Only some positive bands

Hi everyone. I'm fairly new to this journey and I have questions. So, I have been wondering for a while if I had lyme disease. It all started one day in March of this year when I woke with a stiff neck, lightheaded, felt out of my body, low grade fever, heart palpitations, times where I'd shoot up out of bed with my heart pounding, my head was constantly throbbing. I'm sure there's more but those are the main ones. Anyways, ive had heart palpitations for a couple of years now but my doctors just kept saying it was anxiety. I finally convinced them to do an echocardiogram and stress test for my heart in may and June and it was found that I have mild hypokinesia and mild tricuspid regurgitation but nothing significant according to them. I also had a brain mri and it found a maxillary retention cyst and a possible partial aqueduct stenosis that I have to have a neurosurgeon look at to rule it out. My mri also said it appears that I had a possible infection or hemmorage at one point. My question is, could these problems all be because of lyme? In July, I convinced my doctors to order a western blot test and 3 bands were positive...23 kda, 66, and 93 kdao. Since I didn't have enough bands positive,,they said I don't have lyme disease. However, my local health food store says I do based off those results and now I'm on an herbal lyme kill. I guess I'm looking for advice, experiences, similar stories, and is,my health food store correct? Sorry this was longer! Glad to meet others like myself! Also, I believe I have pots syndrome because of lyme. My heart rate shoots up 30 bpm or more when I stand. Btw, I'm 28, female from Illinois.

Post Edited (PaulnJordansmommy2) : 7/21/2016 3:38:58 PM (GMT-6)

I don't remember being bitten by a tick and I see naturalists at my health food store. I had the test at my regular doctors office but they won't do anything about it since I don't meet cdc criteria. I do live by the woods and I've found numerous ticks on my cat.

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Post Edited (Krimpet) : 7/21/2016 4:11:24 PM (GMT-6)

Thanks and hi! Yes, this family owned health food store is amazing! The guy who made my lyme kill is so smart, it's crazy! He will do consults and will sit down and Go through your tests results/ blood work and say if something is good or not and if he can't remember something off the top of his head, he has great medical book that says exactly what something could mean....Anyways, I know only a few ingredients that I can remember off the top of my head...cats claw, stevie leaf extract. I guess I should have asked but I didn't want to seem like I was trying to steal his herbal kill If that makes sense..lol. He also made me CNS support formula and I'm not sure what's all in that. I do know the lyme kill protocol is awful to swallow and after I use this bottle up, I'm getting a stronger protocol. I guess there are a lot of people who have lyme but are turned away by their doctors because they don't have enough positive bands...sad really. That's why I'm glad I have someone who gets me and knows I'm not crazy and just say you have anxiety . I'm so glad I got a copy of every test I've had from my doctors office. I wouldn't have known I had those positive bands if I wasn't persistent in getting copies. As soon as I showed my herbalist, he was like um yes band 23 is definitely lyme specific. He did mention later down the road treating me for co-infections but right now, we are starting the lyme kill protocol at about a level 5. I feel horrible after I take it so I assume it works. Yes, I do have cats unfortunately which I found ticks on. ....essential oils, I use clove oil and frankenscence so far.

Since you like and trust this herbalist, I think you should stay there. It is okay to ask what herbs are in the concoction, just tell him you are curious. Tell him you just like to know what you are taking and that you have no desire to leave him or his "lyme kill."

One thing I would ask about is detoxing. Does he think you need to detox?

Since he is in a health food store, I bet you eat properly and he is monitoring that also. So, that is another plus.

The only other thing I would do is make a journal. You need to keep track of everything you are taking and how you feel.

Just in case you move on to another doctor down the road, it would advisable to have a journal of what you have done.

You are fortunate to have this herbalist that is knowledgeable in lyme.

I forgot to mention he also gave me andrographis. And the lady there gave me hypothalamus for fast heart rate but I think I'm going back today to get something different because it isn't working well as I want it to. Yes, I use detox like Epsom salt with hydrogen peroxide. I also use apple cider vinegar. They told me to definitely stay away from wheat but I haven't been a to do that :/

Traveler, he saw the 23 kda and immediately flipped out and said, yes you definitely have lyme!. He had suspected it for a few weeks but of course we weren't sure until we got those results from my doctors office.

When you are working WITH and TRUST your healer it is awesome and worth every penny!

It will not hurt you to try out his remedies and see how you do. You can always change.

Many here have been on one course and changed or had one doctor and then changed.

Nothing bad in that at all!

Thanks. I actually just had a lyme kill made today for them. We are just going to assume my kids have it as well. So, I was told to lay off my lyme kill for a day and a half because I'm very lightheaded and dizzy. The humidity here sure isn't helping it either. Also, I was wrong on the level I have. I'm on level 1 lyme kill and I already feel like crap. Here are my ingredients: cats claw (wildcrafted) , astragalus, stevia (fresh,whole),Mullaca, queen Anne's lace, sweet annie, and cordyceps.

I try detox methods like being out in the heat then soaking in water with Epsom salt and hydrogen peroxide. I take vitamins of course too and do apple cider vinegar but my neck and head just were killing me so I have to lay off the kill for a bit. Blah lol

We just find a way. Most of us have been sick for years. Maybe they caught yours early. The more chronic forms are so difficult to treat. There's just a lot involved.

MA, I'm thinking mine has got to be chronic and it just made its appearance finally in March. I'm so done with it but I keep telling myself that I need to be here for my kids. That's all that really keeps me going.

That's what kept me going all those years I went undiagnosed and continued to just decline. We have to find reasons when we run out of reasons for us. This is the most ill most of us have ever been.

As others are saying, hang in there!! We are here for you as much as we can be.