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Posted 9/1/2016 5:04 PM (GMT 0)
Never had this symptom until i started Sida acuta a couple weeks ago. Had to go off it because it was causing serious abdominal pains. Now a week of being off it this symptom is resurging and it's unbearable. What do you all do for this? This isn't like anxiety over weird symptoms. It's like straight up neurolyme madness. I feel my face burning slightly. My pleasure mode seems blunted. Like if i laugh or do anything that would normally trigger a little dopamine it feels like the transmission is sluggish and foggy. And the anxiety just comes out of no where. If anything wakes me up in the night I can't go back to sleep because of it. But I'm at a loss as to what to do without getting back on the Sida and blowing my abdominal organs apart. ughhhh
Posted 9/1/2016 5:11 PM (GMT 0)
Anxiety is horrible...sorry you've got this.

I had it bad prior to diagnosis for several weeks...it was a nightmare.


Now, I only get it first thing in the morning - for a couple of minutes...and now and then during the day.
Nothing I am doing seems to be triggering it.
Like you - comes out of nowhere.

This morning I woke with no anxiety...just recently switched to minocycline...hoping that is why, and it will be gone for good.

Did you try taking the sida with food? sandwich it?
Posted 9/1/2016 5:17 PM (GMT 0)
I had taken the Sida consistently 3-4 times a day and food surely intersected some of those. But i have issues that are triggering flank pain every time i try to treat. It even sensitized me to pain by innocuous things like Salvia miltiorrhiza and date fruits. The anxiety started as a herx from the Sida. Or sort of low lying symptom i never thought much of and then as i continued it cleared up as any herx. Every time i'd stop it'd come roaring back so i basically got to the point where i would be stuck taking Sida to calm the anxiety while my flank pain got worse. Finally i got off the Sida with no side effects until last night. I woke up in the middle of the night with neurological issues again. Somehow managed to go to sleep again and was fine when i woke until about an hour ago. This is by far the worse symptom of this disease i've had.
Posted 9/1/2016 6:45 PM (GMT 0)
Have you tried either Motherwort or Avena Sativa? No one in their right mind wants me to stop my avena sativa! LOL! I still have anxiety, and the avena sativa helps keep it in check.

When I was at my worst, even 3 doses of 10 mgs Xanax barely did a thing for me. I still had massive panic attacks anytime I was confronted with any activity or person - or if I got overwhelmed with neuro stimulation, like being in a noisy grocery store.
Posted 9/1/2016 7:12 PM (GMT 0)
Anxiety is one of my worst symptoms or as Psilociraptor says it's " straight up neurolyme madness". It doesn't happen every day but then it will flare and I'll have it for three or four days. It will wake me up 2 or 3 times a night. I'm not sure this is the best solution but my LLMD gave me Klonopin and when that wasn't working he gave me valium and xanax. I also have my medical marijuana card which helps some but mainly I just fall asleep.

I haven't tried the Avena Sativa and will research that. What is Sida? I tried to google it but didn't find anything.
Posted 9/1/2016 7:15 PM (GMT 0)
Sida is sida acuta, an herb that is used to treat Babesia and Bartonella for those that are following Buhner's protocols.
Posted 9/1/2016 7:15 PM (GMT 0)
Psil,

When I first got fibromyalgia symptoms (which the LLMD thinks was/is Lyme), I got severe anxiety. Never had it in my life. I also had an episode where my face was red and hot and tingled from face all the way down arms. I went to a neuro at a hospital right away. Neurologist told me I was fine and normal! Asked if I was depressed. Swear. I have turned down more Prozac Rx's - lol. I take low dose valium* as needed (and since Lyme it is almost every night). I also turn off computer at night, don't watch TV and do a meditation tape. It has really improved my sleep/anxiety. I also swear by essential oils. I put on gathering at night.

