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Posted 9/6/2016 1:04 PM (GMT 0)
Hi all, I'm starting my antibiotics today and it's Minocycline for now. Two a day. Just wanting to know what to expect (side effects, herx etc.) and if any have you have had experiences with it.
Posted 9/6/2016 1:28 PM (GMT 0)
I know that Mino crosses the BBB, so it can hit pretty hard on some of us, so I'd advise caution at least until you know how it affects you.

Start off on a low dose and detox, detox, detox.

I'm sure others that have had success with Mino will be along soon and can give better advice. My time with Mino was disastrous.
Posted 9/6/2016 2:38 PM (GMT 0)
Hi traveler, it was disastrous how so?
Posted 9/6/2016 3:07 PM (GMT 0)
Mino alone should be fine to start. Its easier on the gut than Doxy. What dosage? I started on one 100mg capsule twice a day. Might be best to start at one a day and take it with food at dinner time, rather than starting it with breakfast until you see how well you tolerate.

Do you have plans to add another ABX soon? Nono-ABX therapies are not that successful.
Posted 9/6/2016 3:38 PM (GMT 0)
hi, she wants me to add azithromycin in soon once I get used to the mino, so yes was going to add another ABX. And mine are 100mg twice a day. I think doing one a day for now makes more sense will call my lyme doc and ask about this.
Posted 9/6/2016 3:51 PM (GMT 0)
One a day for maybe three days straight should gauge if you will have an allergic reaction or herx too hard. But some people have developed an allergic reaction after 30 days or more. So, we are all different. As ABX go.. mino and zith are pretty well tolerated.

Sounds to me like she's leading into a mino, zith, rif combo.... now that will hit something pretty hard.
Posted 9/6/2016 3:55 PM (GMT 0)

tickbite666 said...
Nono-ABX therapies are not that successful.

If that was a typo and you meant non-abx therapies are not that successful, there are many from this community alone that have healed using only non-abx therapies, so I would have to greatly disagree with that statement. Otherwise, could you explain what nono-abx is - or did you mean Mono therapy?

Tick41 said...
Hi traveler, it was disastrous how so?

I was treated with Mino the very first time I tried treatments, back in 2007. Back then, the need for detoxing and supportive therapies was not known about, so I didn't detox or get the supportive therapies I needed and I know that it contributed greatly to my experience and is why I encourage everyone to not only make sure they are detoxing well, but supporting any of the body systems/organs that are struggling.

After that though, I was in really bad shape. Every symptom I had had become severe. I was having seizures, severe cognitive impairment, and so many physical symptoms that I was completely bed ridden for a time. It took me 2 years to crawl out of that hole. Fortunately, this is not a typical response to treatment for most people, especially if they go the extra mile and detox and support their body.

Glad you started with only one Mino. We always suggest that people start off on a very low dose and build up slowly so that they have time to keep up with the detoxing needs that happen when a person is in treatment.
Posted 9/6/2016 4:12 PM (GMT 0)
what I was told by my doc is that what I would feel is typically just an amplified version of the symptoms I had been feeling previously and this could last a few days to a few weeks. I realize everyone is different
Posted 9/6/2016 4:13 PM (GMT 0)
Trav,

Yes, it was a typo... I meant to write "mono"-ABX... as in singular vs combo. I do my share of alternative "Non-Abx" too.
Posted 9/6/2016 4:17 PM (GMT 0)
Yep, that's a basic description of a herx, but herxing isn't productive to our healing, as it's a flooding of the body of toxins from the dying bacteria, and can get severe enough for some people to be life threatening - which is why we encourage detoxing.

Just remember that we aren't supposed to kill ourselves in killing the bacteria. This is a journey, not a sprint to the finish line.
Posted 9/6/2016 7:37 PM (GMT 0)
I was told to start with the mino (100 mg) once a day for either a week or two (can't remember) - before going to 100 twice daily.
- This was because of the 'head' side effects you can get when first starting.

I had dizziness from it.
Posted 9/6/2016 8:21 PM (GMT 0)
ive been on iv and a few other abx but i found mino gave me the strongest herx (i had to stop after a few weeks and i wasnt on full dose ) , apparently its all to do with the rate is passes into the BBB (faster then doxy) i agree with everyone else, it might be wise to start of on a small dose and build it up? .
i will add im very sensitive to most abx though, so my story may not be the norm.
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