Hello all, This is my first post here! I was recently diagnosed with Late Stage Lyme Disease. I am a 28 year old wife and mother to three little ones - 1, 3, and 5. I have been brought to death's doorstep and barely made it out thanks to this disease, but am grateful to have finally found a diagnosis. However, I am extremely overwhelmed with where to start. I am seeing a LLMD, my insurance actually doesn't even know about
my Lyme diagnosis and I intend to keep it that way, that are useless and leave me in tears each time I see them. My LLMD started me on Samento and Banderol. I have slowly worked my way up to 30 drops twice a day. The herexing wasn't as bad as anticipated but then again, I have gotten so used to living this way I don' really know any other way to feel.
My LLMD now wants me to stay on the S&B, while taking Boluoke Lumbrokinase twice a day and he also wanted to start me on heavy antiobiotics...which I asked for an alternative. Everything I've read about
antiobiotics and Lyme is that your symptoms either a) come back soon after starting them or b) your symptoms come out during the antiobiotics and STAY OUT. So instead of antibiotics he prescribed me A-Bab and A-bart - both 1-5 drops twice daily.
I can't seem to find much info on A-Bart or A-Bab. What is it for? Does anyone have experience with it? I tested positive Western Blot for Lyme, along with SEVERAL co-infections, including Babesia, Barotnella, Mycoplasma, Boreelia...etc. My symptoms have been all over the board, from severe heart issues to severe nuerological and cognitive issues to EVERYTHING in between. I could be the poster child for Late Stage Lyme.
So...as a stay at home mom to three little ones, what's my best plan of action? I want/need to get better, but also need to make my moves count. Please forgive my ignorance during this post, again, I'm so new to this I don't really know the correct terms. I've been drinking loads of water, taking a heavy probiotic and daily supplements to build my immune system, dry brushing and detox baths several times a week, and trying to figure out the Lyme (and serious hypoglycemia) diet. Any advice whatsoever would be so appreciated. I am at the point where I am so scared to travel down the path of getting better that I wonder if it would be better to just continue functioning where I'm at now? Also, I live in Los Angeles, but was infected in New Jersey, diagnosis took albout 14 years.
Thanks for making it through this jumbled post! XO
Post Edited (JillianH) : 7/19/2016 7:32:51 PM (GMT-6)