*I cannot tolerate Xanax or any other type of medicine. For whatever reason the Valium doesn't bother me. Of course, I don't want to be on a drug of any kind, the benefit outweighs the rest right now. Dr. Andrew Weil talks about valium helping people with fibro-anxiety. That is does something to calm the neurotransmitters that other anxiety/sleep aids do not. I never take it during the day, only at night if I am having insomnia.
Posted 9/1/2016 7:40 PM (GMT 0)
I still have large amounts of etizolam back from when I used to be about that life. I'm just freaking out cause it seems like half of what I take makes my "liver" pain worse. Someone recommended CBD which I have but I'm afraid it might make it worse. Traveler do regular oats from the grocery store work? I don't know much about using oats as a medicinal. Haven't tried motherwart but I can't drive to the health food store right now
Posted 9/1/2016 7:44 PM (GMT 0)
Psil, maybe give the Sida a break for awhile. I am one that could not take it so I put it aside and said I would try it later.

I never had to try it later and I did fine without it.

If you need to move on why not try Cryptolepis. I did fine with it being the only thing I used for Babs.

or Alchornea.

Nice thing about herbs is you have options.
Posted 9/1/2016 7:45 PM (GMT 0)
Psil,

Do you have an LLMD? I'm very similar to Laker (as we both mentioned above), when I get the anxiety it keeps me from falling asleep and wakes me up all through the night. My LLMD understands this fairly common lyme symptom. Perhaps you need something for these anxiety attacks. No sense suffering. In my opinion the only thing worse than the anxiety is the anxiety and no sleep.
Posted 9/1/2016 7:58 PM (GMT 0)
PeteZa I put the Sida down a week ago after abdominal pains. It took me several days to get off without relapsing but I finally managed. But here I am a week later relapsing. I won't be taking it again until I get my body in shape. I tolerated fairly well though at small doses. It was VERY effective for my neuro symptoms. If it weren't for the flank pain I would never have stopped. But cats claw and milk thistle have given me that do so it's something internal.

Huddie I do sort of. An LLLAc/LLND. I would gladly take something but I just can't get in contact soon enough lol. I don't want to spend another night awake at 3am with brain neuropathy and a sense of impending doom.
Posted 9/1/2016 8:01 PM (GMT 0)
Psil,

Can you get to a health food store? I take Yogi Bedtime tea and you can add valerian tincture to that. I also take Gaba, Kavinace and Calm PRT (all from Neuro Science). Those would be for a later date since you need to order them. They help regulate the neurotransmitters for sleep.
Posted 9/1/2016 8:30 PM (GMT 0)

Psilociraptor said...
I still have large amounts of etizolam back from when I used to be about that life. I'm just freaking out cause it seems like half of what I take makes my "liver" pain worse. Someone recommended CBD which I have but I'm afraid it might make it worse. Traveler do regular oats from the grocery store work? I don't know much about using oats as a medicinal. Haven't tried motherwart but I can't drive to the health food store right now

My liver would hurt any time it was congested, so I use an all natural liver/gall bladder flush that I put together at home as directed by my TCM doc when I was seeing her.

Whole oats won't be as effective although if you eat enough daily, they do help in a minor way.

Do you do any online shopping? Good brands of Avena sativa can be purchased online.
Posted 9/1/2016 8:45 PM (GMT 0)
Trav,

Just looked up Avena Sativa as I had never heard of it. What a magical supplement! Helps with anxiety, relaxation, libido and gives energy. Sounds like the holy grail.

What is your natural liver/gallbladder flush? Is it the ACV one? I did that one years ago. All those green pellets were shocking.
Posted 9/2/2016 1:27 PM (GMT 0)
Hey,
For the abdominal pain you can reduce it by taking extra virgin pine nut oil and slippery elm. The slippery elm helps line the stomach a bit and extra virgin pine nut oil is a known ulcer remedy and helps heal the gut and improve digestion. It works a charm though its a bit on the pricey side, I take it so I can take the herbs that give me stomach pains. When I stop it the ulcer slowly comes back for others its a cure and gets rid of it completely. Its an old russian remedy for abdominal issues. You can find it on Ebay.
Side acuta is a good herb but not the only one that is a herbal antibiotic. May be you can find something else. I had good luck with bee propolis and rifing. The combination got rid of headaches I was having. I had them from the first day the lyme bomb went off in my head and they are gone for good. My concentration and memory are still poor but headache gone. I have heard lithium oratate can help detox the brain I have just started taking it its quite an affordable one. Just some suggestions. I hope you find something that helps. Hang in there.
Posted 9/2/2016 1:31 PM (GMT 0)
Artangel,

