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Posted 6/26/2016 11:22 PM (GMT 0)
Does anyone ever recover from chronic Lyme disease? Because I have neuroborreliosis and psychiatric symptoms and behavioral struggles like binge eating and drinking alcohol, I can’t live perfectly for the rest of my life according to strict protocols (have tried for 10+ years) unless Lyme treatment helps. IM Rocephin seems to be helping, so besides staying afloat by doing my part, I wonder if I’ll ever be well enough to have a life? I really only want to hear from people in (full?) remission and cultivate some hope and motivation...
Posted 6/26/2016 11:26 PM (GMT 0)
I know you don't want to hear from me because I'm not in full remission...

But, as Moderator, it is my job to welcome new members...so...Welcome to our community.

I do have thoughts on what you posted...but since you only want comments from people who are in full remission, I'll bite my tongue.

FYI - people in full remission don't usually come on here daily...they are getting on with their lives...so it may be awhile for you to get some responses.
Most of the people posting/reading on this forum are looking for support, information, etc.

You could do a search (blue bar above right) - and put in the words: Lyme - people in remission.
Posted 6/26/2016 11:33 PM (GMT 0)
Use the search function and you will find countless links of full recovery success stories.

Other than that the rest of us are on here because we are still dealing with it.

I hear you on the "perfect life" thing. I mean I rather die than not "live" life. So I cheat on my diet every now again. I go and stay out later than I should some times. And yes I even have alcohol very occasionally and enjoy it.

I'm not, not going to live. I figured I'm still treating my body very well 90% of the time and I don't believe the 10% is going to keep from fully recovering. If so then I guess I got this baby for life. Because I'm going enjoy life, we don't get a second swing at this.
Posted 6/27/2016 12:13 AM (GMT 0)
Tabular, I want to welcome you to the forum. I am sorry you are feeling defeated.

I would like to encourage you to watch "Under Our Skin" which shows some really sad stories of people with Lyme and then follow that with "Under Our Skin-emergence" which shows them getting on with life. It wasn't after some losses but they are now at a point where they can "live" their lives. I found these on you tube. I also saw it on facebook. You may be able to find it there.
Posted 6/27/2016 12:38 AM (GMT 0)

Tabular14 said...
Does anyone ever recover from chronic Lyme disease? Because I have neuroborreliosis and psychiatric symptoms and behavioral struggles like binge eating and drinking alcohol, I can’t live perfectly for the rest of my life according to strict protocols (have tried for 10+ years) unless Lyme treatment helps. IM Rocephin seems to be helping, so besides staying afloat by doing my part, I wonder if I’ll ever be well enough to have a life? I really only want to hear from people in (full?) remission and cultivate some hope and motivation...

Too bad that you only want to hear from people in full remission because you are so missing out on words of wisdom and hope from forum members who may not be in full remission but who have made so many positive strides in getting better, that they are as you say, "living" their lives.
Posted 6/27/2016 12:44 AM (GMT 0)

Krimpet said...

Tabular14 said...
Does anyone ever recover from chronic Lyme disease? Because I have neuroborreliosis and psychiatric symptoms and behavioral struggles like binge eating and drinking alcohol, I can’t live perfectly for the rest of my life according to strict protocols (have tried for 10+ years) unless Lyme treatment helps. IM Rocephin seems to be helping, so besides staying afloat by doing my part, I wonder if I’ll ever be well enough to have a life? I really only want to hear from people in (full?) remission and cultivate some hope and motivation...

Too bad that you only want to hear from people in full remission because you are so missing out on words of wisdom and hope from forum members who may not be in full remission but who have made so many positive strides in getting better, that they are as you say, "living" their lives.

I agree. I'm not "fully" recovered but am living a totally functioning life. My symptoms are mild and every once and awhile. Just "bothersome" but totally enjoying life still.

Making it to this point of recovery is very significant as well. It's really not full remission or bust. What's "good" about this point of recovery is I can continue to treat but still go on with my life.

In the beginning when I was really sick this was my life and only life and it has to be when you feel SO terrible.

Edit: but when I do herx, it does suck. But I just have to take it easy for a few days and then I'm back.

Post Edited (dacarte3) : 6/26/2016 6:47:20 PM (GMT-6)

Posted 6/27/2016 2:10 AM (GMT 0)
You can search you tube for some success stories and some docs lectures on lyme and chronic disease
My favorite are from a Swiss doc named Dr. Thomas Rau but there are plenty of others.
The body can and does heal
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