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I need help finding a LLMD near or in Louisville KY

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Posted 7/10/2016 2:19 AM (GMT 0)
Hey everyone so my Lyme headaches are coming back and causing me a lot of anxiety. I was bit now over a year ago developed a rash and everything and soon developed back neck and head pains with it feeling like a sharp burning feeling about a month after or two after the bit. I was rushed to the emergency room and had multiple test done and was put on doxycyline 100mg for 14 days. This was able to clear up most my symptoms and fortunately I was able to go to College.

But soon after I ran out they came back and I was quickly put on doxycyline 100 mg again for 28 days. Because of this most if not all my symptoms where gone with just the effects of the headaches. Burrow they are coming back to a painful degree and I need help! Please I am so scare and I am trying not to be scared but I just want to be healed and this to be over with. Please if anyone knows of good doctors in Louisville that are open to treatment or Lyme or who specializes in it please message me. Also if anyone has taken the ingenx test do you know if it can be covered by insurance and how log will it take to come back?

Finally with it being a year into Lyme is it to late for me to make a full recovery? Please let me know and any tips for getting healed better would be appreciated. I am only 21 and I want my life back

Thanks everyone
Posted 7/10/2016 3:28 AM (GMT 0)
Welcome back, Boba!

I'm sorry you didn't get treated properly the first time around.
Did you not go to a LLMD then?


I don't think the Igenex test is covered by insurance. It takes about 3 weeks for results.

But, I'm wondering why you are testing? You had a tick bite, rash along with symptoms. You really don't need a test.

No, it is not too late for you to make a full recovery. But, please see a LLMD this time, okay?

I suggest you read through the "New to Lyme, Start Here!" thread (if you haven't already)

...and get on a good probiotic for your gut health....and start building on a good detox regimen.
Posted 7/10/2016 4:07 PM (GMT 0)
www.lymediseaseassociation.org/

Go to Doctors and on the click down list - click on Search Our Doctor Referral System.

You will have to register and you get 3 searches per email address.

Just a cursory look and I think you may have to travel to Ohio or Indiana. I hope I am wrong.
Posted 7/10/2016 4:11 PM (GMT 0)
I'm so sorry that you didn't get the right treatments, this is why we always suggest finding a LLMD that is well experienced with many of their patients having healed well. You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And a new resourcewww.LymeDoc.org


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