Reading this post. Can you speak more about what works for headaches? You take bee propolis? Do you think Royal jelly works too? Thanks.
Posted 9/2/2016 2:33 PM (GMT 0)

Huddie said...
Trav,

Just looked up Avena Sativa as I had never heard of it. What a magical supplement! Helps with anxiety, relaxation, libido and gives energy. Sounds like the holy grail.

What is your natural liver/gallbladder flush? Is it the ACV one? I did that one years ago. All those green pellets were shocking.

Well, I can tel you, it's not the holy grail! Lol! But it does help my anxiety quite a bit. I know it's sold as something to help libido as well, and maybe it's because my hormones are messed up, but it hasn't helped me in that manner either.

But, what it does for my anxiety, nothing else has, as I don't feel drugged in any manner, yet I feel much more in control.

The liver detox I use also detoxes the gall bladder, but is safe for those like me that no longer have a gall bladder as well:

In the morning, at least 1/2 hour before any food:
Combine
1 cup fresh orange juice or a combination of orange and grapefruit with a bit of lemon or lime juice added in (2 tsps or so)

1 to 2 cloves of garlic

1 tablespoon of olive oil

Added fresh squeezed ginger juice is helpful, but not necessary (but I always added it in).

Drink down quickly - the garlic ruins the juice LOL! But it's highly effective for me.

Do this for 10 days straight - then take a 3 day break and do another round of 10 days, or until you have plenty of bile in your stools (they will be very dark green).

My remark to my doc when I was using this for the first time was it looked like one of the cows from across the street had come over and used the toilet!! LOL! Sorry for the visual!
Posted 9/2/2016 4:51 PM (GMT 0)
Psil, flank pain sounds like kidneys to me? I bet you have already gone through all the possibles. Had a urine test lately???

There are some nice foods that are good for kidney problems. Watermelon!! Basil!! Kidney Beans!!! Lots of foods I love to eat.

Did you try the warm compress? Dandelion tea?

It truly sucks when we have pain so badly that we have to stop treatment to get it under control. And, unidentifiable pain really stinks.

Hope today is a better day.
Posted 9/2/2016 5:00 PM (GMT 0)

ArtAngel said...
Hey,
For the abdominal pain you can reduce it by taking extra virgin pine nut oil and slippery elm. The slippery elm helps line the stomach a bit and extra virgin pine nut oil is a known ulcer remedy and helps heal the gut and improve digestion. It works a charm though its a bit on the pricey side, I take it so I can take the herbs that give me stomach pains. When I stop it the ulcer slowly comes back for others its a cure and gets rid of it completely. Its an old russian remedy for abdominal issues. You can find it on Ebay.
Side acuta is a good herb but not the only one that is a herbal antibiotic. May be you can find something else. I had good luck with bee propolis and rifing. The combination got rid of headaches I was having. I had them from the first day the lyme bomb went off in my head and they are gone for good. My concentration and memory are still poor but headache gone. I have heard lithium oratate can help detox the brain I have just started taking it its quite an affordable one. Just some suggestions. I hope you find something that helps. Hang in there.

Thing is it has nothing to do with Sida acuta. I've gotten it from cats claw, salvia miltiorrhiza and milk thistle as well. And i don't know that it's stomach related. Could very well be gallbladder or liver or maybe just in the nerves in my abdomen.

PeteZa - watermelon sounds really good :) I do have pain in the kidneys too, but alot was near my liver. So it's strange. Dandelion exacerbated it.



