Feeling really blue and weepy normal?

Today is day 13 of Doxcy. Began it 11 days after bite. Was doing 'ok'. Felt really sick last week. Feel better and a bit stronger this week but tonight feel really blue and keep crying. I think I'm upset because we had to cancel our family vacation and I had to cancel going to visit my 80 year old mom. Feel like I let my family down and the truth is they don't really get this. My son, who is a great kid said "Mom this is the worst summer ever I was looking forward to vacation can't you just get on a plane you seem fine." He is bored and lonely and our apartment is small and NYC is hot. I get it but I don't know what to do. I seem to feel more anxious at night overall. NOrmal? I can't imagine feeling like this for two more weeks or longer. How do you guys do this? My doctor also said I can't sit outside at all on Doxcy. Is that an exaggeration?

How do I do this? I can honestly tell you that I cried every. single. day. for almost a year. But, once I cried, I felt better after..it was a release for me.

It DOES get better...really. Hang in there...there will be ups and downs.. a lot of downs...just keep coming here..we'll support you.

..and be kind to yourself...I used to tell myself "It's going to get better. I will be okay" over and over again..


Hugs to you...

Huddie, you have every right to feel sad and you need to cry. And in all honesty, none of this is fair. But you do learn to live with it and to even enjoy some days. Lyme teaches you to appreciate the good things! You get a new appreciation for life.

You asked about doxy. I don't do abx. and perhaps someone else can address this with specifics, but I read that sometimes Drs. will switch out another abx that doesn't have the issues with the sun.

One other thing, I know it is really hard but please don't beat yourself up over letting your family down.
You had no control over getting Lyme. If you did you wouldn't have it!

It is really hard for others to understand what we are going through. There is not a lot of information out there about it and often we just don't look that sick. If you gave them some information on Lyme would they read it? You could even have them come here and read through some of the posts.

Hoping you will feel better soon.

I agree with Denikeef - if you do have problems with the sun and doxy - you can switch to another antibiotic for the rest of summer.

That is what I had to do.

Sorry you are feeling so blue, Huddie, and I hope you feel better soon. You are lucky to have a great son. I think it's especially hard for people to understand others' illnesses when the ones who are sick look okay.

Huddie said...
Thank you very much for just listening. I appreciate that. How are you now? You were sick for an entire year? Wow that is a lot. Are you back to normal? I know everyone is different but this is so murky. I'm curious to here if people go back to their normal lives or is the new normal a chronic state of 'something'. I'm also now afraid to go outside when we are upstate - like freaked out over ticks and constantly checking. I hope that goes away. Thanks again for being there, appreciate that.

I am somewhat better....treatment has resolved some of my symptoms, but still have a ways to go.

I had symptoms for 15 months before I was diagnosed. I have a long list of symptoms - thankfully some are no longer with me.

Nope, not back to normal yet.

PeteZa said...
A parasol!! What a fun thing to look for. The perfect sun parasol.

How do we make it. We make lemonade out of lemons!!

Yep we cry and get that stuff over, done with and gone!

Then we get on with living. We make each day count and each word we say have meaning.

We are not beaten, we are warriors.

I personally found that staying busy kept my mind off my owies. If I sat around I felt more pain than if I was doing something, anything.

But... I did have a month of depression and that was difficult. I opted to do everything but drugs. I hung in there and made it over that bridge.

Look at this as a journey and there will be ruts in the road and flat tires. But there will be a new appreciation for life and living. A new appreciation for real friends and words that are said to anyone.

It is a journey and we all have a different flight plan.

Yours will be fine. Just hang in there and take baby steps.

hugs of comfort

PeteZa, I love your attitude! I'm new to this journey and I have no idea where it will take me, but I decided just this morning to keep hope alive and stay strong. I know my life will change dramatically within the next few months, for good and bad, and I am prepared for battle ;)

Huddie you live in NYC? Have you ever thought about ozone therapy? I know there is a fantastic dr in NY who does it. Many people come from all over to see him. I can't remember his name but if I do, I will email you. I used to do IV ozone and honestly I did not know the enormous difference it made for me until I stopped. I stopped around mid-June. I just did it for 5 weeks and it made such a significant difference. Granted all therapies aren't for everyone, but I would offer to you to at least research it. I was like you regarding the energy (none) until I started the ozone. Anyway, I did that in FL and I have found a doctor near me at home that does it, so I anticipate at least doing it once a week until I don't need it anymore. If I hadn't found this doc I was coming to NY 😊.

I did IV and sauna ozone. I believe that I benefited the most from the IV. I saw many people get better. What I like is that it is individualized with what your body can handle. Personally for me, I stayed on a low dose of ozone and saw benefits. When I tried to go higher, it was too much for my body. Also you can determine how many times a week you can handle. I started with 5days a week...too much. Went to 3....still too much. Then down to 2x a week. That was much better. I think also it gets better as the toxin levels come down.

I haven't done abx. I'm on herbs. I was on herbs before I started ozone but not the protocol I'm doing now. As far as herxing, what I found is that I felt great after ozone, but later on the evening I would sometimes be a little dizzy. It got better when I reduced the days and the amount of ozone.

Typically doctors will say you need ozone 2-3x a week, unless you are doing a condensed protocol. But again you have to do what you feel. So for me, restarting with 1 day a week, I think is best.

Is it Howard Robbins?

Oh good I found him. Why aren't we allowed to name doctors? Why is this disease so top secret?

This is the most insane thing I have ever heard. WHY? Why is the state denying it exists. It is out in plain sight, in abundance. I watched a trailer for Under Our Skin and I can't watch it right now. Sends me into full anxiety. I believe I saw it a few years ago, if it's the one I am thinking of a doctor with last name that begins with H is in it? I know two scientists who study ticks/Lyme and they were in it too. I was watching with a different set of eyes back then. Thanks for the update.

Thanks for the update. I learn a lot from hearing others stories. So you think you have had it for five years? What will the protocol do? Was the tick attached to you and the ER still did nothing? That is crazy. I understand , I would believe them too. They are supposed to be experts and who doesn't want to hear that they are fine. I now wonder if my son has it. When I am a bit more mobile (or mobile at all) I will then focus on getting him tested. Please keep us posted on how you are and what you do to heal.

Hope you feel better soon. How do you feel now? Do the bad feelings come and go, meaning, do you have normal days and then bad days?