JSlag -
I know the feeling of complete despair. I, too, told myself that a wheelchair meant I lost. In retrospect, it was only a part of the process. The w.c. will allow you to spend your energy elsewhere more productive. It is a support system. Ask your kids to help decorate it, name it, take turns going for a ride in it.
Know that this despair is also a phase, a period, a moment of the pathogen getting ahold of your brain. You CAN keep going. You must. Your children need you.
Right now, you need them too and it's temporary but it's ok to lean on them a little. Let them know you are a warrior in a battle and you need them to believe in you (are there any good stories they know for comparison - like a Jedi fighter or ninja warriors or Pokemon fighting evil forces, etc...?) have them help you make up your own.
Include them, let them know why you are struggling and that it is just part of getting better so that they aren't scared or confused. But also let them know of ways they can help you - so they feel like they are doing something good - this might help distract them, give them an outlet and might actually help you!
You and your husband need to communicate as much as possible. Tell him exactly what you need so that he knows and also doesn't feel so helpless. And ask him what he needs from you that you can manage. Remind each other that this is ONLY WHAT IS HAPPENING TODAY. The future is NOT this. Your whole future is ahead of you but this is a detour you're on and you need each other.
Please invite him here to read and understand everything he can about
Lyme & co. There are good support groups out there for spouses. Allow him space to figure this out in his own way and guide him when you can.
You were very smart to post - use this lifeline.
-p
Post Edited (Pirouette) : 7/27/2016 6:28:12 PM (GMT-6)