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Update on wife 2 weeks into Lyme treatment with Doxy

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Posted 8/8/2016 11:50 PM (GMT 0)
So wife was diagnosed with Lyme after getting symptoms of tingling all over the body about 5 weeks ago. No rash symptoms just started. Talked to LLMD about me giving it to her and he said research is inconclusive that you can pass it sexually but I'm almost 100% sure she got it from me ;o( Horrible having to live with yourself with your own diseases let alone giving it to your loved ones.

Her tingling and numbness has increased to also include sharp, shooting pains. Her neck has gone from slightly stiff to very bad where she can barely turn her head. Her lymph nodes have swelled up particularly behind her knees and also in her feet.

She also has some aches in the hip joint area on her right side and general fatigue. Her arms feel particularly heavy and she feels like she has a slight fever (even though she doesn't).

She's on 100mg Doxy 2x/day. She has an appt with an LLMD on Friday to have her first consultation and figure out what needs to be done.

Any thoughts, advice, etc. would be helpful like how to help her symptoms alleviate some particularly the neck. Thanks!
Posted 8/9/2016 12:12 AM (GMT 0)
Is she detoxing? If so, she needs to do more, if not, she needs to start.

200 mgs of Doxy is pretty low, but the LLMD should address that when he sees her on Friday.

The neck pain sure sounds like the meningitis type of symptoms that Lyme can produce. There's really not much that I have found that alleviates that, although heat and possibly gentle massage may be of a little benefit.

Heat may help her hip joints, but be sure to try putting the heat on her low back, down by her hips too if directly on the hip doesn't seem to help.

Don't forget sometimes it's inflammation that can cause the pain, so ice may be better. You'll have to try both to see what works.

And please don't beat yourself up!! The thing is, Lyme is everywhere and she could have gotten it all on her own from a mosquito bite. At this point there's just no way to know - and beating yourself up will only add stress to your body and mind, which will give the infections the upper hand if it goes too far. So please, allow yourself to stop blaming you for something that you literally not only had no control over, but are likely not responsible for!!
Posted 8/9/2016 2:45 AM (GMT 0)
Artermix we'll see what the LLMD says on Friday. She's not a very experienced LLMD but under the tutelage of my LLMD who's very experienced. I would imagine they'll go with the more popular approaches from Dr. Horowitz and the like. My original LLMD never put me on Doxy but started me on Cefdinir, Zithro and Mepron for Babs and Lyme. I noticed Dr. Horowitz when treating Darryl Hall also used Cefdinir. It really depends on the experience of the doctor with their patients and what's worked well overall for them.
Posted 8/9/2016 3:02 AM (GMT 0)
Rikky, my heart feels for you. For the past year I have been so afraid my husband was going to say he didn't feel well and I knew it would be my fault.

We just do protected sex since the minute I found out I have lyme. And no french kissing..... but we are still intimate, just in more special ways.

His hugs are the best in the world and I feel him loving me.
Posted 8/9/2016 5:10 AM (GMT 0)
Good luck friday rikky...i worry if my girl is not willing to treat am i reinfecting everytime i kiss her ? Am i infecting her ...this is aweful ..how bad must her symptoms get for her to look at the possibility. ..she is like i dont wanna feed it any bad mojo ..heck she is treating a infected wisdom tooth naturally and not very well at that ...for the neck and lymph .there isna nice bee venom cream from apitronix called venex ,dancing bee acres has it ...inwould try mag creme too...how is ¥our son?
Posted 8/9/2016 5:34 AM (GMT 0)
I have the stiff neck and it is a killer. I have just started Chinese herbals so it's too soon to say they are working but having someone massage my neck then put Bengay on it relieves it temporarily. This nuero lyme is the worst. Nothing worse than a constant stiff neck and head pressure :( on top of that heart palpitations. Ughhh go away lyme. We hate you!!!!
Posted 8/9/2016 12:45 PM (GMT 0)
Sorry to hear about all of your wife's herxing!

Red Root is great for help with swollen lymph nodes (which might be exacerbating her stiff neck)

Japanese Knotweed is a potent anti-inflammatory that can help all around.

Has she started detoxing?

Please let us know how the appointment goes and best wishes for her healing!
Posted 8/9/2016 10:06 PM (GMT 0)
Thanks everyone will keep you posted. Her biggest issue at the moment is massive exhaustion like she needs to lie down all the time and nothing perks up her energy. She also developed a mild headache a few days ago.

I don't want to add anything outside detox methods until she sees her LLMD and has a plan. Right now she's doing lemon water and dry skin brushing. I'm going to get her to start taking some short epsom salt baths to see if that helps.
Posted 8/9/2016 11:06 PM (GMT 0)
Good thinking, Rikky!! And thank you for keep us posted on how she's doing.

But, how are YOU doing? This has to be adding stress to your days.
Posted 8/9/2016 11:22 PM (GMT 0)
I hope her appointment goes well. Please keep us posted.
Posted 8/9/2016 11:26 PM (GMT 0)
Traveler thanks for asking. I started Bactrim/Biaxin/Plaquenil daily about 4-5 weeks ago. Two weeks ago the chest pains were constant and unbearable so my LLMD has me pulsing 4 days on and 3 days off. I know you aren't supposed to do this when dealing with Bart (which we believe is partly responsible) but my body couldn't handle the daily meds.

Over the last few days I have felt a bit better but I've had this pattern before only to have it change on a dime. Right now I can say I can function well and my head/chest issues are minimal. My arms which got real weak/numb early on are better the last few days. I'm hoping we're onto something with this medication mix. I also recently cleaned up my diet big time. Also started Shakeology and Green Vibrance daily maybe that's helping.

I didn't have much faith in the current medication since I was on Rifampin/Doxy for 4 months and didn't get consistent relief but maybe the Bactrim along with the Plaquenil is helping. I hope it continues because I don't have many combinations left that work well on Bart!
Posted 8/10/2016 2:35 AM (GMT 0)
"I know you aren't supposed to do this when dealing with Bart (which we believe is partly responsible) but my body couldn't handle the daily meds."

i'm not so sure...I am doing a pulsed Bart approach. I am finding I feel better overall this way.
I started pulsing a few months ago...after doing daily Rifampin with either mino or biaxin for several months.
I'm hoping that Dr. J. knows what he's doing...lol.
Posted 8/10/2016 7:49 PM (GMT 0)
Girlie i think i read that because of the quick replication of Bart you shouldn't pulse but that may be old wisdom. In any event I'm having a hard time getting through 4 consecutive days of my regimen but I'll continue on. I'm hoping (well praying really) that the chest issues will start abating at some point. It's been happening in full force since mid-Jan and while I've see some relief its been very minor.

If I knew what bug(s) were causing the chest issues and that all this pain and suffering for so long was actually leading to better days ahead I would be more optimistic but frankly I have no idea if I'm wasting my time on the different regimens and what I'm dealing with are flares and not making progress. Man this disease sucks.
Posted 8/10/2016 9:36 PM (GMT 0)
I'm so sorry you are struggling with this! Possible heart issues scares the pants off of me!

Even if a person shouldn't pulse, you weren't able to handle the treatments 7 days a week, so maybe you could look at this as only lowering your bacterial load (rather than curing it) in order to prepare your body for a better attack once it can handle it? Just a thought.

Hang in there!!! And I'm with you - this disease sucks!!!
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