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Posted 7/11/2016 1:55 AM (GMT 0)
I have not been feeling well and thought I had the flu but test were negative. I asked the doctor to check for Lyme and sure enough I was positive. He does not know how to treat but I did get 21 days of doxy and see a infectious disease Doctor Thursday. My question is will he be able to treat this or should I go further???
Posted 7/11/2016 2:08 AM (GMT 0)
Just want to welcome you to the forum. I would say this will not be enough. One of the moderators will be along shortly to officially welcome you and explain next steps and what you need to know. They will undoubtedly tell you to visit the "new to Lyme " section at the top of the forum postings.

Sorry you are here, but a ton of great people and resources
Posted 7/11/2016 2:15 AM (GMT 0)
Hello Rebelduck,

You need to go further. 21 days of doxy (and only doxy) is not enough.

Also it is highly likely the ID doctor will not have the necessary cache of knowledge needed to successfully treat lyme. In contrast there's a better chance a LLMD will.

Please locate one and schedule an appointment with that LLMD.

Thanks.
Posted 7/11/2016 2:15 AM (GMT 0)
Thank you I skimmed it on my phone and plane to read it on larger screen tomorrow. Lots of good info. If anyone knows of a good doctor in Mississippi please PM me the info I am open to going out of state of need be. Thanks in advance
Posted 7/11/2016 2:27 AM (GMT 0)
To get a better response to the doctor request start a new post entitled, "Looking for LLMD in __________"

The moderators will have a couple other resources for you as well.

Also make sure your email is activated in your profile so people can respond as we cannot post doctors names on the forum for obvious or not so obvious reasons.
Posted 7/11/2016 2:30 AM (GMT 0)
Hi Rebel Duck!-

Welcome to our community. I am sorry to hear that you have Lyme disease, but at least you now know what you are dealing with.

Please take a look at the "New to Lyme?.... Start Here! " thread at the top of this forum. It is full of a lot of great information.You will find information about probiotics, detoxing, co - infections, and so much more.

Since you are taking Doxy, you should also be taking a probiotic. You can also start detoxing. Detoxing is what a lot of us do to help the body rid the toxins from the Lyme bacteria being killed off.

I personally don't think that you will get much help from an infectious disease doctor. You will probably be told that the 21 days of Doxy will be enough. Which is not the case for a lot of people.

You might want to look into a Lyme Literate Medical Doctor (LLMD) or a (LLNP) .
Depending on your symptoms and how long you might have gone being misdiagnosed.

I hope you stay around and ask any question you might have. There are a lot of friendly and knowledgeable people here. We all try our best to help each other.

Best Wishes!
Posted 7/11/2016 3:10 AM (GMT 0)
Welcome to the forum. Look for a LLMD. Get ready for the ride of your life.
Posted 7/11/2016 3:13 AM (GMT 0)
Oh Rebel Duck I am so very sorry you have lyme. The members have given you some great advice and I agree. First your dosage of doxy probably is insufficient. And I also think an infectious disease doctor is not trained in treating lyme sufficiently.

A lyme literate medical doctor is what you really want.

Here are some resources for finding a lyme literate medical doctor.

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month per email address. You have to register first. Here is the link:
http://module.lymediseaseassociation.org/referral/LogIn.php?setcookie=yes

ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And if you enable your email address anyone near Mississippi can email you a name of a doctor.

Go to My Profile
Go to Edit Profile
Enter your email address
Bull’s eye the Show My Email Address
Click Submit at the bottom of the page

And I have only one name on my list for Mississippi, and I do not know anything about this doctor so you will need to do your own inquiry of him. But this will also give you other states that are near you.

/sites.google.com/site/lymedoctors/mississippi

Good luck and if you need anything, please do not hesitate to ask. Great bunch of helpful people here.
Posted 7/11/2016 7:53 AM (GMT 0)
Hi Rebel Duck - welcome!

PeteZa has given you some good resources to find a LLMD.

If you'd like forum members recommendations, start a new thread titled: "Looking for LLMD in/near ____" and fill in the blank.

As others have said - 21 days of doxy is insufficient to treat you effectively.

So, please follow up with a LLMD.
Posted 7/11/2016 1:36 PM (GMT 0)
Welcome to the forum.
Posted 7/11/2016 2:01 PM (GMT 0)
Hi Rebel Duck!!
Welcome to our community! I'm so glad you found us.

As the others have said, you need to find a LLMD, not someone that has proclaimed themselves to be knowledgeable, but one that actually follows ILADS (International Lyme and Associated Diseases) guidelines. Here are a few more resources other than the ones already listed:

You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​

You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.

And a new resourcewww.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf


I would encourage you to go ahead and use the Doxy that you got, as it will at least start your treatment, but you will also need to be taking probiotics and need to detox. We do have a good resource for detoxing suggestions in the "New to Lyme? Start here!" thread, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.
Posted 7/11/2016 2:31 PM (GMT 0)
I don't have any information to add, but wanted to welcome you to our forum. I am sorry you have Lyme and hope that you found it early. We are here to help so don't hesitate to ask any questions you might have!
Posted 7/12/2016 7:44 AM (GMT 0)
Congratuadolences. ..dont trust the id doc ...tell him you didnt do the doxy see if he will give you your 30 days rocephin. ..seek llmd ..add herbs do it all ..dont get zombiefied
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