Thought I'd let you guys know I'm alive and kicking

So I disappeared from the forum for quite a while. I've been preoccupied with other things unfortunately.

Some good news though. I switched to LDN for pain control and its working amazingly well.

I'm also traveling to DC to see a Lyme doc (whose name we all know). Actually, I'm seeing a doc in the practice but my understanding is that they use a kind of team approach so there's input from multiple people.

My son will be seen by one of the meds docs.

I know someone who is being treated there and she is happy. They use combos of prescription meds and herbals. She said that continue to evaluate different treatments.

I know some people have been concerned because there were reports of patients not getting thru. The practice has something like 20,000 patients. They have recently changed some things about how they interface with patients between visits so its expected that issue will go away.

Still having some gastro issues but for the most part I'm maintaining. I don't want to try any herbs right now because I think the herbs I was taking are what upset the balance in my gut.

So right now I'm in a one month wait state.

Kim

Glad you are doing ok. DS goes to where you are coming in DC. Feel free to email me if you have any questions. DS is making progress. It seems to be efficiently run but we don't have a lot of need for interaction between appointments but when we have it's worked fine. DS sees the pediatric person there. There is definitely plenty of leeway for the person you see to work in consultation with the head LLMD if need be.

Kim!! I'm so glad to hear from you!! And even happier to hear that you have found something that helps with your pain!!

My your one month wait be smooth and you continue to heal!!!

Parts of me are kinda jealous that you're getting to do this. haha. And the other parts of me are stoked for you! Glad you've found the LDN, and that it's working well. Most Lyme patients that I know, myself included, have had a hard time trying to get LDN to become bearable with the wide array of side effects. It just works for some, and doesn't for others.

Have fun in DC. Here's to healing!

PeteZa, yeah gastro sucks. I've always had nausea but this was extreme. It's why I think that the herbs I was taking for detox were the culprit.

I essentially was unable to eat for 2 months. Lost 24 pounds. I had it to lose but dealing with hunger when you can't stand the sight of food and can't sleep is nothing I would wish on my worst enemy.

MA10, I don't seem to have any side effects from the LDN. I know some people have sleep issues but for me no problems which is a miracle because I have allergic reactions to many meds.

Thanks, Kim