(No Subject)

Hi!

I am trying to piece together the pieces of the puzzle of what happened to me. I didn't keep a journal, so therefore my memory is muddled. I am staring to keep one now.

I started taking Japanese knotweed, and cats claw in May 2016. 500mg capsules, as well as eleuthero tincture, 20 drops a day. I did herx for a couple weeks, but then I felt I was almost nearly cured for almost 2 months. June and July.

I then ran out of my herbs for about 2-3 weeks. I remained pretty well symptom free.

I decided that I would order the LB Tonic Protocol because I figured I could tolerate the other ones so this would be a more cost effective option. Stupidly I bought 2 bottles of it. And a teasel root tincture.

I started taking the pills slowly, and the teasel I took too much. My symtpoms came back, some new ones I have never had. I really stirred up the pot.

It hasn't settled yet. I still have been struggling, taking days off all herbs, then trying to start slowly again but I feel awful. I feel like I am getting heart palpitations and worse joint cracking even my head is cracking when I move it from side to side.

I don't know whether to keep trying with this stuff or not.

Should I just suck it up and try ordering the single Japanese knotweed, and cats claw? I am so fed up, the emotions from dealing with this is almost worse than the pain. Almost everyday I start having suicidal thoughts and thinking how can I live the rest of my life like this? I would never do anything to hurt myself, but I often envision things like assisted suicide for people with chronic illness. I feel so discouraged thinking I had turned a corner, now back to square one.

I don't know what else would even be an option for me, because I do not want to take antibiotics because I know I can't stomach them.

Any insight to my treatment plan would be much appreciated. Should I go with what was working in the past? Or try to push through? Or treat a coinfection. I just don't know, I thought I had maybe found a potential LLND in my area, but I don't think he is ILAD'S certified and he called it Lymes in an email, instead of lyme which made me question is validity.

Thanks.

 

If I were you I would go back to using what was working before.....and see how you feel.

I agree with Girlie! Stop everything. Detox like crazy and then start all over with the things that were working.

Horror story for sure...front row seats!

From what I understand (I could be wrong...), the biofilm periodically breaks open and releases new offspring bacteria...I think you can open biofilms easily. That is why there is so much warning and discussion about the safest way to do it. You don't want to do it too quickly because you can overwhelm your system trying to fight the new bacteria...I think you might be referring to the fact that its difficult for antibiotics to penetrate the biofilms.

Ya enzymes can bust biofilm ..i believe teasel lures them out ...consider rife bvt and ozone as alternatives

My understanding is that they often seed round bodies within the biofilm and that is the real problem. Virtually all microorganisms form persister cells which are wiped out by the immune system during acute infection. The biofilms containing persister cells really are a huge deal in my opinion and one of the things i think buhner took a light hand to. None of the herbs he's recommended besides chinese skullcap have actually been shown to affect borrelial biofilms and their effects on other biofilms do not necessarily extend to borrelia. They may do so, but it's something to keep in mind.

Anyways, my thoughts are that you stopped the initial treatment too soon. Buhners approach is not a direct assault on the infection for the most part. It's more of a "starving out" process that takes time. By counteracting the inflammation you can experience quick relief but that is no indication that the infection is gone. This process has to occur over a long time allowing the immune system to mop up the remaining rebels it occasionally stumbles upon over and over until the parasite load is so low it can handle them on its own. No one really knows how teasel works but there is some indication it might have some antiborrelial effects which could easily drive them out of their hiding places and stimulate adaptation and infection of other tissues. I've certainly made things worse with antimicrobials. It's frustrating, but if you're going to take something directly antimicrobial my opinion is that you want to stick it out long term. Starting and stopping, or taking for just a few weeks in my experience just spreads the infection. I have so many terrible symptoms i never used to have simply from taking berberine for a few weeks. I felt great while on it but the second i stopped all my old symptoms came back as well as new symptoms of meningitis, testicular pain, little melanoma-looking spots. Talk about terrifying.