Trigeminal neuralgia anyone?

Been here for many many years, going undiagnosed for 9 years, 16 years into this disease at this point. Been feeling pretty well and as always trying to figure out if my latest disease is attributable to Lyme or not.

Anyone else here with trigeminal neuralgia diagnosis?

In looking for something else, I stumbled across another source of information that attributes this to the possibility of Lyme:
"There are inflammatory causes of trigeminal neuralgia because of systemic diseases including multiple sclerosis, sarcoidosis, and Lyme disease. There also is an association with collagen vascular diseases including scleroderma and systemic lupus erythematosus."

www.medicinenet.com/trigeminal_neuralgia/article.htm

Did you check for cavitations-most likely at wisdom tooth space?
So many people never look-easy to check-could be cause and cure.

I just drove to a burb of Detroit and got a cavitat-cost me $600 and I now know that my upper wisdom-first mohler tooth space didn't heal ( probable infection). Surgery is one option-ozone stem cell and beemer is another.
Regular dds simply missed the non-healing bone-cavitat scan works

Post Edited (magoo2) : 7/27/2018 4:35:24 PM (GMT-6)

I had trigeminal neuralgia. For 8 years Horrifying pain in my right cheek, behind my right eye and in top of my head. I had a stroke and bells palsey- temporary facial paralysis.

Mine was related to Lyme and coinfections, which I have been heavily treating. Lyme is a disease of inflammation and I had been treated for brain encephalitis.

I tried everything and had seen doctors, neurologist, mri, etc.
and was contemplating all options including craniotomy, nerve surgery’s etc.

Recently
I had a tremendous positive development in the last six months and barely have pain any more!
I began with an internal parasite cleanse; black walnut, worm wood, clove. And did nasal/ear infusion with salt water, 10% apple cider vinegar, and a small amount of clove, black walnut, oil of oregano, colloidal silver.

My nasal cavity drained after a day or two and I have barely felt pain for the past 6 months!

I would wonder about wisdom tooth cavitation. Well worth checking.

Sorry to hear you are going through trigeminal neuralgia.

I had temporary relief a few times over the years so I knew it was a possibility. I tried everything I could; combinations of foods, topicals, abx, acupuncture, bvt, etc etc.

I had 30 days of iv rochephin antibiotics that did not help.

The thing that changed my trajectory was removing gluten, wheat, sugar and treating for parasites, virus. I had done dr hulda Clarke’s parasite protocol several times in the past. There is a month long recipie on her website that I somewhat followed but ramped it up and extended it.


Fresh ground cloves, capsules #00 Tincture of black walnut-liquid Wormwood-artemesia-capsules
1st week
Cloves: 3 capsules 3 times a day
Tincture of black walnut: 30 drops or 2 droppers 2 times a day
Wormwood: 14 capsules 1 time a day.
Don’t have to be taken all at once. All to be taken on an empty stomach.
2nd week
Repeat 5 times a week.
3rd week
Repeat 3 times a week.
From james Gilliand
I added a 4-6 week and would eat up to a tsp of powder clove 3 x per day


Apple cider vinegar will also kill parasites and I was drinking 1 shot in a cup of water 1-2xper day. It also alkalyzes the ammonia neurotoxin that is a byproduct of Lyme.0

I was doing an ear and nose rinse with 5% salt, 10%acv, I added a pinch of oil of oregano, homemade colloidal silver and clove(not necessary if you don’t have it). Dropping in my ears and Snorting a few drops 1-3 d per day. I also rubbed this on topically in the areas I was having pain.

After 2 days I could feel my nasal cavity drain and drip into my mouth. I spit everything out as I was concerned about parasites. I have barely felt any pain in that area for a few months.

Be well

Hi Alice - welcome to our community. I see your first post here was missed.

How is your treatment for lyme going?

I see in your signature line: "pulsatile tinnitus"

Has that resolved?