LYME / AUTOIMMUNE

I know I keep asking this or talking about this...but I know I have lyme..I have ANA of 320 and they symptoms I think are autoimmune are levida reticularis, reynauds ( I think--my toes are red) dermagraphics and maybe the hot pain throughout my body...I just don't know what to do about treatment...treat autoimmune or treat lyme.....The rheumatologist...says non specific so won't tell me if I have one..I know my legs are swelling...... gut still a mess...this is scarey...the 320 speckled pattern is for lupus or schlerderma

hypothyroid
adrenal issues
levida reticularis
reynauds (hopefully not buergers as I used to smoke)
lyme, bartnella, babesia, mycoplasma, chronic strep, ebv...that I know of...I have not had formal testing..but what the Asyra picked up

Post Edited (carla) : 7/8/2016 9:39:31 AM (GMT-6)

I haven't started the bee venom just yet..have to wait for my stuff and still researching on the effects of that and autoimmune...I hear it is immune modulator..but I know we need our immune system working...but I want to make sure Im not going to boost in case of autoimmune....I am going to get recheck next week at rheumatologist...I wouldn't worry a lot about autoimmune except for the way this come on for me after the tooth and abscess..ti was like my whole body was being attacked...I didn't know I had an abscess and mouth got on fire...up til this point the year or so before that I had been having some gut issues..loose stools etx...then when my mouth got on fire..all kinds of altered sensations...the nerve pain..the levida..the reynauds...etc...come up and I had never had that before and have had lyme for years. It seems to have triggered something the abscess tooth....fever blisters broke out and even HPV I didn't know I had.....I could sit in scalding hot water and not feel it ..that is how bad it got...axiety through the roof...breathing issues..all kinds of stuff went hairwair with the tooth....so I am almost certain I have autoimmune on top of everything else and that scares me almost more than lyme does..cuz at least lyme you can try and treat it


before all of that just some random joint pain....memory issues...weight gain and sweated all the time and couldn't lose the weight and got sleep apnea....spider veins on cheeks.......then when all that happened with the tooth all hell broke loose


sun sensitivity


I am trying to make sure bee venom is ok to use if you have autoimmune disease before I actually start it...the other day when I was sure of it...I was thinking of lyme and my symptoms and forgot all about the immune part of it.


So am I right buehner don't think there is autoimmune disease he thinks its your body trying to get rid of some kind of infections..or attack some kind of infection????

Post Edited (carla) : 7/8/2016 10:13:41 AM (GMT-6)

It's very scary, the elevated ANA. Try not to panic cuz it will make it worse. I don't know your rheumatologist, but from what I know, the treatment they use for autoimmune is the opposite of what will help with Lyme and most mainstream rheumatologists don't believe in chronic/post Lyme syndrome. I think standard treatment is steroids, which I was given by an "auto-immune expert" and then that is when my Lyme/Mold/EBV/Candida all broke loose and I got way sicker.

I had an elevated ANA of 80, which isn't too bad, but had doubled from the previous year and I was all set to go to the rheumatologist, but then my LLMD appointment came up and I specifically asked him about that, and he said that he was going to handle the auto-immune part. He is a trained ENT/Allergist, so he's very comfortable with that. I would try to find a LLMD who does auto-immune.