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Just having a really bad day :(

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Posted 8/25/2016 1:04 AM (GMT 0)
Hi everyone,

I just need to vent and know there are other people with Lyme disease right now, who can understand what I am going through.

Having a terrible day at work, people are so insensitive sometimes and there is no way for them to understand what I am going through. Do you ever feel annoyed with normal healthy people? I feel jealous and angry.

I forgot one of my coworkers names today, she seemed kind of taken a-back. There are a lot of employees where I work and it was a very busy day, but I can justify it all I want but it is probably due somewhat to Lyme.

Also for the past few days my neck and and shoulders have hurt so bad I can hardly turn my neck. I have tried Chiro and it is not helping, no pain killers have EVER helped me with Lyme. I haven't tried any other the heavy duty prescription stuff though, my doctor probably wouldn't' give it to me anyway.  

I am so beyond frustrated that I cannot get an LLMD in Canada, there are such limited options where I am just naturopaths and I have no had good experiences with them at all. I feel like a lot of are just money grabbers.

I'm still doing Buhner's herbs. One good thing is I don't have as much migrating joint pain (used to feel like Rheumatoid arthritis) as I used to before I started treatment. But now I am dealing with just feeling crummy a lot, (general malaise) muscle aches, sore neck, twitching, and joint cracking and popping.

I don't understand how I could be almost cured for 2 months and then have everything come back. I'm not doing anything differently than before now besides the smallest dose of teasel.

I still deal with doubting my diagnoses a lot as well, which really annoys me.

Anyway thanks for listening.

Posted 8/25/2016 2:10 AM (GMT 0)
evian - sorry you're going through a rough patch.
Is it time to up your doses of Buhner's herbs or are you already taking more than a couple drops?

Also have some information for you:
There is a support group in Penticton - that meets once a month. There is also a FB group for Penticton and they post about the meetings on there.

I also know someone who is starting a group in Vernon for the North Okanagan area in the fall..it will be an informal group. She used to be a facilitator for the Victoria Lyme Group.

Also...a LLND in Victoria is moving to Kelowna soon.

If you want the information on this LLND, just email me.
Posted 8/25/2016 2:13 AM (GMT 0)
Thank you so much Girlie! Wow! Funnily enough I might be moving to Penticton soon.

I have emailing an ND in summerland who actually seems legit, Jim Wilson recommended him. He treats with antibiotics though.

Thank you so much for the information I want to go to that support group. I will email you.
Posted 8/25/2016 2:53 AM (GMT 0)
evianangel I am sending cyber hugs.
Posted 8/25/2016 3:09 AM (GMT 0)
I'm trying to remember if you've just started Buhner's and are still on a very low dose?


Maybe it's a herx from the Teasel?

You are detoxing right?
Posted 8/25/2016 3:17 AM (GMT 0)
Daily pain is debilitating. It robs your soul. Add the brain fog and everything else, its like an abyss.

Been there. I work with some complete morons. Now that my brain works better, it easier to work with these people, staying one step ahead of the game, out smarting THEM again.

But Its hard to think when in pain. I constantly post so much about myofacial release methods (tight muscle and tendon release), I'm sure some are sick of it here. But thing is, it works. Chiros cracking joints does not do much for the surrounding tight muscles that now have chemical imbalance in them from infections, which creates this insane tension..

See if there is a chiro in your area who does muscle release (its not cracking joints at all), insurance can cover it sometimes if you have chiro care in your plan.

www.activerelease.com/

Goggle some of my posts here with "myofascial release" in the search.

"Skull/neck/ache / all body tension pain fascia release!" - title of a good one
Posted 8/25/2016 4:02 PM (GMT 0)
Thanks PeteZa! :)

Girlie- I've been on 6 capsules daily for about a month now.

Astroman - IVs been trying the Myofascial techniques with a ball on my back. It does help, for a little bit but it doesn't seem to be sticking. The llnd I might be going to see advertised that he dies Myofascial release teqniches. Something I might consider if I wasn't mt so broke.
Astroman are your symptoms mostly muscular? Are you on any kind of treatment right now?
Posted 8/25/2016 4:31 PM (GMT 0)
evianangel.....I'm so sorry you're having a bad time right now. I know how you feel, though. I see everyone's pictures on FB from their vacations, etc and I'm so angry and depressed that I didn't even do anything this summer except sleep and work.

Don't give up, though! I'm new to this and don't really have much advice - I'm pretty much a trainwreck most days, crying one minute, tired the next, headache the next, etc etc. Aside from a handful of really supportive coworkers and FB friends, I use this forum and watch animal videos to get me through work and then go home to my ridiculously happy dog...that's pretty much what is getting me through this. My closest friends don't even bother to call me anymore.
Posted 8/25/2016 6:21 PM (GMT 0)
I understand. My co workers were the same so this year, I'm taking as much time off as I need until I get better. So glad the big bosses understand.
Posted 8/25/2016 6:58 PM (GMT 0)
Evian angel,

Hang in there. I pretty much ditto what PMM said! No vacations, hearing about everyones great summer, etc... I have watched Cooper the golden retriever grow up in an hour one bored lyme day. Jimmy Kimmel videos make me laugh too. You will get past this - you have angel in your name! Sounds like bad days are common place for Lyme. We just have to remember the good days. Last week I woke up without any pain in my arms/hands and was so happy. I think the fact that you are working is very impressive. Give yourself more credit - sending prayers that tomorrow will be a better day.

Astro - thanks for those facial exercises. Love those.
Posted 8/26/2016 12:13 AM (GMT 0)
Hopefully things will be better for you tomorrow. When you forget names, just tell them, "Please forgive me, but my old age is seeping
through." Doesn't matter your real age (which I don't know), but hey it seems to work 😊

As far as your symptoms, could be that your immune system is just not quite there yet. And any amount of stress will throw the body in a tailspin.
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