Anyways think the anxiety might be exacerbated by something in my diet. Seems to come on after eating certain things and i slept like a baby last night. So weird. Starting again right now though...
Posted 9/2/2016 5:45 PM (GMT 0)
I always think of Darryl Hall of Hall and Oates (maybe before your time?) and he said that when he got lyme he got an allergy to celery. Who gets an allergy to celery??? It is almost all water and considered a negative calorie food (you burn more calories chewing it than are being consumed).

It confirmed my thinking of why my pizza made me sick and so did coffee ice cream. I love Amy's Roasted Vegetable pizza and with lyme I got sick every time I ate it....

I honestly think that part of lyme is allergies to new things.
Posted 9/2/2016 9:07 PM (GMT 0)
Check this out i think proto1953 does the same as toxo.this guy is professor at stanford ...i use holy basil inositol and zannies have not offed myself yet .

https://youtu.be/m3x3TMdkGdQ


the sida could be hitting other protozoans ..i had gut pain till i got rid of giardia ..its in wells restaurant etc ..neem ,alinia and tinidazole ..lots ..only florished when i started herbs and it killed flora and ascaris and giardia had a heyday

Post Edited (bluelyme) : 9/2/2016 3:10:18 PM GMT

Posted 9/2/2016 9:52 PM (GMT 0)
Huddie,
I haven't tried Royal Jelly. In Australia it's very expensive but I think it is a good product. I have read about it.
Psi,
I have a lyme anxiety but it is manageable. The only time I ever had it very extreme was when I took a sublingual B12. It made me feel like I was going crazy, I felt panicky and desperate. I never want to feel like that again.
It wasn't an immediate suspect. Its usually herbs that give me weird allergy reactions. Some supplements make me more tense Gaba is one, vitamin D3 puts me on edge. The worst herbs I have ever taken are Banderol and St Johns Wort. Epsom salts nearly killed me. I found out I cant tolerate too much magnesium. I have learnt to test things first and look at how my body is responding to new products.
I have allergies to a lot of things it isnt uncommon for me to stop everything and re-introduce supplements and herbs one by one for a couple of days so I can pick out what it is. These days most offenders give me a reaction within an hour or three of taking them. Earlier when I first got sick it would take up to 24 hours - my system must be more sensitive now. It made it harder then to find out what was hurting me but in the end I had to do the same thing it just took longer.
Maybe a little detective work here can help you. All the best.
Posted 9/2/2016 10:34 PM (GMT 0)
Bluelyme!!! That video was amazing! So freakin cool, thanks for sharing.

ArtAngel. Yeah i'm waiting on a whole bunch of labs right now so hopefully i'll know what's up soon. Doc thinks it might be gallbladder but we'll see. Just trying to kill the anxiety in the meantime but so far so good today so long as i don't eat too much. Even then i seem to be getting the neuro issues without the anxiety which is definitely preferable
Posted 9/3/2016 12:33 AM (GMT 0)
Psi,
Sorry I havent been more helpful. I do feel for you.
Allergies are the most difficult problem I am having. I hope you will let us know how you are going. And what your doctor comes up with.
I think traveller is right about detoxing. I am doing my best towards that but no difference so far. I am also going to an acupressure therapist to help shift the congestion in my stomach, my liver and gall bladder. I have abdominal pains and liver pains. They started with a liver parasite and even though I have gotten the numbers down I think those vulnerable inflamed areas are a magnet for other infections So the lyme and everything else you are still struggling with and are harder to get rid of completely keep you in a holding pattern. There are for me a laundry list of foods, herbs and supplements that bring on the pain, or weird side effects. I am very grateful to the pine nut oil for helping me a bit. It only helps with gut pain issues.
You are very well informed I am sure you are doing everything possible. We all have our own responses and issues which makes it more challenging. I wish you are the best. Let us know how it goes.
Posted 9/3/2016 2:56 AM (GMT 0)
No way art! Every bit of advice helps :) I have thought about the liver flukes and my doctor has mentioned that as well. It truly is frustrating when those organs are vulnerable. I'll definitely post back with an update if I figure anything out
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