need help with test results

I doubt if that is going to be 'good enough' for the Rheumatologist.


Lyme Literate Dr.'s should be doing a clinical diagnosis - and testing is used as a 'back-up'.
But, if you want to try for a better result, then get a Lyme WB through Igenex Lab. The Igm and IgG costs $210 for both.

Are you going to be seeing a Lyme Literate Dr.?

Testing for co-s is even more unreliable. Some people still like to have it done to see what shows up.
If you get a negative result...it doesn't mean anything...but if you get a positive...then you know for sure that's what you have.

Many of us just treat the co-infections based on symptoms, reaction to certain treatments.
It is up to you.

Considering you have a high score on the Lyme AB (it's an antibody test, and Lyme suppresses the immune function, so this is significant), and symptoms that correspond with having a Lyme infection, you really need to be seen by a LLMD - someone that really does understand not only those tests and how faulty they are, but that Lyme is a clinical diagnosis. Even the CDC says it's a clinical diagnosis and testing is supposed to, hopefully back up the diagnosis (although that's about all they get right) :

"Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks. Laboratory testing is helpful if used correctly and performed with validated methods."
/www.cdc.gov/lyme/

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And a new resourcewww.LymeDoc.org


​ You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf

Let me know if you don't get my email!!