maybe me too?

It looks like this gets asked alot, butI just found this forum.
here is my story timeline as best I can put together. I'm on Dr 3 or 4 and no better.
The beginning:

in 1996 in Basic training Ft. Lenardwood Mo. I had a tick in the groin area. it was there up to a week i pulled it off. not sure if the head was left.
1997 Ft Steward GA. had another tick on my back. he was huge been there awhile during a specialized combat school. buddy saw it and plucked it off. the head was left inside. he tried to dig it out, who knows..

1997- maybe had a rash ( unknown diagnosis was " heat rash" in groin area. ) it would get bigger and smaller but always there. looking at photos of Lyme disease e rashes i would say 99% visual match. light red area, with a darker red thin border. no real shape.

since then it is in one armpit or the other. it moves and goes away. but it is always somewhere.

Symptoms:
Chronic diarrhea 8 years +, seen countless doctors, no diagnosis. diet, colonoscopy, nothing. They found some bad pre cancer polyps and removed them, but they were not what was doing this.

Chronic fatigue- getting worse every year/ month. to the point now it is affecting my active lifestyle greatly.

joint pain all, some, none, it comes and goes

soles of feet pain in the morning

back pain. chronic.

fatty liver ( non alcoholic ) i don't drink more than a beer a week. If that.

loss of stamina, sex drive

night sweats,

always feel hot. Sweating

HI white cell count. for no known reason . been tested for about every cancer know to man

Lymph nodes swollen , different ones at different times. neck armpit, groin
Almost a stutter sometimes. words in my head do not always get translated to speech correctly.

forgetfulness,

mood swings

anxiety

light sensitivity

HEAT temperature sensitivity. The summers kill me now.

Ear pain. pressure loss of hearing on right side. Ear ruptured still constant ringing in right ear. Sometimes left

all sorts of dental issues ( infections, tooth removal )

weight gain

fatigue

weakness

HORRIBLE pain in groin. feels like testicle is in a vise when sitting for 1 hour in same position ( dr's say cyatic nerve pinch) this has gone on since 1997

abdominal pain

rib left side low. pain comes in cycles. not always as bad as the bad can be. At some points it is almost unbearable.











NEW STUFF.

Beginning in February 2016:
Severe pain in chest. Right under sternum. Radiates to the right arm and lower jaw. Sometimes it feels unbearable. It grows and comes in waves. Then can go away. Nothing helps

HIVES are back. All over body. Mostly on wear points. Belt. Feet. butt. Mostly in the evening. Night and morning fatigue is worse. Weight is gaining. Always feel hungry. Even after eating

feeling like choking. Like airway id blocked. Or the feeling you get if you take a large pill and don't wash it all the way down.

Total body pain. Everything hurts. Not all the time and not everything at the same time. But throughout a week. Everything will hurt.



********************************************************************

when on any short term antibiotic, i start to feel amazing. while on that. when it is gone. i gradually fall back into same feelings/ symptoms

general decline of health

Oncologist thinks possible Lupus. but not sure enough to make that decision. where testing shows ( near norm in many key factors )
Gastroenterology has no idea now that the colonoscopy was done. they ruled out Krohns, and other known diseases

Internist. no clue , they are guessing and costing me lots of money in tests

family dr. nothing

things i have had done. or checked
MRI on back ( said i had leukemia due to my marrow fluorescing)
Oncology, checked every known form of cancer
most STD's ( no risk of exposure though) just checking
samples of every fluid. stool, urine, blood looking for parasites , worms. anything
Nothing.

Testing Done:
Multiple stool samples. Urine
Tons of blood tests
tested for std's , aids. Immune symptom. Allergies. ( no scratch test )
Lyme disease test. ( not sure what one ) and inconclusive.


Things i have been exposed to:
foreign countries Bosnia, Egypt, Germany, hungry , Kosavo Austria, Jamaca, Grand cayman,

Surgeries. Knee 2001. appendix 1999 in an army tent in Bosnia
drank questionable water. multiple times, one later marked with gaurdia

Had a bald eagle rip my arm open with talons while medicating it. nasty puncture wound and flesh tear. they are dirty with unknown germs on feet,


I'm 40 with the heart of a 20 year old. and the body of a 70 year old. that is as best as i can describe it. With the loss of activities I enjoy with myself and my kids , depression is becoming an issue. I want to go do things. And I physically can't


Time Line as best as I can document.

1996 Tick bites in MO and GA
1999 Part A and B of the anthrax vaccine , Appendix Bosnia
2009 bald eagle talons through arm. Contaminated water
2010 the diarrhea , total body hives. Allergic to ibu and aspirin MRI on back. Found leukemia . Tested for every form of cancer. Mellingtine thought possible lupus. White cells at 1800. tooth issues
2011 infection pocket cut out of groin.
To present. Lymph nodes swollen odd rashes weight gain insomnia , night sweats, dry mouth
2013 diabetes . No family history.
2015 back to oncology. They wanted a colonoscopy. That was done in dec. next they suggested a bone marrow scan.

2016 chest pain. NEW. Sternum feels like it is busted and poking my spine. Radiates to right arm and jaw.
Hives, restriction in air way. Feels like choking almost.
Extreme fatigue,

I will check that out. I do not have a Lyme specific DR here locally that I know of.
I have been through the Lupus, MS, fibromyalgia, etc. testing B.S. and really just stopped going. until recently.

Hi Tired of being sick!
Welcome to our community!! I'm so glad you found us. My story is very similar to yours, although I was never healthy enough to make it into the military.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html Detoxing for us is an incredibly important part of our healing.

You can also send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will be happy to share the names I have.​

You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf

Welcome...two things regular docs cant test for parasites and read up on mycoplasma fermintans incognitus ...garth nicolsons daughter was real sick... also if you want a scientific confirmation just look at blood under the microscope at 1000x ...no lab or doc actually does this ......
you can order antibiotics online and self treat ...you can get on herbal regimine or use alt things like ozone or bvt ...the pain in testies is happening to me it is a nerve thing being damaged by the bugs ...thanks for serving ..do not expect help from va ..but do treat ..that you feel good on abx is a good sign..it took much tinadazole and alinia to clear my giardia btw .and healing gut from ascaris may take long time .gi docs and 33 others were useless