlie said...

dacarte3 said...
That totally didn't quote correctly.

Girlie, how long have you been on consistent abx treatment?

A LOOONNNGGG time.


July, 2014 started...but wasn't consistent until beginning of Sept., 2014.

Have had some breaks though... 2 1/2 months in spring of 2015 and then again in spring of 2016 another couple of months. So, 3 years and counting.

I'm finally doing Babesia treatment now...this should have been done a year and a half ago IMO.

Did you do herbs at the same time?

I did Buhner's lyme herbs before diagnosis for almost 3 months. Then dropped them to do abx.

I added the Buhner's bart herbs in later while on lyme abx. Took them for 4-5 months before discontinuing them.

3 years of consistent abx seems like a very long time.

How much did you improve?
Posted 9/21/2017 10:04 PM (GMT 0)
On the first antibiotic break (2 1/2 months) - I slipped back some. A few symptoms returned.

It is a long time...yes..but I have to finish...can't stop when I still have symptoms.

I've got less than 10 consistent symptoms left.

Had close to 40

My worst: Nerve pain -( upper back, left arm and hand), shivering/cold, head pressure, memory issues, foot pain,
POTS, sweats.

^^^ those are my consistent ones.

I sometimes have left rib pain, and knee pain (mild), and my pulsatile tinnitus is only appearing occasionally and it's mild.
Posted 9/26/2017 12:46 PM (GMT 0)

Girlie said...
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?

I had my appointment yesterday and asked a bunch of questions.

My doctor is still treating with abx and has been for over 2 years. He is not 100% yet, but is very close to it. I asked him what their patient success rate is. He stated 90% using the Jemsek Protocol, or a variation there of.

Also, my suspicion of having Bartonella was pretty much confirmed. I explained to him that I was bit by a cat 5 years ago and had the red line going up my arm. He stated that was an indication of Cat Scrath Fever, which is Bartonella. And even though I was treated for 10 days, same as I was for my bull's eye rash, it was not long enough given that I am getting old symptoms back since starting Lyme treatment. He said that Jemsek's protocol should hit the Bart as well as Babs, if I have that. But, that if I don't see some improvement in 3 months, he will add Rifampin the mix.
Posted 9/26/2017 5:39 PM (GMT 0)

Hoagie said...

Girlie said...
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?

I had my appointment yesterday and asked a bunch of questions.

My doctor is still treating with abx and has been for over 2 years. He is not 100% yet, but is very close to it. I asked him what their patient success rate is. He stated 90% using the Jemsek Protocol, or a variation there of.

Also, my suspicion of having Bartonella was pretty much confirmed. I explained to him that I was bit by a cat 5 years ago and had the red line going up my arm. He stated that was an indication of Cat Scrath Fever, which is Bartonella. And even though I was treated for 10 days, same as I was for my bull's eye rash, it was not long enough given that I am getting old symptoms back since starting Lyme treatment. He said that Jemsek's protocol should hit the Bart as well as Babs, if I have that. But, that if I don't see some improvement in 3 months, he will add Rifampin the mix.

If you're not taking a Fluoroquinolone or Rifampin it's unlikely you will get rid of Bart.
Dr J treats Bart with a Fluoro, Rifampin, or Rifabutin.
Posted 9/26/2017 7:25 PM (GMT 0)
A week of doxy flagyl combo and nothing bad happened as in an allergic/bad reaction. So I guess that will be my ABX combo for now. Llnd wants to eventually introduce a third. Eeek!
Posted 9/26/2017 9:54 PM (GMT 0)

Girlie said...

Hoagie said...

Girlie said...
How does he know Dr. J's. protocols? Has Dr. J. trained him?
...or is he just following the pulsed method that Dr. J. does?


I've heard interviews with Dr. J. as well as looked at others' protocols and while it's not ideal - not the same as seeing Dr. J. - I think it's still better than daily dosing.

I had a good slideshow of his where he discusses starting off with a lesser killing protocol for a few months, and then after that it's the protocol with the kill zone - (heavy hitting). The link to the slideshow isn't working anymore though.

Has your Dr. been in treatment for the past two years? or longer? Is he still treating as he recovers?

I had my appointment yesterday and asked a bunch of questions.

My doctor is still treating with abx and has been for over 2 years. He is not 100% yet, but is very close to it. I asked him what their patient success rate is. He stated 90% using the Jemsek Protocol, or a variation there of.

Also, my suspicion of having Bartonella was pretty much confirmed. I explained to him that I was bit by a cat 5 years ago and had the red line going up my arm. He stated that was an indication of Cat Scrath Fever, which is Bartonella. And even though I was treated for 10 days, same as I was for my bull's eye rash, it was not long enough given that I am getting old symptoms back since starting Lyme treatment. He said that Jemsek's protocol should hit the Bart as well as Babs, if I have that. But, that if I don't see some improvement in 3 months, he will add Rifampin the mix.

If you're not taking a Fluoroquinolone or Rifampin it's unlikely you will get rid of Bart.
Dr J treats Bart with a Fluoro, Rifampin, or Rifabutin.

I am on a pulsed protocol. If I were to add Rifampin, would I pulse it along with all my other meds?
Posted 9/27/2017 7:50 AM (GMT 0)
Yes, you could pulse the Rifampin too.


When I go back to bart treatment, I may do Rifampin plus Ceftin plus mino. (pulsed)

Or Rifampin, plus Ceftin and Azithromycin

Dr. M (bart guru) likes Rifampin or Rifabutin with biaxin.
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