Is brain blood flow relevant to Lyme?

After seeing the neurologist my main Dr. wanted me to see, and getting the brain mri done I thought she was done with me. Her final comment after looking at the images that she saw nothing but a huge glob in one of my sinuses and saying she "wouldn't rule out Alzheimer D., was I don't think I need to see you again.

Then a couple of days ago her office woke me early in the morning to tell me she wants permission to run some kind of test to measure my blood flow to the brain. Half asleep and agitated I said ok.

This morning they called again, with the appointment. I deleted the message and did not call them.
The first Dr.(?) that saw me first go around, surprised me by being Lyme sympathetic and just a little bit knowledgeable. Not so this second Dr., which is the equivalent to #1 in that office. She won't even let me open my mouth about it.

I was so over being experimented on and poked all the years they wanted to prove/disprove their own Fibro diagnosis.

I am resistant...ok I'm not going to be compliant to this line of tests unless there is a possibility it is going to indicate bacterial infections.

Sorry the type of test didn't register on my brain that morning. I see on the web there are 2 kinds. One they run a camera line (I think) through your groin up, and the other it's goo probes stuck on your neck and head arteries and they measure flow with cuffs on various extremities.

I just want them to leave me alone if they can't really help. Is this somehow relevant to Lyme and Co? I do have neurolyme.

Denikeef said it very well. If they are not lyme sympathetic you are wasting your money. Unless you like putting their children through law school....

Sorry.

I also say "Go with your gut reaction!!" It is more than likely the best.

Diagnostic may help ..but if you know you know ..lyme does build amlyoid plaque to protect brain.thus alzheimers. ..get a hard copy of your mri..this should give you all the info you need ..it will likely say hypoperfusion of t1 and t2 with white matter ..not enough to be ms ..and they will say its normal aging (85 yo) but it is lyme brain...or in my case toxo,bart ,lyme brain..dont do radioactive dye ...they just did this on my friends daughrer for juvinile arthritis ...frigging archaic ducs may use leaches still

I finally told them today. That office was calling me every morning, waking me up, and twice today. I had been letting the machine answer it since the initial call.

I tried to explain to the woman that I didn't really want to be over-using the medicaid system for tests that I'd probably done before over the years, and especially if the test wasn't being done to look for evidence of Lyme D. or damage. She said she was pretty sure I hadn't done this Cartoid Doppler, which is probably true, but I think I deserve an explanation from them what they are looking for and explain the test to me in detail before just calling me up and saying "we want you....your test date is..."

bluelyme your comment makes me feel guilty, since she countered that plaque is what they were looking for, that they were trying to prevent me from having a stroke.

They have my brain contrast mri, they didn't see any questionable white areas they couldn't explain.


I will TRY once again to bring my basic Dr. into this. Maybe since I am done trying to get more abx from him, he will start listening again. The man used to spend forever talking to me until he was done treating the current RMSF (in his mind) and WOULD not discuss my untreated chronic lyme.


Maybe it will impress him that I have been slowly starting to feel/do better. My faithfully drinking lemon water, dry skin brushing and trying to baby myself through stress crisis here at home have helped. I've been erratic on my foot soaks, Mother ACV and binding caps, but been better about taking my Ester-C, Calcium Magnesium and Vit. D.

My pain level is down somewhat, which means I'm taking less pain pills, and I'm not having high enough body temps to feel like I have the flu. Not been over 100 in some weeks.

I still screw up mentally in small ways everyday, probably always will, but the scary confusion and lack of comprehension isn't active now. Plus I've been able to get into some pretty heavy conversations on fb that I'm a little proud of.

I don't think I've mentioned that I discovered last year as a side benefit of losing circulation in my legs is I didn't have to shave them anymore. Well, the dry skin brushing has brought enough circulation back that I'm getting some leg hair fuzz. The real test will be this Winter if I can keep my feet warmed instead of walking around on two unfeeling icicles.